Husband to a wife with a Cavernoma - Cavernoma Allianc...

Cavernoma Alliance UK

439 members119 posts

Husband to a wife with a Cavernoma

DumindaSA profile image
4 Replies

Recently did MRI found that my wife having a cavernous angioma and NS says open surgeroy would be critical.

they are suggesting GK for further treatment.

still I m searching for best option to cure my loving wife.

Written by
DumindaSA profile image
DumindaSA
To view profiles and participate in discussions please or .
4 Replies
sparky999 profile image
sparky999

Hey, sorry to hear that. I hope she's ok? I had GK 5 years ago now. Lots of people have had GK for their cavernomas, with successful outcomes. Try & do lots of research before deciding what to do for the best. Lisa

DumindaSA profile image
DumindaSA in reply to sparky999

Hi Sparky999,

thanks for msg, in addition to the cavernoma my wife having three (3) small meningiomas which is below 1cm.

most of the GK centers are focusing on maningiomas, but my local neuro sergeons saying cavernoma is the critical. did you have a hemmorrage before GK treatments?

EmmaJ70 profile image
EmmaJ70

Hi - are you a member of Cavernoma Alliance UK? It's free to join and they can add you to a secret Facebook page where you will get more answers to your questions because there are plenty of people with Cavernomas there.

This is the link to the website where you can join by pressing the red 'become a member' box half way down the page. cavernoma.org.uk/

Hope this helps.

DumindaSA profile image
DumindaSA in reply to EmmaJ70

sorry for late reply, thank you very much for the information .

You may also like...

Recently diagnosed brainstem cavernoma

I have double vision and numbness down the left hand side. I have had a recent bleed in the brain...

Cavernoma and headaches

year old daughter has been having headaches on and off since her teens, we have always been fobbed...

Living with Cavernomas

time I have a bleed I become very ill sometimes worse then others but symptoms still remain....

Right Brainstem Cavernoma

I am 26 years of age, i first found out that i had a cavernoma when i was 16, due to the fact that i