Who stays so happy and positive with t...come ... - Tinnitus UK

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Who stays so happy and positive with t...come in pls

Toughmathew profile image
19 Replies

Even no research i believe few can recover coz i rarely see in this forum at leastBut who positively totally accept and its fine

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Toughmathew profile image
Toughmathew
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19 Replies
doglover1973 profile image
doglover1973

Believe or not Matthew .. The stats say that 98% of people habituate to T . That may not be reflected on the forum because most of us are still in the process of coming to terms with our sound(s). That's why we're here. It's not a quick business. You have a long way to go but you'll get there with time & patience. Think of it as a marathon rather then a sprint.

Toughmathew profile image
Toughmathew in reply to doglover1973

Yeah mate so dont hold my breath to get t disappeared mate finger crossed

Gloomster profile image
Gloomster in reply to Toughmathew

Thanks Doglover - Personally I find that realistic hope a great comfort when things feel a bit hopeless. I don't like to post about myself too much but after a month of what I call T2 ( an unexpected and catastrophic relapse after 8 pretty calm years ) - I am making progress .

I am planning to do a boring post about what I have done what has worked what is in progress and the small but certain steps I am making in the right direction. I thought it would be good to accentuate the positive ..so to speak Uncontrollable mood swings are part of the problem for me .. I spoke to my GP only yesterday about it .

Its hard for people who have not really suffered with T to understand how low it can bring you and unless you do your advice will be seem empty ".....oh pull yourself together it s only noise ,...".... ( Really! Wow if only I hade thought of that ! )

I do know the lows but having the great advantage if being in my second round of chronic T I also have some resources to fall back on and I also know that if you get the right advice and support there is a way back to your old life.

People need to know that and I anyone out there feeling in despair - take heart take help take advice and in a few months you will certainly be doing much better than you are now

Toughmathew profile image
Toughmathew in reply to Gloomster

Not boring informative and instructive

BILBAO2022 profile image
BILBAO2022 in reply to doglover1973

You give me hope

Chumpiechops profile image
Chumpiechops

Hi Mathew, right now it might feel like T is not going to go away, if it does then great, but with the right support which does include some self belief you will find it gets easier to deal with. I take some anti depressants as my anxiety at first was horrible. It helped me immensely and now on occasion I even feel I need to listen for the T as it sounds so quiet (not my best idea!) See your GP, look on the BTA website and keep messaging if it helps you.

Sending you best wishes

Toughmathew profile image
Toughmathew in reply to Chumpiechops

U re kind thx

Minkies profile image
Minkies

Hi Matthew. I am new to it too, perhaps two years after many medical issues. I don't know what caused it but I am learning to live with it by occupying my mind with more pleasant thoughts and hobbies.

I have told you before not to dwell on it. Get a job, even part time. Take up a hobby, maybe walking.

Toughmathew profile image
Toughmathew in reply to Minkies

Alright mate i will thx

oceanview1 profile image
oceanview1

Head up. You'll habituate. I've had tinnitus for 18 months / 2 years. I was initially in panic and despair, but you do habituate. Your brain tunes it out as it realises its not relevant. It very rarely bothers me now. I only really notice it in quiet rooms. It moves up a level when I'm stressed and becomes more noticeable. This is why is important to get on with your life and to focus on other things as your stress will be heightening the sound. The paradox is that the more that you focus on it and activeky try to conquer it, the more you breathe it life

camino9 profile image
camino9

Hi ToughMathew.

I come to the forum when I am in the depths of despair. A caveat.

I feel I am not able to go on...

I know I can and I will, but it feels therapeutic to air my shadows here; my desire to leave the mortal coil..

No one else can possibly understand and nor would I "talk" such things with anyone I know on a day to day basis.

Having written that, generally, yes, I can say I am happy and positive living with T.

Habituated..yes, we are an adaptive species!

There are days, sometimes weeks, when the sound increases tenfold. It puts me into utter despair. Like today, yesterday, day before that...

I am not so positive on those days, I rest, hibernate and create a gentle environment. I care for myself in that way. I do. There are subtitles if I need to distract the mind with visuals..

Two ears blocked and ringing. Usually it is one (right) with a tiny bit in the left. Yes, I am aware that it is the brain conjuring such intense and relentless noise, but I experience it on these sides of the head!

It is the most intense experience.

I despair.

If there is a slight shift, however, and the sound lowers a wee, I am a chalice brimming with utter and complete gratitude.

Yes, a lowering of the sound or to feel unblocked in my "good" ear is an hallelujah moment!!

But now, I am in the mystery, and I am suddenly without any more words.

God bless

Toughmathew profile image
Toughmathew in reply to camino9

Thz for your encouragement well written

Toughmathew profile image
Toughmathew in reply to camino9

Would u say real habituation not bare tolerance

camino9 profile image
camino9

I am not sure, ToughM...

perhaps the latter, tolerance, suggests no complaining?

I think it is important to speak honestly without spinning into victim consciousness as this can become a bottomless well.

Everyone will have a different methodology or approach to their experience. No judgement means no "right" way to deal with T

T is difficult, a challenge, ever constant, and part of my life.

It is.

If I don't accept this, I am less at peace. Inner Peace and not necessarily understanding, is my goal.

I have attempted to treat the condition to no avail.

How can I allow this very intense experience move me closer to an understanding of my self and the spirit within? Just my take (obviously)...

And I can use hearing aids--last resort-- as soon as I get my current pair upgraded

Toughmathew profile image
Toughmathew in reply to camino9

Do u have hearing loss how much is the aid

camino9 profile image
camino9

yes mostly deaf in one ear

AnnaBeee profile image
AnnaBeee

Hi there, I have been living with Tinnitus for several years. It took work but it hardly affects me negatively any more. It hasn't lessened in severity but the level of 'noise' does change from day to day. I am not taking any medication. For me it was starting to use it as a 'barometer' of how I was feeling generally from day to day that helped. I use it to make decisions on how much I can do/how much rest I need. Its generally louder when I need to rest and will quiet (or appears to quiet) when I'm generally well (that's physically and mentally). I kind of see it as an internal measure that I listen to, not in a panic but just like it's a sign to take extra care of myself. I don't know why this has worked for me but it does. Good luck to you.

Toughmathew profile image
Toughmathew in reply to AnnaBeee

Thank you so much

Toughmathew profile image
Toughmathew in reply to AnnaBeee

U re so optimistic

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