British Tinnitus Association
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It’s 7 months, it driving me insane ? Please what do I do???

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It’s goimg to drive me to my death, I just can’t takd it anymore

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Calm down and be positive takes sometime you 'll adjust to your tinnitus ,Your not alone here .

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i have an idea how about we all offer couch surfing at least we all know what the other is going through

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awesome idea!

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Hi buddy, like the guy said please stay calm. My life go’s up and down as my T is mega loud you will have good days and bad but we have to get on with life. Remember we on here are all in the same boat so stand up and say I’m going to beat this crap.stay positive lad you will get through this

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hi Hazyfan

You've had some good advice here in the past. What have you tried already to help with managing your tinnitus? You mentioned trying to see Laurence McKenna before - have you done that?

Warmest wishes

Nic

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Iv done a 8 week mindfulness course which i practice everyday , but no results as yet,

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Are you back at work now Hazy? There's not much else you can do other than try and ride out the bad periods in the hope that things will get easier. I can't say that it will get easier, but I can tell you than it CAN get easier - do the things to facilitate the habituation process and hope for the best.

How are you getting to see this McKenna chap? I understand he has pretty bad T himself, but he's one of the leading lights in T research, so you won't get any better advice anywhere else if you can get in with him.

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Have you considered going to a local buddhist centre for the meditation?

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Hazy. I’m where you are. Same timeline, same desperation. Hang on! That’s all we can do. I will not and cannot give in at this point. Neither can you! I’m sorry both of us have to keep suffering in the hope that we get a miracle and something gives. I know your pain and the awful torment of having no cure or seeming way out of this insanity. It wears on me every second of every day but we must give it more time. Please hang in there.

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Sorry to hear you're still suffering. A few weeks ago I thought I was never going to be able to carry on as my noises in both ears were so loud. I got new hearing aids with maskers, which I only used for a few days and today I can honestly say that my t hasn't changed but it really isn't bothering me at all.

For me breaking routine has really helped. Being away from home and all the everyday stuff has worked wonders for me. How about booking a few days away with your family? It just might help to break the vicious circle.

Wishing you well

Ingrid xx

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Glad it all came good Buddie. I love your spirit so much! But lord how I despise how this thing just keeps us all in a permanent state of never knowing what it’s going to bring us next. It’s like living life in an extremely hostile and volatile environment- like a war zone. I long for the days when I worried about normal ‘little’ things and spent my days daydreaming about the future instead of dreading waking up.

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I hope Hazyfans okay. He sounded desperate.

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I hope he’s ok too. He really does sound in need of more help than you or I can give. What do we do tho? I can only speak from my own experience in that you do learn to cope. I remember the early days when I first got mine. I thought my life had ended, but gradually things improve. For years I go without thinking about it and then there it is again. It will be a problem for a few months and then the brain will tune it out again. By tune it out I mean you still hear it, but it really doesn’t bother you. As I write this it’s loud, but it’s really not distressing me like it was a few weeks ago. Would still like a cure, but until that happens what other choice is there?

Sometimes I feel guilty that I can cope as well as I do and I just wish that everyone could get to this stage. I know in the future that it may be a problem again, but I will get over it again.

Take care and I’m going to send Hazyfan a private message.

Ingrid xx

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Yeah I sent him a PM earlier too. I just know he has a 3 year old so I see his survival as way more important than mine.

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I haven’t received a reply yet just hope he’s ok. Everyone deserves to find a way to survive this and it can be done. Just wish there was an easy route to habituation or better than that a cure.

Ingrid xx

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Me neither. Maybe his wife’s just got him off these forums. I know they can be helpful but they can also lock you in to a bad mindset. Me being a point in case. It breaks my heart knowing what a positive and dare I say inspiring influence I was to people before I got this. It’s really eaten me up I’m afraid. My moods are all over the shop. I want to be the old me but I’m consumed by all the awful emotions that come with tinnitus suffering.

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By coincidence, I've just sent Nic a msg to see if she can give us any reassurance that Hazy's still with us, as I'm concerned about his wellbeing as well.

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I’m so glad you’ve done that, why didn’t I think to message Nic? Hopefully he’ll be ok and just trying to get his head round things.

Keep us informed.

Ingrid xx

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Hi Hazyfan replied to my message xx

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Sometimes the forum can be very helpful, but it’s easy to get drawn in. I said I wouldn’t post while I was on holiday, but I just wanted to be positive about this bloody t curse. I’m fine at the moment, but that doesn’t stop me worrying about others.

Mines loud again today, but I’ve been to a dog pound in Spain and walked the dogs and cuddled the tiny puppies. One dog was so ill I don’t think it will be there Friday when I go again 😭 I’ve been crying so much and I’ve also just found out my work colleague has been diagnosed with brain cancer, only 54, given 12 months to live. All these things put my t in the background. Thinking about other things really does help even though they’re things I’d rather not be thinking about.

Life goes on, take care.

Ingrid xx

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Hi Hazyfan replied to my message xx

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Thank you for letting us know x

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Hi hazyfan,

I've had T for nearly 3 years now and like you, it was driving me crazy for the first year and I couldn't see how on earth I was ever going to cope with it but with the help of a hearing aide that has a built in masker, listening to other T peoples advice and just getting on with normal everyday life, has helped me to manage it better. I still hear it even with hearing aide but like someone else has mentioned, it seems to calm it down. Have you had your hearing tested? As maybe you have hearing loss and would benefit from a hearing aide. Distraction is another good thing, if you spend all your time focusing on your T, it will seem louder/more intense, then this will stress you out or bring on anxiety and the viscous cycle continues. So do carry on with all the hobbys/activitys you enjoyed doing before T started and in time this will make it more bearable.

If you have trouble with sleeping, I do recommend using sound therapy as then you can focus on that sound rather than your T when your trying to go to sleep.

Knowing that we are all in the same boat, and always here to provide support does help too.

Take care of yourself

Lesley

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