Can’t sleep: I’ve had tinnitus for... - British Tinnitus ...

British Tinnitus Association
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Can’t sleep

I’ve had tinnitus for three years. Can’t sleep at the moment and the sounds I have have no longer been maskable or attenuated for ten days. I have 2 kids and a job, I’m at my wits end with nowhere to turn to. I’ve come off another forum as the negativity made me worse but other than forums what do we have?

I’ve called the GP, is Valium the way to go?

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I have had tinitus 14 years had numerous hearing aids got different two months ago they have made a big difference see your audiologist

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Hi I don’t have any hearing loss...been prescribed a sedate to sleep. Would you take it? Will it make my ears worse?

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in desperation when no sleep was driving me to self harm I got a short prescription for sleeping tablets cant stay on them as habit forming but to sleep all night was heaven] , am also terrified to read there is nothing that can be done for the noise in the ear[damaged 4 years ago gradually got more blocked more painful but tinnitus only started this year ] specialist says nothing wrong with the ear, am sure stress makes it worse

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I'm also nearly 3yrs in and have also run out of places to turn for help. The doctors say I'm looking for answers where there aren't any and the NHS tinnitus guy says by continuing to seek help, I'm preventing habituation.

All the noise about reaching out for help seems pretty hollow. We're on our own.

My doctor, very reluctantly, gave me a prescription for Diazepam / Valium. As far as I understand it, this won't do anything for our tinnitus, but it'll knock you out and make you care a bit less about the T for a brief period. You can't take them long term however, as they're habit-forming.

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Thanks for your reply - we have to dig deep and try every masking sound out there...I know it’s a lonely struggle and the “you don’t have to suffer line” has no meaning. Neuromod is coming out soon, it may help us.

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what is this? neuromod

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Hello and welcome to the British Tinnitus Association forum.

Do feel free to ask any questions, I hope that you find this a helpful and supportive place to help you manage your tinnitus.

We have some resources that you might like to check out in addition to our home here:

tinnitus.org.uk (information and support details)

takeontinnitus.co.uk (free tinnitus management programme)

Helpline 0800 018 0527 (Monday-Friday 9am-5pm) (outside the UK you can call +44 (0)114 250 9922)

Kind regards

Shakeela

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Hi there I had mine for over 5 years it can be hard to cope but I hang in thare I know how you feeling as sleeping at night can be very hard if you need to talk anytime I will reply

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Although I've only had Tinnitus for the last two months, I have been strongly affected. My GP says I havedepression and anxiety, and gave me a prescription. It is the lack of sleep that's upsetting me the most, so last night I I took one and slept well for the first time in two months! So I would say take the valium, or whatever you have been prescribed. However, please do so under the supervision of your GP as long term use of sedative hypnotics can lead to addiction and rebound insomnia when you stop. You could also, in the first instance, try natural sleep aids such as magnesium, melatonin, valerian etc to see if those give you some sleep. They worked a little for me. A good night's sleep will give you relief and will also damp down the tinnitus.

Good luck!

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I’m sorry to hear about how your T has got worse this is a great forum there will be posts that are negative but there will be positive posts.the other week I was going through a really bad time I thought I had let my T and agrohobia win and did not want to tell my family and the people that are helping me as I thought I’d let then down posted on the forum how I felt the response I received made me feel a lot better they told me to tell how I felt to my family and others I did and they are helping me through this.

The people hear have respect for other people on the forum and if they can help they will.we need to get people to understand what T is and how it affects us I had a t shirt made from vista print that says tinnitus you don’t get it until you’re got it so come the warmer days I will be wearing it to get the word out there I wore mine the other day to a hospital appointment and I had 5 people speak to me about it 2 wanted to know what tinnitus was and both said they would look it up so spread the word get a t shirt.

All the best

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Hi, if you have associated depression or maybe even just low mood then there are some mildly sedative anti-depressants that may help with sleep. I’ve taken Mirtazipine for many years now and they do help with sleep for me. Lack of sleep is the worst form of torture and very debilitating. I also have zolpidem sleeping pills but I honestly can’t remember the last time I had to use these, must be over 12 months. Everyone is different of course. I’ve had T for 8 years now and I’m really struggling but trying to get along. Best wishes to you, keep on at your GP.

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Hi, i e just found this video, works well for me, hope it helps u. Hxx

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I’m so sorry.. I have had a few bad night as well and I understand how forums can make you worst but this one has helped me so much , some people have it worse than others and are dealing with it differently but as for me I will try something until it works but as of now I’m experiencing the same situation you are. My biggest trigger is stress so I’m going to find a way to handle it , it’s hard because it makes you feel hopeless and it drains you, my doctor gave me Valium 2 mg it’s helps me in the morning but it’s a low dose so I can still function . I hope you feel better soon

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Been given the same and might take it. Has it had an effect on your t? Has it lowered it at all and how many days have u been taking it for? Are you new to t? X

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I have had T since 2010 and it started after a head surgery, when I woke up I heard high pitch whistles so my ENT gave me valium 2 mg very low dose and it helps with the stress , I still hear all kinds of sounds and they never go away, I have learned to adapt to it but night time is the worst! Many sleepless nights . My trigger is stress so I do my best to try and stay calm but just recently I found out that my moms cancer came back so I’m trying to deal with that . I’m sorry you have T too I sure hate it and pray for a cure

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Oh dear, mine has ramped up, never remember it so loud as its now, especially in the evenings...sorry to hear about your mum. Are u based in the US, do you work?

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