I'm LoSiNg my mind and trying to come up with some solutions, it never stops, and the frequency seems to only be like trying to tune in a radio station and your off by just a little bit of being able to tune it in......
So, it's just after 1:00 am in Florida and I'll probably be up till I can pass out.
I haven't had much success with anything to quiet the ringing. I do put on some earbuds and listen to soft music or white noise, but this has been going on since 30 June, 2020 after a car rear ended me at a traffic light.
Any advice would be appreciated! All my best to my "tinnitus brothers and sisters" that are suffering with this problem. Honestly, I would rather have a cut and blood and the need of stitches or a bandage, at least people could see the physical damage. This is driving me crazy,,,,,,,,,,,,,,,,,
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Davidus
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Hello Davidus and welcome to the tinnitus sufferers club. You will find here sympathy as we all know what you are going through (when those dear to you don’t really understand.)I don’t know if you’ve had any medical help? Here is the UK where I am, doctors have a pathway recommended to them which they may follow when a patient presents with Tinnitus. You can access this advice if you like by finding the website of National Institute for Clinical Excellence and putting tinnitus into their search box. You might find something resonates with you,
The website of the British tinnitus Association as very helpful with tips and advice.
Word of warning - you’ll find advertisements for cures. There are NO CURES! Research continues but hasn’t come up with the answers we would all like to have.
Finally, there is a faint possibility that, as there was an identifiable cause, the T might go away. Just a possibility no more than that
Thank you for your response Happyrosie! I went to a neurologist, had many test performed and a list of ten things that he expects to happen to me because of the car accident, but he just gave me a referral for the ENT. Even at physical therapy with their vast array of doctors couldn't come up with a referral.
Plus to add to the pain, I can't use my health insurance because of the car wreck litigation and have to use a letter from my attorney stating that they will be paid by the at-fault party through their insurance, but they don't want to wait for payment, so I'm stuck with no professionals wanting to treat me. So my body at 60 doesn't heal the same as it at 40.
As for the neurologist ten item list, well I've had six of the ten things come to be and number ten on the list is death, but if that is the plan from above. so be it!
Happyrosie, you have a great day! BTW: I buy my wife and daughters a clothing line called Hippie Rose, when I saw your name yesterday that crossed my mind....... Davidus
Hey Davidus. Sorry to hear of your struggle with tinnitus . It's so tough. It made me cry at first. Like you I'd rather have just about anything else. If you can get hold of 'Living with Tinnitus & Hyperacusis' in the US it's worth reading it. I drew alot of strength from it - and still do. When you read it you feel as if someone's given you a hug and told you it's going to be OK. All the best.
Alpsholiday, I'm not sure how to take your input, and I've read your info from a year ago, along with the other subjects that you wrote about: Fibromyalgia , thyroid, and mentions of muscle aches, glaucoma etc, etc, I assume those are "Nothing" but as you wrote: "T is an just an ILLUSION or DELUSION that the brain has created, for whatever (unimportant) reason. There is NO NOISE OR SOUND at all - It's a figment of our imagination."
Thank you for your words but this is about as real as a heart attack and I'm literally going crazy from this and have sunken to the lowest point with depression I have ever been all over "Nothing" .........
Please lets contact the families of Kent Taylor (CEO of Texas Roadhouse) and Glen Mitchell (Retired UK fireman) and tell them that their husband, father committed suicide over "Nothing"
Many sounds within the body can not be heard, but when you were in your mothers womb many years ago, she knew you were there, but sounds were not obvious from you. When you were born and got a little older you may have put your ear on your mum's tummy and heard a whole world of sound that couldn't be heard otherwise. So yes you are correct, I can not put a microphone up to my ears and record the tinnitus sound, but I know it's real and I can't live with it much more without some remedy, and I'm not talking about using white noise to fake me out, I want peace and quiet.
I am amazed at what sometimes people write. I have had T for close on 20 years, brought on by Meniere's. The first months weren't pleasant, but I started to work on it. Different people handle different ways. But T is "Nothing". Well in that case eyesight is nothing, and the loss is nothing.
First, you need to get your friends your doctors your family, tell them what it's like today have you samaritans over there,(I didn't like your suggestion), you must get help.
There are days when I go back to bed, two paracetamol, and escape the sound, I seem to come out of it with a better attitude. You can't work against it, work with it.
Tell us on here what type of sound it is. Banging of drum, seashell (mine), when did it come about? I would like to know some real detail. I'd like to see a whole piece of really. If you like to DM me, I'm happy to listen to like-minded. We are not alone.
I also was a heavy music listener, and as long as I don't overdo it I can listen to my favorite that are very unique (Believe me, they are) at a higher volume, as I say don't overdo it. Get in a car and drive with music to mask the sound for a while.
Concentrate. Get yourself into puzzles, jigsaws model making, whatever. When I worked (I have just retired) intense concentration took me away from the sound. one moment it's 10.00 am, next, it's 11.30, and I was engrossed (I didn't notice my tinnitus).
Please don't do anything stupid. Your friends won't love you and your family would be in despair. Tell them how you are today.
Spurdog1, The outpouring of support is wonderful, I feel like I truly came across BTA for a good reason!
The sound I hear is very much like trying to tune in a radio station and being off by just a little when you unsuccessfully try to tune it in. It's somewhat of a screeching sound. It's like only having three signals ringing through my ears and it's a very narrow field of the "hertz" so I feel trapped. I haven't been to hell, but I feel this is what it is like.......
But on occasion it gets louder and some spikes in the sound have a much higher pitch, it's never a bass pitch, but those loud pitches send me to the floor. Vertigo, has become an issue, which plays against my business / work because I have a interior decorating business that calls for using ladders to install blinds, shades, shutters, draperies etc.....
But those higher pitch sounds can really play havoc on a person, for instance my wife likes to mostly listen to a show on TV that has four women talking on it about whatever, but one of the ladies voice can suddenly have this horrible high pitch and I either lose my thought, or have to cover my ears or better yet turn it off or leave the room.
But that brings up another issue, I don't want my family to have to adapt to my issues and not enjoy their shows, music, etc.......
I just wanted to give you a brief response to your question and will figure out how to DM you in the future.
Really do your family wish to adapt to life without you? that's the more important question. I would be mortified if my sister were to "not tell me her suffering", just so she couldn't miss a TV programme. Life is about priorities and enjoyment together.
My wife and I talked about my status today, it gives me so much comfort. She also feels better not putting me through the misery. You see I cannot stand cinema, one of her lifetime pleasures, but she would prefer me to the cinema because i "am the light in her life". Her words, not mine. It's about enjoying pleasures that we both like.Have you spoken to your doctor? Do you have samaritans in America? We all know your suffering, virtual hand-hold coming. But please, no stupidity. Do the calls now, don't put it off.
Good morning from The UK. I have had T for just under 2 years. It came on suddenly, no other symptoms but I was stressed with work. Mine is a high-pitched whine, scream which never goes away. Some days its quiet and others it SO loud. Some days it even like an orchestra - so odd! But it's a big but... you can choose to ignore it (it doesnt vanish) but you kind of just deal with it. If you focus on it (or sometimes even talk about it) it may well get loud again. TBH honest, it's a curse but it is one that you CAN cope with - just be strong my friend. I got SO depressed when I first got it - it felt like my world had been invaded - ALL I ever wanted was peace - I work hard and holidays were there at the end of the hard work, so I could relax and have that peace now, well, there is no such thing as peace and quiet. But as I said, you CAN cope! As someone else said, dont look for cures - there aren't any but that is not to say that there is no hope - there are many institutions working on various solutions. This page is invaluable.
TimSussex, thank you for reaching out. Like you said, your T came on suddenly , mine did too, suddenly a guy crashed into the rear end of my car and I have had Tin my ears ever since. But, I love music that involves orchestra instruments, so I would probably enjoy that but for me it's like I can't even tune in the channel to hear any music.
Thank you for your reply, I feel like I have come across the right group, since AA, NA and CA don't want me, AA said you don't drink like an alcoholic, NA said you don't do drugs and CA said they were there to help if I did cocaine.
Hi .welcome from florida.im in the uk and a T sufferer since June last year ..in my left ear only ..had mri to rule out nasties but all came back normal ..I find propranolol l really helps calm it down .I have totally blocked it out by not being so highly strung about it ,try real hard to relax and forget about it .it does help .are you on any meds ?
Yes, they did test on me also, X-rays, CT scan, MRI and they don't report anything for the ears in those test, but the PT doctors and the Neurologist conclude that I am due for several life changes from being rear ended.
The doc's have worked with me with various medicines and I have not found any that have results past one night, for example, a med that is suppose to help I will take it an maybe had a better nights rest that one time , but it hasn't worked again. But I will ask about your medication and see what they say to me.....
Perhaps this should end up in the General tinnitus box. Many moons ago I was offered an operation to null my eardrum, I was told (from memory) that it completely takes away the noise. I think you will never hear again from that ear, but no more T. I'm not sure if it is still done, but my concern was 1) vertigo following the op. 2) Pandora's box, opening it and finding you have jumped from the frying pan into the fire. (Got rid of T, but now have another problem because of this).
Has anyone gone down this road? I ask this because this may be the last resort option for Davidus who has a quite different T, 2 to 3 different sounds. This may be worth looking into further by a specialist.
Also, I'm sure the British tinnitus assn wouldn't mind sharing with America on this occasion.
Thank you for the info, I have printed out a few things to take to the specialist on Thursday and this is one of them! I surely appreciate the follow up on this site and through DM as I have actually seen more useful info on this site than the rest of the web. Spurdog1, you are greatly appreciated, please, if you haven't already check in on w6steria, I'm sure you will have some words of wisdom for her.
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but for me it's like I can't even tune in the channel to hear any music.
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