Does anyone have a pulsing/rushing noise in their head rather than ears?

[Dobradee]

After reading posts on the forum I’m understanding that most people experience the noise in their ears. Does anyone have a constant rushing sound in their head rather than ears? I get occasional ringing in the ears but the noise like rushing/pulsing water is definitely more in my head. I thought it just happened when I’m tired but it’s always there but when I’m busy/distracted I don’t notice it

[Happyrosie]

Head and ears for me!!

[rabbits65]

Hello Dobradee, Mine is head and right ear , mine is fullness in my head causing me pressure, like noise of a fan oven on, it’s horrible , I have to either keep busy or lay down and sleep, the more I walk about the worse it is, calm down and rest it’s a bit better but then I’m conscious of it more. So a bit of a battle ground for me and I don’t know what to do. I’m thinking of going to ask to go to neurology as mine isn’t just tinnitus good luck to you. 🤔

[Dobradee in reply to rabbits65]

Sounds awful, I hope you get some resolution. I get the feeling of pressure too & it builds to a feeling of tightness like a metal band round my head. Let me know how you get on. Take care

[rabbits65 in reply to Dobradee]

Nice of you to reply. It’s amazing how everyone is getting different degrees of symptoms in so many varying ways. I think stress has a lot to answer for , and although we may think we are calm we probably are not so. So it’s just a matter of “ hope for the best”

[Dobradee in reply to rabbits65]

I hope you get some answers from neurology, you would think they would be involved automatically with pulsatile tinnitus

[1966366 in reply to rabbits65]

Good evening, your problem is very much similar to what I have, but I am curious to know what you mean by "mine isn't just tinnitus".

[rabbits65 in reply to 1966366]

Hi , what I mean by “ mine isn’t just tinnitus” is because there is so many awful things going on. Like pressure, fullness, exhaustion, a noise like being inside a fan oven, roaring, it’s as if my whole head is completely taken over, not sure how much longer I can carry on like this.

[1966366 in reply to rabbits65]

You have described my problem perfectly! I am exactly the same and at the same point as you: I don't know how much more I can take. I have not slept since last Friday night and when I have it's only short bursts before the "roaring fan" wakes me up. Yesterday I was so exhausted from it all that I couldn't focus on simple things never mind working. Mine progressed from noisy ears - which I managed to endure - but the situation presently is something far, far too much for me. I assume that you have the awful sensations 24/7? I have been referred by ENT to see a psychiatrist as the doc is worried about my mental health! Lol! I know what you are going through and you I, but all the previous docs/specialists are at a loss to understand the wretched life I have. I wish you all the best of luck, please let me know what transpires x

[rabbits65 in reply to 1966366]

Thank you for your reply, I feel I could almost cry reading your reply because I feel “ finally”. I have found a friend with the same issues . Please let me know more about what the doctors have said to you. I tried to contact my doctor last week and the receptionist granted me an appointment then nobody called me back . I waited 2 days and nothing. We are not going mad at all this awful full up sensation and roaring and fan oven is definitely very real. But what’s causing it? Why can’t specialists help us? And importantly what is it ? What’s the reasons etc etc …., xxx

[Yogachamp]

Hi DobradeeYes me too I have the rushing sound in my head & buzzing as well as the ringing but feels like it’s in the back of my head , but I know it started in my left ear about 8 weeks ago. Mine is really bad first thing in the morning & then I just take calms & try distract myself so it doesn’t take over my life in the day . & then at about 8 in the evening it kicks in again when I’m starting to get a bit tired . I feel this is more than just tinnitus as I get bad headaches too. I am having a CT scan this week as I need to know if there is more to this than just T. I can’t understand how something like this can just appear as I was very fit n healthy before I had my vaccines but I also banged my head not enough to knock me out or anything but I just don’t know what is responsible for this sudden onset in my head .

[Dobradee in reply to Yogachamp]

Hopefully the CT scan will give you some answers. I noticed the roaring years ago, but nothing was diagnosed, I also had a bang to the head slipping on ice but I didn’t make a connection. About 2 years after I started with epilepsy & mentioned the roaring to the neurologist but he said they weren’t connected. My MRI at the time didn’t show anything. ENT are now sending me for another MRI with some sort of dye to show up the blood vessels. So I don’t know if that will show anything.

[Yogachamp]

Thanks DobradeeI see a lot of posts about steroids & wondered if they can help with this condition that might be my next thing to discuss with my GP if this doesn’t calm down . I will wait for my scan results & take it from there I think. Good luck with your MRI scan & let me know how you get on .

[Dobradee in reply to Yogachamp]

I will thanks & please let me know how you get on too

[rabbits65 in reply to Yogachamp]

Just to let you know steroids don’t do anything for tinnitus . There is no actual medicine for tinnitus . There is medicine for the dizziness that can accompany tinnitus . There is of course the calming down medicines to help with anxiety. Otherwise nothing. I really wish they would find an actual cure .

[Yogachamp in reply to rabbits65]

Thanks for this reply , I just don’t believe in this day & age there is no medication to help . I just pray every morning I can wake up & it be gone but I know that is not going to happen now after all this time .

[rabbits65 in reply to Yogachamp]

I really read your previous message where you said 8 weeks ago it just appeared. Mine too happened like that about a year ago now. I was cleaning my ears you know with those cotton buds, such a silly thing to have done , I pushed it into my ear canal a bit too far and got a sharp pain, now I told doctors all this and they weren’t the slightest bit interested. I even paid a private ent specialist 195 pounds an hour to try and get a private diagnosis. He wasn’t much help. I then went on the NHS and got a mri scan then a ct scan, all to no avail. I’m still struggling one year on and don’t know what else to do. Medication doesn’t touch it for me at all. Might ask for neurology team next. Have you any other ideas??

[Dobradee in reply to rabbits65]

Did you have the mri scan with dye? That’s what I’m having apparently it shows up the blood vessels in the brain

[rabbits65 in reply to Dobradee]

Hi again, what happened at my mri was the result said all was well , they said that a blood vessel near my right ear was prominent. They thought that may have been the cause of the trouble, but as far as I know I haven’t had any mri done with dye. . Interesting to know this as I can always ask about it if you have any success or information . I would be interested in knowing how you get on with it . My name is Penny by the way from Bexhill on Sea

[Dobradee in reply to rabbits65]

Hi Penny! I’m Debra from Lancashire 🙂 Just got the letter today, it’s called an MR angiogram. It’ll be a while before I get it because you have to have blood tests first to make sure your kidneys will excrete the dye & then have to wait for referral. I’ll keep you posted though

[rabbits65 in reply to Dobradee]

Hi Debra, gosh that sounds like a performance . I know when I had an Ordinary mri scan 6 months ago they said I had a prominent blood vessel in right side. They said it could be the cause of my t . Now yours sounds like in a lot more detail. Whatever your outcome I wonder what treatment if any they will come up with for you from Penny. 😃

[Dobradee in reply to rabbits65]

Probably nothing by the sound of all the posts on here but you never know! Best to stay positive 😀

[1966366]

Hiya Dobradee,Yeah that just about sums up my head(please see earlier posts). A specialist labelled it 'floating' or 'central' tinnitus and I have ENDURED it now for the last year or so. I still get the infrequent rumbling in my left ear and high pitch violin in the right; but what you describe is the like my major problem. Its like wearing a crash helmet on your head with the disturbing noise inside. At least you can 'un-notice' it when busy, and I sincerely hope you can sustain this. All the best

[Dobradee]

Thank-you

[Barbie14]

Yes, I have rushing and also pulsating. I have had it for 2 years. I was told I have synchronous pulsatile tinnitus. I have had an MRI with contrast, a neck Doppler, a CT Arterio-venogram and a CT Angiogram. They found both my internal jugular veins are being compressed by the lateral processes of C1 and the operation suggested is cutting down the lateral processes and maybe removal of the styloid process, to release the jugulars. I have been waiting over a year now for the operation because of COVID and still have no idea when I will get the operation, and they cannot guarantee that it will even work.

[Dobradee]

Sounds like a major op. Hope you get sorted soon

[graham106]

My mother, who's a bit older than you granted, has a rushing, throbbing sensation in the head as well as a "whooshing" noise. It may be that you have a medical problem that is causing this, perhaps related to narrowed veins etc. But after having CT and MRI scans my mother got the all-clear. We've long thought "but this is more than just tinnitus" - but it turns out tinnitus can manifest itself in all sorts of ways. Check you don't have high frequency hearing loss. My mother is about to get a hearing aid in the hope that by boosting outside noise it will mean she's not concentrating so much on noises from within her own body. The theory is that once you start hearing bodily noises it's very difficult to un-hear them and, when mixed with anxiety and depression, it can lead to a vicious cycle!

[Dobradee]

Thanks for replying Graham, my MRI has also come up clear & blood pressure & heart health is all good. ENT suggested hearing aids too. I’m trying noise habituation first. Just reading a book - living with tinnitus & hyperacusis that is saying the same - I’m not filtering out the ‘body’ / ‘head’ noises. Hopefully the habituation will help with that