Sounds changing again

[Mixedsalad]

Hi everyone.

Just noticed a change yet again to my left ear.I am now hearing certain sounds very loud and prominent in my T ear. Whistling a tune is incredibly dominant in my T ear but what sounds like a slightly different tone.Tv volumes and sounds can be annoying as well as the sound of seagulls.Is this Hyperacusis or something else.My good ear is not affected. Thanks in advance

[Happyrosie]

The beauty, Mixedsalad, of tinnitus is that everyone hears/feels it differently, and that it can and does change!

My own tinnitus used, sixty years ago, to be quite musical but it’s now a boring ‘badly-tuned-radio’ sound, with whistles sometimes.

You are among some eight percent of the population who suffers from T so your not alone!

[Cycle100 in reply to Happyrosie]

I believe it's 12% but only 1-2% are troubled by it. So not everyone with tinnitus knows what it's like to be troubled by it. That for me is the problem.

[MOLKO1972 in reply to Cycle100]

I wish I wasn't in that 1-2% of people!

[Cycle100 in reply to MOLKO1972]

Umm .. I don't understand. Surely you wouldn't want to be in the 1-2% ?!

[MOLKO1972 in reply to Cycle100]

My bad! This is what happens when you try and type too fast!! Was meant to say 'wasn't'

Now edited

[Cycle100 in reply to MOLKO1972]

Yeah . I do that all the time. I blame the tinnitus. Haha 😉

[1966366 in reply to MOLKO1972]

You did say "wasn't" lol!.... Or are my eyes going out the same way as my ears!

[MOLKO1972 in reply to 1966366]

😂 You'll be relieved to know that your eyes are fine. Initially I did type was, but it is now edited to say wasn't 🙂

[1966366 in reply to MOLKO1972]

Hallelujah!!! Praise God, Allah, Mohammed and bless you madam for the good news!

[MOLKO1972]

Hi Mixedsalad,

My T has changed considerably in the year that I have had it. Will actually be a year on Saturday!

It changes tone and volume everyday. I never know what It is going to do from one day to the next. Sometimes I can hear it in my good ear, which is annoying to say the least.

I just go through the motions with it now. I don't fear it anymore and I just treat it like that annoying friend that just won't shut up

You're not on your own in this mad world of T!!

Wishing you all the best

[doglover1973 in reply to MOLKO1972]

Well done MOLKO1972 You've survived a whole year! 🥂

[MOLKO1972 in reply to doglover1973]

Ahhh thank you! 😁

[Marlayna]

Hello there. I’ve had to nidus for 46 years so consider myself a bit of an expert, at least on mine. I’ve noticed when I have changes like yours that it has to do with my eustachian tube fluid being blocked. Couple years ago they started calling it eustachian tube dysfunction. Maybe read up a bit on that and see what you can do to alleviate the symptoms in that ear. I know from experience it’s really annoying and I hope you find an answer. I was able to cure that part of it, but that tinnitus remains.

[Mixedsalad in reply to Marlayna]

Thanks I will as always look into it ××

[surreycccfan]

Hi, it doesn't sound like hyperacusis as this is normally a change in sound sensitivity rather a change in the sound of our T tinnitus.org.uk/hyperacusis

Have you discussed this with your audiologist?

Stay safe

[Mixedsalad in reply to surreycccfan]

Thanks for the reply.Discussing anything with anybody concerning T is almost impossible on the NHS.I did ring Audiology but as I have been referred to ENT they will not do anything for me.Been on referral list since February and had T since June last year.Same with GP,they say oh you have been referred...just wait.I do not have the means to go private.My T circumstances have changed significantly in the year I have had it.Thanks again for trying to help.It seems this forum is the only place to go for guidance and it feels this is the ONLY place that cares .

[surreycccfan in reply to Mixedsalad]

I can totally understand and empathize, the wait times for some audiology depts are so long.

One thing that may help you prepare for your ENT visit and/or maybe put some pressure on your GP to put you down as an urgent referral are the National Institute of Health Care and Excellence (NICE) guidelines on T (nice.org.uk/guidance/ng155) which all clinicians should be following, this is a lengthy document so have a look at this flowchart in the supporting document section (nice.org.uk/guidance/ng155/... which shows your GP should be helping you get a MANAGEMENT PLAN in place for your T, if they are unable to do this then they normally refer you to audiology/ENT, as you have this referral you could maybe discuss if your GP could request an urgent referral.

I know once I had seen audiology and ENT and had all the various tests, this helped my emotional reaction to any changes in my T as I knew there was nothing sinister wrong.

If you are struggling there is always the BTA helpline and webchat which is excellent. You may also want to consider attending one of the BTA support groups (either f2f or virtually) as these are a great source of information and support. tinnitus.org.uk/find-a-supp...

Stay safe

[Mixedsalad in reply to surreycccfan]

Many thanks for caring

[doglover1973 in reply to Mixedsalad]

Hi Mixedsalad I really sympathise with you. I waited over a year for ENT and a further 5 months for Audiology. The only thing you can do is ask your GP to speed up the process. You'll need a good reason. After a year I told my GP I couldn't cope and she whirred into action. Don't be afraid to say how it is. T is very debilitating.

[Mixedsalad in reply to doglover1973]

Thank you again....can only try . I see my GP next week.

[doglover1973 in reply to Mixedsalad]

Good luck!

[Spurdog1]

I have had t for 20 years. Originally it was a level humming sound, such as a seashell gives. Recently I have a dripping tap, a midge going round in my room, also a series of indistinct voices whispering (during the night). It really doesn't phase me, except the invisible midge.....