For me as a carer to my partner/husband,David, who has dementia,and almost no mobility,doubly incontinent and a host of other ailments , its become progressively worse over 5 years,but never was there any enquiry from doctor or health centre how he was doing,until I wrote 2 very strong letters to the health centre and council expressing my concern and anger that it appeared we had become invisible and forgotten about.
Almost immediately we had nurses and care workers coming to see what they could offer,and now we have a hospital bed and a host of mobility aids which eases my workload.We get the bare minimum financial help because we are above the threshold for help,it just pays for a twice a week visit for someone to bed wash him apart from that I do it all,and I also manage our business interests which luckily I can do from home.2 weeks ago David did,with a struggle,attend a day care centre,but unfortunately it was not a great success and I doubt he will go again.The biggest problem is getting him down 4 deep,outside steps,and I have had several companies in to try to address that but because we are adjacent to the sea,it is not allowed to put a lift in due to the chance of erosion.ggrrr.
I have no social life these days,in fact not a break for 5 years,and to be honest I would be to tired to go out if I could.
However I am not a moaner,and am so glad we travelled widely when we did.
Looking back,i never envisaged to be a carer to a man that was so accomplished and able,and who I relied on so much.
We non of us know whats ahead,so I encourage everyone to do what they can whenever they can as often as they can.