Tinnitus : Hi everyone, my name's Lyn... - British Tinnitus ...

British Tinnitus Association

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Tinnitus

Jolyn
Jolyn

Hi everyone, my name's Lyn and I've had tinnitus for 23 years. Normally it's quite manageable but during May last year it spiked and has been very bothersome ever since. It does quieten at times but then it comes back. I'd like to mention Julian Cowan Hill. He talks about tinnitus on YouTube. He has some wonderful and calming videos and talks a lot of sense. He helps you to habituate and how to deal with the spikes, he also has a wonderful calming voice. Please look him up if you haven't already. He may be able to help. Warm hugs.

27 Replies

Thank you, Jolyn. That’s very helpful

Jolyn
Jolyn in reply to Happyrosie

You're very welcome Rosie.

Thank you ❤️ ❤️ ❤️

Jolyn
Jolyn in reply to Blademink

You're very welcome, I hope you find it helpful. ❤️

Blademink
Blademink in reply to Jolyn

I hope so to thank you so much stay safe and well ❤️ ❤️ ❤️

Jolyn
Jolyn in reply to Blademink

You too. ❤️

Hello Jolyn ,Sorry your having an increase in your tinnitus , I am so pleased though that you’ve told us about this guy on U Tube. I will certainly be looking him up. I believe someone mentioned on here a while ago that he had written a book too. I do hope that your tinnitus calms down again soon . Mine is very bothersome , but I’m trying very hard to help myself . Good luck to you .

Jolyn
Jolyn in reply to rabbits65

Thank you for the reply rabbit ... yes, please listen to him, he's very helpful. He has written a book but I haven't read it, but I do find his videos a comfort to listen to. I hope you find him helpful. Let me know what you think of him. Lockdown isn't helping is it. I intend to get some reflexology sessions when we get back to normal. Julian mentions that calming the body has a calming effect on your tinnitus so anything that's relaxing has got to be good. Take care and I hope your tinnitus calms down soon.

rabbits65
rabbits65 in reply to Jolyn

Thankyou Jolyn , I’m so pleased to hear from you , it’s such a comfort supporting each other . My noise sounds like a roaring fire or a fan oven . If I rest and I’m calm (like you say calm) then it calms down a bit with me. However if I walk around and do jobs it’s awful , running taps , boiling kettles and also talking toPeople on the phone or any conversation indoors seems to

Amplify my sound . Only if I walk outside do I find some relief .

Jolyn
Jolyn in reply to rabbits65

Sounds the same as mine rabbit, it's noise and movement activated. Doesn't the kettle sound loud. 😱 At least as the body calms and the tinnitus calms, we get a good nights sleep. Sometimes when mine goes really quiet, I think to myself, right, don't move, don't speak, just enjoy the little bit of peace. lol Yes, being outside is our peace and quiet isn't it.

rabbits65
rabbits65 in reply to Jolyn

I’ve never had mine go quiet , mine started about 10Months ago, I’m convinced I damaged my ear with an ear bud . I paid for a private appointment with ENT because the wait was so long on the NHS. Had an mri scan , nothing revealed . Told my hearing is very good . I am 68 years old . Had no trouble before 10 months ago . I did lose my

Mother and brother in law suddenly that hadn’t helped. Also the Covid 19 means we can’t see our family and friends. I do have support from my sister down the road and I live by the sea which is very nice. Anyway what I just wanted to ask you is , do you think it possible that as I’m building up so much pressure and amplifying of sound that it could be Hyperacusis as well as tinnitus.

From. Penny.

Summer60
Summer60 in reply to Jolyn

Strange how reassuring it can feel when you read a post from someone who has some very similar symptoms to your own! Thank you for sharing 💕

I have Tinnitus and Hyperacusis and some sounds really make my Tinnitus go through the roof but like you (and unlike so many sufferers) it calms right down at night.

Jolyn
Jolyn in reply to Summer60

Hi there Summer, yes, it seems to calm down with your heart beat, not always but most of the time. Thank you for replying and I hope you’re having a good day. 😊

I went private too Penny, ENT first then Audiology. I'm so sorry about your Mum and brother, losing family members is difficult especially during covid. Thank goodness for your sister, bless her, we all need support from someone and living by the sea is a Godsend. You have all that natural sound to listen too. If you have amplified hearing it probably is Hyperacusis. Can you see and audiologist, they can test you for it and give you some advice. Even opening a packet of biscuits sounds loud and if I have to use aluminium foil it's really uncomfortable. Knives and forks and cutlery are uncomfortable when they clink together too. Mine comes and goes and the last few weeks I've been fine but I have a feeling the H will be up tomorrow as the T is in full swing tonight unfortunately. Staying in as much sound is best, but not too loud if it's uncomfortable. I was told not to use earplugs. Eventually the hearing tolerance level comes back but it takes quite a long time.

rabbits65
rabbits65 in reply to Jolyn

So it really is a challenging time for us , I guess it’s just keep going and hope for the best . Goodnight Jolyn and thanks so much . I am in Bexhill on sea , East Sussex. Penny

Jolyn
Jolyn in reply to rabbits65

It certainly is but it's good to keep in touch and watch our progress together. I've just turned 67 last week and I'm in South Wales. Lovely to talk with you this evening Penny Night night, chat soon. 🙂

rabbits65
rabbits65 in reply to Jolyn

Yes please let’s keep in touch . Goodnight from me, Penny

Thank you for the post x

Jolyn
Jolyn in reply to lynstone60

You’re most welcome. 😊

Hi Jolyn

Sorry to hear you too have tinnitus

Maybe this will help?

I had T since my early 30's - 71 now, after very noisy discos in the 70's!

Did fine with it, till 4 years ago, when it ramped up to a level that stopped me sleeping - so took Benzos

However, 6 months ago, looking at it in a different way, I had success by Redefining the T as NOT a NOISE or SOUND at all (which it isn't) but an ILLUSION/DELUSION that the brain has created, for whatever (unimportant) reason.

Worked for me and I haven't needed Benzos since then.

If interested, please see my longer Post from 10 months ago.

All the Best!

Alps

Sent from my iPad

Jolyn
Jolyn in reply to Alpsholiday

Many thanks for that info Alps, I’ll bear this in mind. 😊

Thank you very much Jolyn xx

Jolyn
Jolyn in reply to Lulu_Lollipop

You’re welcome Lulu. 😊

Reading this exchange is lowering my tinnitus level. Thanks!!

Jolyn
Jolyn in reply to getchegary

I’m very pleased to hear that. 😊

Hi there, thank you for sharing!! This is very helpful. I'm sorry you have lived with tinnitus for so long :( I've been getting acupuncture for it and it has helped amazingly,, apparently it is a huge circulation issue. Stress causes flares as well so this is wonderful for relaxing!

Jolyn
Jolyn in reply to springlullaby

Thank you so much, I was considering having acupuncture and your feedback is really positive. I also want to have some reflexology sessions. Calming the nervous system is a key factor in controlling this condition as tinnitus feeds of fear and stress. Lockdown is an issue at the moment. 🤷🏼‍♀️

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