grilling set it off

[drumcraw]

hi everyone not been on for abit had some other health issues but better now but T still raging away psycholgists visits are not much good at all really we sit and talk and she tells me i do have some comtrol overT i am able to distract my brain easier when it gpoes quiet but thats not controlling it, the other night my T had been fairly quiet and there were some thiings being cooked in grill pan WOWWWWWWW the high pitch sizzle from the pan set of my T even louder!!!!!! thats never happened before and thehn strangely about 2 hours later and after a beer and 2 small whiskies i got a phone call and i noticed after it my T had reduced again ????????????????????????????? some mystery! today itsREALLY LOUD always when i awake. why do they keep saying " your pre-empting it?????????????? as soon as i open my eyes .eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee its there also they say im monitoring it. i dont need to as Its SO BLOODY LOUD.i wish somewone could even find away to measure the volume of it. happy xmas stay cool craw.

[Angela-H]

Hi Craw, well at least your other health problems have eased. At our ages there’s always something isn’t there?!

Tinnitus is a mystery to me too. Odd that a grilling set it off - I thought I had misread and thought it was “drilling” which would be understandable!

My T is louder when I wake up and gradually quietens after my hearing aid goes in and I get busy.

Driving on motorways sets it off but I know that it will settle after a while.

So, a good night’s sleep and keeping busy work for me. I got fed up of listening to counsellors, who didn’t have and couldn’t understand T, advising me as to what I should do. But, we all have our own ways so I hope you find quieter times soon, which you know will happen.

Have a fab Christmas in your beautiful and friendly part of our country. I am hoping to be there in the spring of next year.

Love

Angela xx

[drumcraw in reply to Angela-H]

thanks angela, yes the grill pan sizzlong away thats really strange as evem when i stipp play the feedback form mic never seys it off i cant sleep woithout pills which is really a pain, ive never felt tired for over 5 years now since it started on the 13th march 2013 . but your right we all try and deal woth it as the specialists arent very special and no-one understands unless they have it!" take care and merry xmas and"orra best" for the new year as we say up here. cheers. craw.

[Xene]

Yay Craw, nice to see you're still fighting the good fight, well not nice but you know what I mean! It makes me laugh what these so called experts come out with! It kinda tells me they have no comprehension of T at all! As soon as I wake up it's there screaming away until I go to bed! I don't have to look for it, search for it, think about it! So as for pre-empting it and monitoring it, I just don't believe it! At least I don't get spikes but I just wish it would shut up once in a while or at least subside a little. Still, we're best mates and do absolutely everything together BFF lol. Have a great Xmas. Xene

[andyb_1969 in reply to Xene]

I like your statement that you don't have to search for it, I wonder if some people who suffer with T have to search for it, I can't remember if I did in the beginning but after 20 years I certainly never search for it anymore.

[drumcraw in reply to andyb_1969]

thanks andy. ive never searched for it sadly ITS ALWAYS FOUND ME FIRST!!!!!!!!!!

[Xene in reply to andyb_1969]

Yay andyb_1969, after a couple of years on here it always makes me wonder why anyone in their right mind would want to search/look for something that is so loud and so awful! I guess we're all different and 'ours is not to reason why' All I know is the day I wake up without it I'll be cracking open the champagne but after 30 years I'm not holding my breath lol. Wishing you a merry Xmas and happy new year. Xene

[drumcraw in reply to Xene]

hi xene, thanks your so rght and i always get asked at the end of a session tofill in a sheet with questiond like " how do you feel after seeing Dr. No, slightly improved, no improvement, greatly improved, i always say no improve,ment so the next thing will be they discharge me. happened before on therye say so and was docs fault i had to argue with them to get reinstated!!!!!!!!!!!!!!! anyway these meetings are abit of a waste of time really think i will stop them so have anice xmas and "ORRA BEST" for 2019 stay cool .craw

[dsh2358]

Thanks for your post! My T is the same if it’s low and I fall into a nap as soon as I awake it’s is so damm loud it’s unbelievable. Shots of whiskey does help me too lol 😂 idk why but it does silence it for a while. Merry Xmas to you too!

Good luck

DSH

[Jimmuck]

Hi Craw,

These so called professionals really take the biscuit. Most of them don't have tinnitus themselves but they dole out all this guff about "premepting it" and " listening for it".

The last time I visited the audiologist, she said I was listening for it and to try and avoid doing that. How the hell can I NOT listen for it or to it or avoid it, when it is right in my head going like a steam train 24/7. If any of them actually had severe tinnitus themselves, I wonder if they would take their own advice!

[drumcraw]

hi jim, your absoultely 100% bang on!!!!!!!!!!! to me the specialists arent very special!!!!!!!!!!!!!! and they all seem to think that all of us are lostening out for something tht any normal person would ignore and its down to our mental state that were" listening for it" its about time these"specialists" got theyre act together and really investigated how to handle it without cracking up!!!! as i know ive been very close to it and turned to my friend william grant for some solace he has other pals that helped like john walker, and i went some birdwatching to look for the famous grouse and found it, which sometimes does help abit! the specialists really arent very special! hang in there mate and stay cool and TRY and have a merry xmas and orra best for the new year! maybe this will be the one they make some kind of steps towards help for T. cheers craw.