My son Myles will be 3 next month. He has BWS and had tongue reduction surgery when he was 20 months old. He has always been a bit behind his peers, but he was premature and a big boy. We live in Texas and he has had Early Childhood Intervention since he was 6 months old. They do not think he has anything else that would cause delays like being on the autism spectrum. I am wondering if there are any parents out there with young children (4-6 yrs.) that have BWS. Did they go through tongue reduction surgery? How long did it take them to talk? My little one still struggles to say Ma-Ma and Da-Da. He is smart...totally knows what you are talking about, but has difficulty communicating back to us.
Does anyone have a BWS child that has successf... - BWS Support
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