New here: Hi, We're new here. Our 19 month old... - BWS Support

BWS Support

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Hi new here from England!

are currently waiting genetic blood tests back to see if he has BWS. He has already been diagnosed...

Blood tests and ultrasounds

Our daughter was diagnosed with BWS when she was 8 weeks old. We were told at our initial consultant

Will tongues of babies with BWS get bigger as they grow?

daughter has BWS. She was born with omphalocele, has large tongue, ear crease, and really tall for...

Is there an existing Foundation/charity for children with BWS?

what to do to help your child or cant even give any helpful advice for management or just anything...

My daughter and BWS & Paediatricians in North England

I stumbled across BWS a week ago whilst googling Earlobe Creases. My 11 week old has creases in her