Question for Nic re Neuromod: Just wondering if... - Tinnitus UK

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Question for Nic re Neuromod

Ingrid-p profile image
17 Replies

Just wondering if there is any positive results for the Neuromod device?

A few comments have been made on here, but I haven’t seen any replies from you relating to this device.

Just interested in what the BTA think about Neuromod.

Thank you

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Ingrid-p profile image
Ingrid-p
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17 Replies
1Dar profile image
1Dar

Hi , I wrote to the BTA, they said some people had benefited from the device, but the quality of the evidence was poor. Not sure if anyone else has heard anything. For those people who have a Cochlear , there is no device as yet. So, not sure what to think? I’m sure our Audio s will be the first people to tell us when there is a brrakthrough. Keep positive! Xxxx

HissingSid profile image
HissingSid in reply to 1Dar

I get on well with my Audiologists in local hospital but I’m not sure that they have their finger on the pulse of methods that may improve our lives due to T. I’ve had no recommendations so far and I only got the hearing aids fitted with masking sounds after I contacted them after a number of years of having only one basic hearing aid. I get the impression that if I get word of a miracle cure on here then I’ll have to contact my Audiology Department and not hang around waiting on them contacting me!

Ingrid-p profile image
Ingrid-p in reply to HissingSid

I agree my audiologist and hearing therapist hadn’t heard of Neuromod, but they did say there’s lots of drug trials being done at the moment. Fingers crossed 🤞🏻🤞🏻🤞🏻

HissingSid profile image
HissingSid in reply to Ingrid-p

Yes I’ve heard of a few on here and made enquires with the Audiology Department for whole of Fife Region. The response from the Senior Audiologist only referred to fact that the medications were still under research and trials and are not available locally, although they were being sold openly online in USA.

Ingrid-p profile image
Ingrid-p in reply to HissingSid

I’d be interested to know what products are being sold online. Surely if they work they’d be available here?

Michael8272 profile image
Michael8272 in reply to Ingrid-p

Hi,there made in Ireland and my tinnitus counseller said to me yesterday that they don't get released until middle of this year,she was at a conference before Christmas and they were shown the device.she said it won't work for everyone but it has helped alot of people, when they did the trials.so maybe worth ago,she did say it could be expensive.

1Dar profile image
1Dar in reply to Ingrid-p

Gosh if they were any good, I would fly to America, can you give me any info too, but I’m very cautious!

HissingSid profile image
HissingSid in reply to Ingrid-p

Hi Buddie123 the medication I referred to earlier available in USA and online (on Amazon and EBay) apparently is Lipo-Flavonoid Plus, There is a day and night version of these and on Amazon you can sign up to a 60 day trial on these capsules. A member of the forum here has begun the trial period so I’m waiting on news of success or otherwise of these before I dip my toe in the water to try them myself. If you google the product name you will see reviews for and against the use of these capsules so they are like any other “cure” seen on here in that what works for some does not work for others. It’s a simple case of paying your money and taking your chances with them. Lipo-Flavonoid Plus was the medication I enquired about to my area Audiologist Department and got reply of no recommendations as they were still under research and trial. Yet they are freely available in USA and online.

1Dar profile image
1Dar in reply to HissingSid

Hi ... just read your email, will have a look at these tablets. Thanks for the info. Jenny 😊

HissingSid profile image
HissingSid in reply to 1Dar

Just remember that I’m not recommending these capsules and not are my area Audiology Department. So it’s pot luck 1Dar (Jenny) of their success.

1Dar profile image
1Dar in reply to HissingSid

No ... totally understand, would never take anything that I didn’t run past my GP. So no need to worry. Thank you . 😊😊

1Dar profile image
1Dar in reply to Ingrid-p

I heard again from the BTA and they said to be wary of expensive devices that haven’t really been proved to be successful . I live in Australia and have a Cochlear Implant , so I’m well and truly out of the running. I wish you are well though and if it is good, that would be fantastic for you. 😊😊😊😊

Ruud1boy profile image
Ruud1boy

Neuromod are currently preparing a report on their recent trial of this device and are being a bit coy about releasing too many details ahead of this. It does seem very promising though. If anyone fancies a bit of internetting, look up 'Uni of Michigan tinnitus' and 'Uni of Minnesota tinnitus' - they're both working on similar devices with a view to commercial availability.

Ingrid-p profile image
Ingrid-p in reply to Ruud1boy

Thank you I’ll have a look.

There’s got to be an answer out there somewhere. So many people have got this now. I belong to a tinnitus FB group and every day more and more people are joining. It’s getting to be like an epidemic! Young and old, really makes me wonder what’s causing it.

There’s got to be money to be made out of finding a cure or at least something to lessen the noise. Fingers crossed there’s good news soon 😁

NicBTA profile image
NicBTAPartner

I'm hoping to feature an article on Neuromod and the trial results in a future issue of Quiet. At the moment, I don't have details, but I have been told they are promising. I don't have anything on cost, either.

As always, the devil is in the detail, and you can be sure before we say anything, we will have scrutinised the research closely!

Warmest wishes

Nic (BTA Communications Manager and Forum Administrator)

Ingrid-p profile image
Ingrid-p in reply to NicBTA

Hi Nic

Thank you for replying.

My t is off the scale at the moment and this has given me a glimmer of hope. I don't subscribe to quiet magazine so will you post something on here?

Thank you, Ingrid

Suziwong profile image
Suziwong in reply to NicBTA

Thank you I too need a glimmer of hope,

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