Silence to hell: It gets daft some times... - Tinnitus UK

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Silence to hell

deltec profile image
14 Replies

It gets daft some times silence back to hell I can’t work it out at all

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deltec
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14 Replies
TinnitusUKPat profile image
TinnitusUKPatPartner

When our tinnitus is quieter, we're often less anxious and it bothers us less. When our tinnitus is louder, typically this is related to stress and we may notice it more. Our hearing won't be changing dramatically between these periods. The level of worry or distress which our tinnitus presents to is far more likely to change on a regular basis.

Stress and anxiety are invisible - we often deny that we are affected by them, even when there are signs (in the form of louder or more intrusive tinnitus) which suggest that we are going through particular periods of greater pressure.

deltec profile image
deltec in reply to TinnitusUKPat

So what do u hugest I do

deltec profile image
deltec in reply to deltec

Could u explain

deltec profile image
deltec

I’m just living life like every one else

TinnitusUKPat profile image
TinnitusUKPatPartner

Nobody is suggesting that you have to do anything, Deltec. If you feel that the difference in tinnitus you're noticing is concerning, you can consult a doctor and they can refer you for tests, for counselling or other forms of support.

If you feel that talking to people with lived experience of tinnitus reassures you, you can come to this forum or attend one of our support groups - either online or in person, depending on your location.

If you're happy to live your life normally and not give tinnitus a lot of increased attention, then that's a perfectly good approach to take.

We can provide the advice and information for you, as we have been doing for a while now - it's up to you to decide what to do with it.

deltec profile image
deltec in reply to TinnitusUKPat

I haven’t had a lot advice at all from u guys or my gp

AldoArgentina profile image
AldoArgentina in reply to TinnitusUKPat

Hi! I'm from Argentina, and sorry if my english is not very good. I respectfully disagree with the deeply rooted idea that the quieter-louder tinnitus is not real. I have periods in which tinnitus almost disappear for one or two days and I get illusioned that it will never come back again. But, often when i wake up in the morning, suddenly it comes back at full strength. And it comes back when I'm happy, relaxed and enjoing life again and absolutly away from stress. I believe at these point, that science not have an idea about this disease. And is easy to fault us for, supposedly, not being able to manage stress. I'm now trying wih idebenone and magnesium L Threonate, and I'm cleary better.

TinnitusUKPat profile image
TinnitusUKPatPartner in reply to AldoArgentina

Hi Aldo.

You are very much entitled to your opinion and your experience of tinnitus is not one that I would wish to challenge any aspect of.

Where we would disagree, perhaps, is on describing tinnitus as a disease - I respectfully don't consider it as such, and I think I'm right in saying that the BTA wouldn't classify it in that way.

I'm sorry to read that you feel that quieter/louder tinnitus isn't seen as real - I think we've done our best to suggest that it is very much an issue which a lot of us experience. I'm not sure where that perception comes from.

Equally, nobody is placing the blame or pointing fingers at people for not managing stress - that's not our view. We all manage stress in a different way, and the BTA tries to advocate for the tinnitus community rather than telling them what to do.

I'm glad that you've found an approach which works for you.

AldoArgentina profile image
AldoArgentina in reply to TinnitusUKPat

Thank you for your answer and for the support! Now I understand better why BTA recommend Mindfulness and not much else: because as tinnitus isn't being classify as a disease then they're not looking for a cure. Is hopeless. I respecfully advise everyone is reading, try with Idebenone and Magnesium L THREONATE (any other). It's working for me. Thanks a lot, reading others makes me feel better!

GarryOKeeffe profile image
GarryOKeeffe in reply to AldoArgentina

I completely agree with AldoArgentina. I've been given the rhetoric that tinnitus gets louder with stress. I'd agree that when we're stressed we notice things like tinnitus more. The volume of my tinnitus, which I class as severe, goes up and down all of the time. This happened a couple of nights ago, I was watching TV and the volume of the tinnitus in my left ear increased to the point I had to turn the TV up to hear over the noise. This has happened several times, normally about an hour after I've eaten, but at other random times as well.

I have a very comfortable life and have no stress in my life, but everyone seems to be pinned on the idea that stress contributes to tinnitus. I'd say that tinnitus causes stress which makes us more irritable.

purenostalgia profile image
purenostalgia

I do not understand your question, could you explain in more detail please.

Mike

Spurdog1 profile image
Spurdog1

Hi Deltec. It's not easy to work out what you want out of your comment. Tinnitus can be loud or quiet, as you call it. But often it's to do with stress or anxiety. For example on a quiet cool day tinnitus is tolerable. When you get stressed you will find you notice your tinnitus more. Its not that its louder, you are just noticing it more. The way to ease the sound is to do some relaxation exercises, quiet music, go out in the garden listen to the birds and their beautiful songs. Tinnitus is only there because you notice it more. We can only help you on here if you tell us what you want/need. More than one sentence.

Your doctor can only advise you if you go and see them. They can't if you don't call them, can they. Hopefully they will refer you to a specialist. By the way take a friend or relative to help you explain what help you can get.

I have had tinnitus for 20 years and it isn't a problem for me, we all learn how to adapt. I would also recommend joining a support group, are there any in your area? Good luck, you'll be fine.

bantams profile image
bantams

Hi deltec, Spurdog1 is spot on , with how to live with Tinnitus, take his advice and see if it helps you.

TinnitusUKPat profile image
TinnitusUKPatPartner

As this thread has drifted somewhat from it's original intent, I'm going to lock it. Discussions about tinnitus research and developments in it are probably best made in a new thread.

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