Newbie

[jc4hh]

I’ve suffered since 1996. Much worse now. On scale 1-10 definitely a 10. I’m 73, female and fed up with it. My head is so noisy, humming, static, vibration, the list goes on. Can’t wear earring aids as they make it worse. I just need some peace and quiet. Music is distorted, can’t think straight. Wearing headphones to listen to stories is as bad as hearing aids. It’s a great life............NOT!

[ShakeelaBTA]

Hello and welcome to the British Tinnitus Association forum.

Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk (information and support details)

takeontinnitus.co.uk (free tinnitus management programme)

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call [phone])

Kind regards

Shakeela

[Lindsay6]

I really feel for , and with you , apologise that i can offer only empathy and my best wishes . I too have what sounds like static - a cross between sizzling bacon in a frying pan ( hard for a vegetarian !) and ECT being passed from ear to ear , as i imagine it would sound . I understand about distortion and difficulty hearing / listening , and hearing aids. I wish I could make it better for you , but can only send an emphatic hug .

[jc4hh in reply to Lindsay6]

Thank you, it’s good to know I’m not alone! My tinnitus seems to be in the center of my head migrating out into my ears. Most disconcerting. I used to get brief quiet times but not for several years now. Makes me feel like ending it all but then think of the effect it would have on my daughters! I guess we all have feelings like that.

We all live in hopes they find a cure on day. Take care

[Sally07]

I definitely feel for you. I'm 21, and mine came on suddenly last year, from silence to so many different noises, a hiss and two different high pitched tones and sometimes a sound like electric 'bursts.' One thing that makes me feel better is reading about research and clinical trials that are going on. I'll try and send a link to a webpage I use a lot. It's good to know that the condition is being taken seriously and maybe soon when people go to the doctor they won't get told there's 'nothing we can do' but instead they'll get made aware of treatment options or medications.

Anyway, all the best. Sending good wishes!

[Sally07 in reply to Sally07]

tinnitustreatmentreport.com/ - I can't remember where I found it but it helps me a lot!

[1Dar in reply to Sally07]

Thanks Sally I will look into that website... one day someone will come up with something, keep strong, happy and positive .. I would hate to have had it at your age. That’s cruel ❤️

[jc4hh in reply to Sally07]

Good luck, so young to be a T sufferer!

[jmallordturner51]

Your predicament sounds familiar. I too have long suffered from T (52 years) habituated to it then for the past 7 months it has ramped up severely and now with hyperacusis. Makes for a pretty miserable existence. I feel for you. My tinnitus is also reactive and must I be very judicious when wearing my hearing aids as to not over amplify. Everyday is a struggle. The best thing I can do is go outside when it is quiet, turn up my aids and listen to the background noise blend in with my own sounds. It helps bring my stress down a bit.

[jc4hh in reply to jmallordturner51]

You sound very familiar with your observations, I wouldn’t wish our condition on my worst enemy! I can imagine years ago people being put in lunatic asylums for talking about the noises in their heads. It drives me mad!

[jmallordturner51 in reply to jc4hh]

I feel for anyone with this never ending affliction. Distraction from it is the only thing is keeping me sane.

[Flickie]

I've also suffered with it for 25 years, and now live alone with my four legged furry friend...she is a pal in times of need. So sorry to hear its so loud. Mine gets very loud at stressful times, try slow yoga or Yin yoga I do both and started it recently, it helps. I also have my radio on all day, fortunately I can sleep at nights. Good luck...

[jmallordturner51 in reply to Flickie]

Do whatever works! I can see a cat would be a nice distraction! I go out early in the morning to listen to the birds and natural background sounds it seems to help! Good luck to you all; only we sufferers know what this intrusion is like.