And they think the way to go about that is to spread the message that tinnitus isn’t that bad and nearly everyone just gets used to it after a while. Looking at all the desperation and despair on numerous forums this is blatantly untrue and how on earth does it serve the charity in terms of raising funds? Why would anyone give money to something that’s portrayed as a minor annoyance? Where are the testimonies on the website of the once happy and normal lives destroyed by this hellish affliction? The people driven to constant suicidal ideation by the relentless noise and lack of help. The jobs and marriages and dreams of the future swept away by a shrieking tsunami? In the BTA’s world it seems all you need is a hobby and a sound machine and you’re good to go. The truth has been whitewashed. Tinnitus has destroyed my and countless others lives. We’ve gone from happy, content, positive people to marginalised, tortured, recluses often addicted to drugs (legal or otherwise) and alcohol. We cling to false hope with a spineless charity misrepresenting our suffering and pain and ensuring all our friends and family will belittle our plight.
EDIT: I wrote this post when I was angry, frustrated and quite frankly hopelessly sad. Severe tinnitus does this to you. Luckily the BTA does care and does exist. You will see this from Nic’s very kind responses. My apologies to them.