Diagnosis and feeling like left in the wind

[franklin1970]

Good morning everyone prayers and hugs your way always. After all my recent diagnosis and finding out I actually do have lupus it’s been two months since I was diagnosed with lymphedema and still no treatments have been set up by my doctor. I saw my doctor on Friday and she’s been very good ( in regard to telling me everything and giving me my tests results and very good teaching and follow up with my sugars and insulin). However I am a little confused as she had put me on insulin three weeks ago and now quick acting one which I don’t think I need as my blood sugars just with the insulin Have dropped from 18.4 to ranging from 6.4-8.4 right now. I still take my six units of insulin every morning and I am dillouting my juice down with water, but it still has a nice flavor. My cyst on my right foot is So painful. I asked my doctor what she could do about it and she told me to sand my foot down more (it’s full of fluid and should be removed as I had been told at the leg compression testing). Yeah it’s agonizing to walk on. My feet are swollen on the bottom my left ankle is like a balloon and I’ve had three colds in one month. All I want is my treatments to be done via through Homecare or whatever as 2 months have been wasted as far as I’m concerned. However I do feel closure as I know now what is happening to my body. The not knowing before and my body having all this pain in my kidney and my burning muscles cramping and sluggishness , extreme fatigue and pain. The not knowing what’s causing all this was really really overwhelming! I’m still positive and exercising every day as much as my body can take. I feel so good after I exercise as I know I’m doing good for my body. I was told by my doctor I need to do the insulin and everything I can so I can save my life. My quality of life has improved as I was put on a new drug. They had me on Kadian and Statex Different morphine’s for years and my body became immune to the pain meds. as I used to have to take two of the Kadian twice a day as it was the main pain drug and four of the Statex for( breakthrough pain) between doses! I was put on Hydrocoden it has acetaminophen as a anti inflammatory to help reduce swelling and the other part of the pain med which is actually made me feel human again as I’m not crying in agony everyday, but still suffering at night, but my pain doctor has been calling me to see how I’m doing and so when he calls again I will address the night time pain and I only get 3 pills a day, but doc has made it so that it can be adjusted. I just think another dose in the day may help more. Well I have told you pretty much everything and updated you on what’s what. Making the best of life went to a comedy my husband surprised me with dinner and a comedy club on Friday night after the doctors and we had the most wonderful time I lovely dinner and we laughed so hard. Tickets were only $15 a person but will be $20 a person actually cause they’re going up! But at the end of every month they have a comedy show and my husband and I are going to make a point of doing this every month. We laughed so hard as laughter is such good medicine why not do things you enjoy anal make you laugh as life is so precious and meant to be lived sick or nights. We just have to improvise make the best of our journeys and look to each other for support stay positive and try to enjoy the things that you can and or able to do and will make you happy make you laugh and even just for a while if you’re laughing your not always thinking and focusing about our paint. So my prayers for all of you is for all of you to be healthy not in pain not suffering positive and happy and having a for filling life no matter what and always laugh and enjoy comedy laughter is good medicine always. May the Lord bless and protect you always and comfort you in the dark and bring you to the light and wrap his love around your saw and make you feel whole. Feel his presence feel his love know you are all loved and yes we are fighting difficult journeys but remember when you feel like giving up just reach out and the Lord will help you he will lift you up and he will protect you amen 🙏