new here had t for 3 months: hi all, had t for... - Tinnitus UK

Tinnitus UK

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new here had t for 3 months

simb999 profile image
19 Replies

hi all, had t for 3 months now, initially panic stricken and depressed then slowly began to just about begin to cope. the last couple of weeks though it has begun to increase in volume and then today it has gone very loud , im at a loss as to why this is happening. have been referred t tinnitus clinic and for hearing aid to be fitted but the appointments take an age to come through and im getting a bit desperate now,any tips and advice would be mch appreciated. ive found this forum to be really helpful , many thanks

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simb999 profile image
simb999
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19 Replies
Woodentop99 profile image
Woodentop99

Hi there, it’s Woodentop here, sorry to hear that your T has increased, I spoke with my audiologist about you hope you don’t mind, he said once he has referrals for T he has no problem in seeing someone very quickly it’s the ent dept that appears to hold things up, if referal already in phone stepping him and ask to be put through to ent dept to see where you are on list don’t suffer like this as I previously mentioned audiology will sort you not cure but you will be impressed . Obviously it’s the getting there that’s the problem,,fingers x for you.

simb999 profile image
simb999 in reply to Woodentop99

Hi woodentop, hope you're keeping well, thank you its much appreciated, I don't mind at all, I'll give stepping hill a ring. Its calmed down again today but it really shook me up how loud it went, its so unpredictable. Hope you're managing well at the moment, cheers.

simb999 profile image
simb999 in reply to simb999

Quick update, I rang audiology to see if they could tell me where I was on the list and they hadn't had referrals through, advised to contact ent, rang ent and spoke to the Secretary who said she had posted referrals on the 15 Jan to audiology, 2 1/2 weeks wasted unfortunately but she said she would email them through straight away and to ring audiology on Monday so hopefully things will be moving now, thanks for prompting me to ring otherwise I'd still be waiting for the letters to arrive!

simb999 profile image
simb999 in reply to Woodentop99

Hi woodentop, hope you're keeping well, I've got an appointment with Martin at tinnitus clinic at stepping hill on 19th February, thanks for the prompt to chase it up as I don't think it would have happened as quick if I hadnt. Take care.

Woodentop99 profile image
Woodentop99 in reply to simb999

Brilliant news, I am there on 18th feb,I could change it and we could meet and go for a coffee if you want? Or maybe at another time, as there is no T group in Stockport I mentioned to him that I would facilitate if enough interest, he replied that there is a room there that we could use??? , though my son gets hitched in June and I couldn’t do anything before then.

simb999 profile image
simb999 in reply to Woodentop99

That's a great idea, would be good to have a chat. I was thinking the other day it's a pity there isn't a support group in stockport's, the nearest one seems to be in Manchester, maybe it's something we can look into starting? Let me know if you change appointment otherwise we can meet up another time cheers. My names simeon and I live in bredbury. Cheers

Woodentop99 profile image
Woodentop99 in reply to simb999

I will try to change my appointment to run near yours, I am presuming you will get a “ masker” this will be new to you and your ear, do you want to meet up when you have finished with Martin or would you prefer to be alone so to speak with your new “ friend” I can do whatever you prefer, no problem. What time is your appointment?

simb999 profile image
simb999 in reply to Woodentop99

My appointments 2.45 but got to shoot off straight after so could meet before or arrange another time, whichever suits you best.

Woodentop99 profile image
Woodentop99 in reply to simb999

Afternoon,I can happily meet you at say,2pm, at maternity cafe,or I can leave you a note with Martin to give you with my name and phone number on,,it’s your shout,thinking about it you will be seeing Martin and getting something foreign to you to go in your ear,it may be that’s enough for you? However if you want to meet me before you see Martin that’s fine by me,just be aware if you drive,car parking is a nightmare so whichever you do allow plenty of time to park.I look forward to meeting you especially to hear your story and how it affected you,mine,wow,I have been to “ the place” no one ever wants to go but with a lot of support and patience from different people I feel,well,not 100%; but not far away,which ,no way would I have believed only a few weeks ago,,,cheers for now.

simb999 profile image
simb999 in reply to Woodentop99

Hi that sounds good, meet up at maternity cafe, I know the one ( got 3 kids) at 2pm, look forward to having a chat, take care

Woodentop99 profile image
Woodentop99 in reply to simb999

Ok fine, I will wear my man city scarf so you will recognize me, also look for my left hand, if there is one, it ain’t me!!! As don’t have one, don’t panic, I don’t have a chip on my shoulder,I will buy the coffees, see you at 2pm.

simb999 profile image
simb999 in reply to Woodentop99

Thank God you're a blue ! Great stuff I'll see you there. C'mon city !!

Woodentop99 profile image
Woodentop99 in reply to simb999

Yep, sat here about to watch it on my “box”,,??????

rohit71gera profile image
rohit71gera

what is the reason of your T ?treatment of underlying condition can cure this condition.

simb999 profile image
simb999 in reply to rohit71gera

Hi, it was noise trauma, hoping a hearing aid and masker will help. Take care.

rohit71gera profile image
rohit71gera in reply to simb999

Yes. Likely will get cured by Hearing Aid itself and never bother you. Its generally a loss of frequency that causes it and Hearing aid will get you the ability to hear that frequency. Good bye T for ever. No Masker may be required.

simb999 profile image
simb999 in reply to rohit71gera

Thank you for the positive reply its much appreciated, fingers crossed. Take care.

rohit71gera profile image
rohit71gera in reply to simb999

Have you been given Steroids ? The Noise induced Tinnitus can be reversed also by use of Steroids and revising your hearing . An ENT specialist can decide whether Steroids can restore your hearing. Generally noise induced hearing loss is temporary. Good Luck.

simb999 profile image
simb999 in reply to rohit71gera

Thank you its much appreciated

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