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British Tinnitus Association
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Do they really want to find a cure?

They big drug companies spend billions looking for the next drug that will cure some type of cancer. This is very good and will no doubt save lives. The reward for them is that they will make billions for the shareholders and the investors. My friend manages world wide investments for new drugs and he lives in a 2 million pound house.

The point I am making is that I don't feel that there is the same drive to invest in T cures. There will not be the same return for a T cure. It is not life threatening nor does it effect a great number of people. I fear that it will always be treated as the poor relation.

What do you think?

Ade

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Actually, there are millions of people with T and the number is sharply rising.

the smoking gun is in the hands of the military. My reading lead me to a neurologist who was supposedly on the verge of a big breakthrough in 2010. When I asked to be seen by him, he referred me to an underling ENT. I got the usual nice bedside manner in the beginning and the the sudden brush off.

The research program was terminated this month and in the same period Dr Chueng received an enormous grant from the us military to research T. I was told by staff, that intent is not to find a cure.

Why would the military spend hundreds of millions on researching this if they don’t even take care of disabled veterans?

Check out geo engineering, HAARP

And how it relates to T.

Mercury is known to cause T and those lovely cloud producing contrails the new world order is spraying over our heads is raising the levels of mercury in our systems. Couple that with a never ending increase in radio waves being transmitted by every device, it’s time to break out the tinfoil hats.

Or maybe there are just to many moving targets on the T checklist for any one doctor to focus on.✈️

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Interesting comments about the military. My view is that some people want to find s cure but there is no great financial driving force as in other areas of medicine.

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More profit in treating unsuccessfully. Easier to make money failing. Or......

The researchers are conpartmentalized and entrenched in the status quo.

I know they’ve made a tone of money sending me from doc to doc and scans, epidurals physical theropy etc. nothing has helped, only made me worse and still they want me to pay out of pocket for counciling.

I think some want to help but it takes a genius to find the known cures for the known causes of T and that person hasn’t turned up yet, but the man with the big check is there, capitalizing from both ends.

A deer in the woods, can only count three hunters, so if there is a forth, it’s dead in its tracks.

If there are more than 3 moving parts to the T problem, your not going to see better performance from someone with two legs. A deer is far more alert and quicker🦌

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I agree with you. But a lot of musicians suffer from tinnitus and you don't hear word from them. Seem like a lot of people don't like to talk about tinnitus even the EMT.

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I don't think the drive is there in companies at the moment, because frankly tinnitus isn't shiny enough, or exciting enough. But we're beginning to make progress with our work driving towards a cure. The research community is bigger and more collaborative than ever, and I genuinely think that soon there will be something that gets Big Pharma sniffing around.

I'd love to see the day when my role is redundant, because there's no call for information in tinnitus!

Best wishes

Nic

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I live in Australia and my audio said there is a huge amount of money spent on research , so don’t give up hope everyone... we must remain positive as Nic is 🌷🌷🌷🌷

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Thank you for your honest rely.

Ade

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Hi ade,

I believe as you do, that there is little interest in curing tinnitus.

I am happy and delighted to hear of medical advances which will, who knows, save my life in the future but we T folk are definitely at the back of the queue for help.

I do like the medical documentaries etc on tv and radio, and a couple of weeks ago one such featured a young man who had been cured of severe epilepsy because the brilliant surgeons had been able to target the parts of his brain causing the seizures.

So, why not the same for tinnitus? But, as we have all experienced, our lovely ENT consultants care nothing for our suffering - we are a nuisance

Angela xx

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Good points that you make.

Wishing you peace and quiet

Ade

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Just had an idea, based on one of my heroes ~

John Harrison 1693 - 1776 spent a lifetime making chronometers to measure longitude at sea. The 1714 Longitude Act promised a substantial reward to the first person to accurately do this, which he did in 1765.

So ....... what if ....... £1 million was promised to the first person to cure tinnitus?

Perhaps this challenge should be put out to the scientific/medical boffins out there.

If only .........

Angela xx

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Nice idea but I fear the big drug companies would not get out of bed for less than a 100 million.

Ade

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Hi ade-the -pade,

Back to this topic, if I may?:

If the solution can be found through our personal discussions, sharing data, comparing experiences etc., versus a lab or operating table, we don't need a financial reward, only a big dragnet to find the solution.

A reward could be funded by selling the cure to the drug companies. If they already have the cure, they might pay to keep it quiet?

Through this forum, we could conduct a survey, asking T sufferers how many people they've discussed T with. Of those, how many of them have described having T symptoms? We all do this but we don't keep it in our journals. Is it 1 in 10 or 1in 100? I can count four of my family members that have it. I can also count several friends who have also described having it. To some degree it will affect most people.

If you do the math, that's a lot of patients that need treatment.

So is the issue that there is no demand for a cure, or that insurance companies don't want it to be considered a health risk or is there more benifit to keeping T around?

The US government is deeply and covertly involved in T research. We know that they've not been good at caring for veterans and they've always left research up to private industry, so why are they so heavily invested in research that will never see the light of day?

I'm inclined to believe that all of the researchers and practitioners are compartmentalized and can't collaborate on much of anything. In today's world, if you want to get something done, your probably going to have to do it yourself.

So I'll keep digging,

Wringing1212🔍

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Thank you for your reply. Thought provoking.

Ade

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I agree, for me there’s medications that worked for me Low dosages of Aprazolam or Valium. I found my tinnitus on hold when I was taken these meds 1time a day

Unfortunately my Dr Retired and I have yet to find a dr that will prescribe these meds. It’s either they don’t take my tinnitus seriously which 4 Drs already told me. Or they send me to a Pychiatrist which the pych turns around and sends me to. Dr lol it’s so frustrating that to think any Dr

To deny me treatmen. Some Drs have the God complex or they just don’t care!

Thanks DSH

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I seem to try loads of meds . My doctor is happy to try stuff but so far we have not got the jackpot.

Hope you get some peace and quiet

Ade

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Has your Dr given you a low dose of Aprazolam or Valium they worked great

When I was taken them a low dose

Of .025 MG twice a day ! Or a low dose

Of. Valium. For me it kept it under control where I could function as a normal person .

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At present he has me on gabipentin and mirtazipin. Trying to manage the symtoms.

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do You see any change on these Meds?

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No change in noise level but at least I go off to sleep each night

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I agree my Tinnitus does not get enough

Respect from Drs. Sometimes they look like they don’t have a clue what it’s all about !!!

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