New to tinnitus and need help!: Hi everyone... - Tinnitus UK

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New to tinnitus and need help!

Theodale profile image
32 Replies

Hi everyone, suddenly 5 weeks ago I developed a high frequency noise in my left ear. It's constant and it's really affecting my sleep. I've seen my GP who has referred me to ENT at the hospital but could offer nothing to help my sleep.

I've tried background noise to help at night but nothing seems to work!

Does anyone have any advice or coud share their experiences?

Thanks in advance,

D

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Theodale profile image
Theodale
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32 Replies
Chilledartist profile image
Chilledartist

I'll just say, watch Cowan Hill videos on youtube.....hey, you'll be ok

Theodale profile image
Theodale in reply to Chilledartist

Thank you, I'll give them a watch

Smurf3010 profile image
Smurf3010 in reply to Chilledartist

Thank you!! Just watched a few, very informative.

in reply to Chilledartist

Wow, thanks, watching Cowan Hill has given me great insight.

ROMEROS profile image
ROMEROS

That's the worst part!!! I tend to put the telly on low, on to something not to stimulating and watch it until I fall to sleep. I know it's not a cure but another form of distraction. Have you thought about sleep headphones? Where you can listen to an audiobook or meditation music. You can find them on Amazon

Theodale profile image
Theodale in reply to ROMEROS

Thank you for your advice, I'll give them a look, I'm happy to try anything at the moment!

bennevis21 profile image
bennevis21

Hi

Just keep the background noise going ,pillow speakers are good .I find if I lay bad ear on pillow it helps but it takes time ,so don’t worry if it doesn’t work straight away it took me about 2 months to sleep better just let time do it’s job.

Theodale profile image
Theodale in reply to bennevis21

Thank you Bennevis, as I'm learning, this is a marathon not a sprint!

Whine profile image
Whine

If you use a smart phone or any internet enabled device try Youtube (or similar) - there are lots of different dedicated Tinnitus sound tracks some of which may help. Contact the BTA helpline and your local Tinnitus Support Group, if there is one in your area.

Theodale profile image
Theodale in reply to Whine

Many thanks for your advice

I find thunder storm on youtube keep it on helps me sleep

And it does get easier I know it's easy to say but everyone on here has been were you are now

Sending hug and high five

Theodale profile image
Theodale in reply to

Thank you for your support, I'm feeling encouraged!

Freddy17 profile image
Freddy17

You need to go see your doctor and ask him to give you something to sleep.

Clipper191 profile image
Clipper191

Try using a fan at night as it helps drowning it out slightly also if you drink tea try getting decaffeinated tea bags i found it helps plus use ear phones with soft music as it is comforting hope this helps

hollyhock0 profile image
hollyhock0

My audiologist put me on to an app called White Noise (free), it has a range of sounds which might help at night.

Theodale profile image
Theodale in reply to hollyhock0

Thank you hollyhock0

Joeb17 profile image
Joeb17

Hi sorry to hear your having trouble sleeping try having a hot bath or shower before you go to bed try sleepytime extra infusion you can get them from amazon they have worked for me not all the time as when my T is bad I just don’t sleep and gp won’t give me anything as one of my meds I take at night is to help me sleep.it has been now six nights with out any sleep and is making me feel ill I think it was the music New Year’s Eve that spiked my T yesterday evening my T levels we’re going down and the the fire alarms here went off only 3 times lasting seconds but that was enough it’s like my T has copied the sound even now I can here the alarm going off in my head.do try the sleepytime extra some body on this forum posted about them and I have been using them for over a year now and most of the time I do get to sleep good luck.

Theodale profile image
Theodale in reply to Joeb17

Thank you for your advice and I hope you get some rest soon

Tinnitus could be due to nerve damage happened as a result of infection . If you take any medicine for reversing nerve damage there could be relief . Chinese herb '' Gingkobiloba '' helps in getting relief from nerve damage .Find a chinese doctor who would help in this matter .

Theodale profile image
Theodale in reply to

Thank you for your tip, I'll look into it

I used it and in course of time found much relief . Previously I used to hear noise like a borewell digging day and night . I could not sleep at all . Even during day time that hellish noise used to drive me mad . Then a friend told me about Gingkobiloba which I got in homeopathic preparation and used it . I can't say it is fully gone but the density of noise menace reduced . Now I HAVE VERY MINUTE LEVEL OF DISTURBANCE .I have not used any other medicines .We can not say everything works for all . But it is very safe and with out any side effects . Use for a couple of months and see the change .

in reply to

Wow, I'm also a newbie to tinnitus, after reading your post I'm going to give the Ginko a go. Thanks.

in reply to

Gingkobiloba , it seems to work for nerve damage and related problems .Even in peripheral nerve damage it is said to give great relief . But you have to take the advice of your doctor if you are taking any medicines given by him as some times the herbs could give contra results . If you have not yet consulted any doctor and not yet prescribed any medicine you can take Gingkobiloba very very safely .

in reply to

Thanks, I am waiting for a hospital appointment and on blood pressure tablets so will check in with them, though I've looked on the internet and can't find any contraindications.

in reply to

Blood pressure tablets are not good as they give other complications . If one takes Statins for one year it could create diabetes .

in reply to

I know but there is no choice as it's hereditary and was close to having a stroke/heart attack. I've read that ramipril and indapamide (I'm on both!) can give you tinnitus. I'm waiting to see doctor and audiologist. Slow progress....

in reply to

It is a created misconception that it is a hereditary disease . It is not hereditary .

in reply to

What would it be then? I am not overweight, and I exercise, and eat healthily?

in reply to

When you do not have excess weight , exercise regularly eat moderately , the only problem could be strain and stress . GO to a good yoga teacher and learn Anuloma Viloma pranayama . This is also known as Nadishuddhi pranayama . That pranayama gives good physical and mental health , memory power , peace and tranquility . It is proved beyond any doubt . Any medication has side effects and statins are not at all advisable .

Hi theodale

Sorry to hear you're having T problems, including lack of sleep

The T I have had for the last 40 years, has finally gone.

I did this simply by re-configuring my definition of T.

If interested, please see my latest Post

Good luck

Alps.

Bellyboo profile image
Bellyboo

Hi. I normally have a very large scotch though I’ve stopped for the past 10 days. The scotch does it for me. I also have sleeping pills for emergencies. If I’ve done a very hard job then my T overwhelmes me starting with the journey home. I don’t notice it much at work as I work too hard with my concentration on the job (roofer) I’ve had it 40 yrs and some days it worries me greatly so I hang on in there and like today I’m calm with it and contented. This is now who I am and I accept it….stay humble as possible. My wife and I had cancer and that put things into perspective. I noticed mine really peak 18+ yrs ago taking Larrium for malarial prevention…it definitely spiked also with flue jabs. Hope this helps

surreycccfan profile image
surreycccfan

Hi, here are some sleep tips I have posted before, I found them really useful in trying to get back into a sleep routine:

I can totally empathise as I just couldn't sleep for months when I first had T. I can now say I can sleep well and in fact I am managing my T so well I am back to sleeping with ear plugs so the only sound I can hear is my T (I am at point in my management journey that my T no longer invokes a flight/flight emotional reaction, I habituate and can live well with my T).

g

• I used a sound generator app (I used ReSound Relief but plenty of others out there). I mixed sounds that (1) I found pleasant and (2) mapped well to my T. Audiologists tell us to map the volume of the sound to just below the volume of your T. As time went on and I felt more 'positive' towards my T I slowly reduced volume until I no longer needed the sound generator

• I tried to use positive reinforcement in relation to the sound from the generator app. The sound I had chosen was beach, waves, and rain, when I would go to sleep, I would listen to the sound and think of lovely holidays I have had walking on the beach. As T creates such a negative emotional reaction, these types of thoughts allowed me to calm down and think about something other than my T

• When I was lying in bed if I felt stressed and my mind was focused on my T I would follow a mindfulness body scan. I found this very calming and did take my mind off my T

• I used BTA support groups to help me learn more about T and techniques to move towards living well with T. As I learnt more and managed to reduce the negative emotional reaction to my T I would even say 'hello' to my T when I first settled down to sleep. The reason I did this is I found when I was stressed by my T it was always at the forefront of my mind so I found that if I said hello to it then (1) I had acknowledged it and my mind could move on to something else (2) by saying hello I was reducing my fight/flight reaction to it and this helped me to 'normalise' it for me.

• I tried to follow a good sleep hygiene pattern (maintain a regular sleep routine, avoid daytime naps, don't watch TV or use the computer in bed, no caffeine after 18:00 and as I am a clock watcher I put the alarm clock out of sight so I wasn’t constantly looking at it.

• Exercise was also important as this allowed me to be physically tired

It took me quite a while to get into a better sleep pattern but as I said I can now sleep with my new sound of silence. The BTA has some excellent resources on sleep tinnitus.org.uk/tinnitus-an... and has good links to products such as sound pillows, headbands, etc. In the above link the vicious cycle graphic really highlights how the fight/flight reaction to our T inhibits our sleep. I found by practicing other distraction and behavioural techniques in the day I slowly shifted how I thought about my T (I saw it as less of a threat which took its power away) and in combination with the things I did at night I slowly got back to normal sleep patterns.

I hope the above may help in some small way. Take care

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