If your child has had tongue reduction surgery, which hospital/surgeon performed the surgery?

[daisyduck]

[daisyduck BWS Support]

We had Mr Hartley in ENT dept at GOSH for the first two, and Mr Dunaway for the next two operations.

[Carladrew]

We had mr hodgkinson at the rvi in newcastle

[Claircharlton in reply to Carladrew]

Hi hope you don't mind me replying to this comment, my daughter has bws and has had a tongue reduction on 19/11 mr hodgkinson at rvi also did my daughters, how was recovery? My daughter is still recovering she is 10 months Clair

[Songbird63 Administrator BWS Support]

We had Mr Dunaway at GOSH

[familyfour]

We had mr dunaway at the Portland London

[daisyduck BWS Support]

Mr Dunaway performed Amelia's second op at Portland Hospital too.

[kellybear]

Mr Chris Hill at the Royal Victoria Hospital for Sick Children in Belfast

[Bond]

Hi. I'm an Englishman living in Norway. My daughter (Helene 16 months) has BWS and an enlarged tongue is one of her symptoms. So far, tongue reduction surgery has not even been discussed by her physicians here in Norway. Aside from the risks associated with all surgery, what additional problems should we be aware of, should we decide that this operation is best for her? Is there an optimum age at which it should be done? How much does it effect her language development? What is the general recovery period, post op?

[Songbird63 Administrator BWS Support in reply to Bond]

Have a look at our support group website bws-support.org.uk. The info on there about macroglossia is written by GOSH craniofacial team. There is info about the op etc and contact of who you need to talk to for more info or a referral. Generally it is recommended the op is done under 2 years of age. We spent 2 nights post op at GOSH and he was eating normally within a couple of weeks. His speech is perfect. GOSH have undertaken research into the effect of TR surgery on speech...again this can be accessed from website.

[ramireza]

We are sopposed to have TR in february with mr Dunnaway at GOSH. We live in Sweden and I have worked hard to convince that TR is the best for my son. Now they are actually comming with me to GOSH for educational purposes and hopefully it will help other kids. And hopefully I have made the right descicion for my son.