Can you help with hyperacusis research?

[NicBTA]

This a post on behalf of Kathryn Fackrell, from NIHR Nottingham Biomedical Research Centre

Are you interested in joining a workshop to set priorities for Hyperacusis research? Tell us what you think and change lives for people with Hyperacusis

Here at the NIHR Nottingham Biomedical Research Centre, we have been working with a Steering Group comprising people who have lived experience of hyperacusis and our partner organisations to identify the Top 10 research priorities about Hyperacusis.

In our first survey, 312 people (adults/children experiencing hyperacusis, parents, family and friends, teachers, and health professionals who work with and support those who experience hyperacusis) submitted questions they had about hyperacusis. People have now voted for their Top 10 questions they think research should target in a second survey. Our next step is to hold a consensus workshop to identify the final Top 10 questions from a list of 25/30 questions identified as important in the second survey.

We need you to join us at the consensus workshop!

The workshop will include 30 people who all have experience and knowledge about hyperacusis. This includes people with hyperacusis, their relatives and carers, and healthcare professionals from a variety of disciplines. We need people who are prepared to share their experiences and opinions and listen to other people’s experience and opinions in a series of discussions in order to identify the final top 10 questions for research Hyperacusis.

What will the workshop involve?

The day workshop will involve small group discussions of no more than 10 people and whole group discussions to talk about the questions and identify the Top 10 research questions.

Where and when is the workshop taking place?

Date: Monday 23rd July 2018

Time: Arrive 10.00am, Finish 5.00pm

Venue: Trent Building,

The University of Nottingham

University Park

Nottingham

NG7 2RD

What do you need to do now?

If you are interested in attending the workshop, please email [e-mail] confirming:

1.which of the following groups’ best describe you:

•Person with hyperacusis currently or in past

•Carer of someone with hyperacusis

•Parent of a child with hyperacusis

•Family or friend of someone with hyperacusis

•Educational professional, e.g. school teacher, lecturer

•Healthcare professional

•Other

2.Your contact details so we can contact you to organise your attendance

3.That you live in the UK and are willing to travel to Nottingham for the workshop. We are happy to book and arrange your travel to the workshop and will contact you about this.

4.A brief explanation of why you are interested in taking part in the workshop (max 100-200 words)

5.That you are available on the above date (e.g. book the day off with your employer, arrange childcare etc.)

(If you can say you saw the ad on the BTA forum that would be helpful)

Please don’t hesitate to get in touch if you have any queries about the workshop.

Thank you!