WE NEED A DIRECTION! PLEASE HELP!

[Alyviascure]

Hello. my name is Ryan. My daughter Alyvia, age 15, has osteosarcoma. A bone cancer. She was diagnosed march 2019. It started in her knee. She went thru the standard regiment of chemo for child hood cancer of this type and a knee replacement, here in Atlanta GA. It reoccurred in her hip and then we had a hip replacement. Then showed spots in both lungs and had surgery to remove some of the spots. After surgery we started a different type of chemo and since stopped because scans showed that the chemo was not doing anything. Doctors recommended a proton beam radiation treatment that will maybe slow the cancers progression. We just finished that treatment approx 8 weeks ago and a scan last week showed no new spots and a very small amount of anything increasing in size. We are looking for treatment suggestions weather here in the US or outside. It seems we have reached our limits here. Too many "Politics and greed". please feel free to so share any advice, experience, suggestions. PLEASE!!! thankyou...

[JoelT Administrator]

So sorry that you and your daughter have had to face this cancer. As you already know this is a tough cancer.

Where have you had her treatments and have they been with experts in treating pediatric osteosarcoma?

Joel

[Alyviascure in reply to JoelT]

At Children's hospital of atlanta. And yes.