1) In June 2016 I was diagnosed by a Toronto Pain Specialist as having Small Nerve Peripheral Neuropathy, described as Idiopathic Pain. My symptoms began in June 2015 in my legs and feet and include freezing cold, numbness, burning, tingling and throbbing pain (mostly on my left side).
2) For a few years before that, I experienced burning hot feet and sometimes used an ice pack at night. I only recently made a connection that hot, burning feet may also be a symptom of neuropathy.
3) In October 2015 I saw a Clinical Neurophysiologist who did electrode and needle testing and diagnosed no nerve disease or damage.
4) So far, my treatments have included 4 therapeutic massages in January 2016.
5) Since June 2016 I have been under the care of a Pain Specialist in Toronto, have had 6 manipulative therapy treatments and acupuncture, and am currently taking Lyrica (300 mg a day) and Oxycodone (30 mg a day) for my pain.
6) In August 2016 I attended a pain institute in Toronto where I had 6 treatments including stenosis infra-red therapy, decompression, vibration, etc.
7) I have used a TENS machine at home (transcutaneous electrical nerve stimulation).
8) I do get great relief from walking and some comfort from heating pads and blankets. Also using “The Stick” brings some relief.
9) None of these treatments nor drugs have resulted in an improvement and Peripheral Neuropathy is negatively affecting all aspects of my life. I feel disheartened but do keep an open mind about new treatments and a smile on my face most of the time. I wonder how other people cope with PN and whether have any tips that work for them.