double trouble: I had a spinal fusion some... - Care Community

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double trouble

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I had a spinal fusion some years ago - am ok but have difficulty getting up off floor, lifting things etc - my husband has just been confirmed with Parkinson - early stages - am concerned because of my condition how am i going to look after him - want to be prepared - want to look after him.

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Have a talk with you doctor and ask him to refer you for help. You can put in place now, all the assistance you will need when he gets worse. Do remember if one of you cannot get up, you can phone the ambulance and they will come and help;

MAS_Nurse profile image
MAS_Nurse

Hi elmacv and welcome to this caring forum. exhausted wife has given some very helpful advice. You may also like to have a look at Parkinson's UK website parkinsons.org.uk which has a lot of information on care and support, local advisors, helpline, support groups, Parkinson's Nurses and support available in your local area.

Also. lifeline24.co.uk website may also be helpful to you, regarding personal alarms for the elderly or disabled, usually a lifeline pendant worn around the neck or wrist. This will enable you both to remain independant at home, reassured that the Care Team will be there to answer your call if you should need their assistance [24 hours a day 365 days a year. It is good that you are putting plans in place for if and when they are needed. You may also find some of the pinned posts on the screen helpful. Are any other members available to help and advise elmacv, please? Thank you and best wishes.

in reply to MAS_Nurse

many thanks for all the information - very much appreciated -

Thoms98 profile image
Thoms98

Sorry to read about your husband's diagnosis.My understanding is that all Parkinson's patients vary. My husband was diagnosed in 2010 and is still at home with me. His decline has been gradual and he did have an accident in 2010 which caused mobility problems. It has not been easy for either of us; we have to take each day as it comes. I have had two knee replacements during this time and some health issues. I set about finding out what is available for free and what has to be paid for! I am still looking and finding out for my husband. I did give into anti-depressants and seem to cope better.We have carers three times a day because of Brian's mobility problems. That is another saga. Not putting you off and there is support out there ; sourcing it can be a problem.I feel that we are the lucky ones.We have the skills to give it a go. All the best give it your best shot and see your Doctor.

in reply to Thoms98

thanks for this - know were in early stages but want to make sure that have all info to cope with it when it’s needed - sorry to hear about your husband and hope you get all the support you both need.

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