Every thing is at a standstill as T get louder and louder

[jbradford42]

Well what now, every door is locked all alleyways blocked nowhere to turn. BTA posters your not alone so if this is true then maybe you could explain who I turn now. No one even cares no one even knows what I have to put up with every day I honestly believe that my T is or must be one of the worst. Because at times in fact nearly all the time it’s at screaming point I cannot even think straight. So I keep thinking who out there cares I don’t mean you lot I mean professional because if I put an appointment on with the doctor he just hasn’t got a clue and the hospital is exactly the same. I try to stay positive but it’s really hard when you’re alone with no one to turn to how you lot cope is beyond me but like me you obviously do. It’s 2019 surely someone somewhere must have some answers. Well that’s me at the minute going through hell with nowhere to to turn.

[Judyspal]

I know exactly what you are going through,with the exception that my GP understands,

I've just been to the Audiologist (who stated that he had T) hoping to get a masking aid,only to be told that I need a degree of deafness as well as T to get one,whilst I do have some hearing loss ,it's still within tolerance,so now waiting for an appointment to see a councillor for CBT,like you ,I try to keep positive but it's hard with loud buzzing in your head.

Just got to keep your chin up and think one day I won't be hearing this,it's nearly a year for me,but still feel like I'm chasing my tail at times.

I've just shown my hubby what you put and said that's me !!

[jbradford42 in reply to Judyspal]

Yep true chin up not really much more we can do but hope. But without hope only god knows. best wishes

[Ingrid-p]

I know exactly how you feel. Mine is so loud at the moment. Sick and tired of the only options being masking, keep busy, relax (how), hearing aids, antidepressants. Doctors, specialists, ENT are at a loss as to how to help us.

We need positive research. I’ve read loads of things about drug trials, devices that can desensitise the t, but when are they going to be available? Seems to me that we’re the “silent sufferers” that have just been forgotten.

The BTA can’t really do much either. They’ve got a help line, but I’m done talking I want to see positive help. Awareness week did very little either. I only saw a random post on my FB newsfeed. Nothing in the media at all.

Rant over.

[jbradford42 in reply to Ingrid-p]

Definitely more help needed, it’s just sad that there’s no one to turn to. Especially in this day and age you’d think someone somewhere would have some sort of advice. Well it back to hope I’m afraid. Best wishes.

[Freddy17]

I feel your pain you're not the only I'm going through the same thing. My hearing aid and masking don't help at all I just take one day at a time I don't think they're never going to find a cure. I hope I'm wrong and they fine something to help all of us.

[jbradford42 in reply to Freddy17]

Your probably right but without hope we have nothing. I’m not really religious but all we can do is pray. Cheers & good luck.

[Freddy17 in reply to jbradford42]

Good luck and take care I always pray for everybody with t it's the only hope that we have.

[NoisyWorld]

I understand your pain. It's a terrible thing to endure especially when there isn't anyplace or anyone to turn to. I've had this affliction since the beginning of 2019. My wife has had it for 2.5 years and she has successfully managed it to resume her life. I pray to God alot and that helps me in times of abject hopelessness. T affects everyone differently but I've run across a couple of things that have helped me. Taurine, zinc and B1. B1 has lowered the noise to a manageable level which is all I've asked. There is so much pain out there that I feel guilty asking God for his personal help but T is an agonizing condition. I hope you feel better and understand this T can't win if you don't let it. William Shatner has a great interview out there and ultimately habitation is the only way to live with T. Funny I don't even want to say the full T word out loud. Good luck my friend.

[doglover1973 in reply to NoisyWorld]

There's no need to feel guilty for asking God to help you .. God loves to help us . All of us 🙂

[jbradford42]

Thank you very much for your kind words and advice.