British Tinnitus Association
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Looking for someone else with this type of Muscular Tinnitus/TTTS

Hi All

On and off since 2015 i've had a strange low inconsistent popping/fluttering in my left ear.

Sometimes it can last minutes, sometimes months (longest episode was 9 months.)

After numerous Drs appointments being told I was suffering with fluid in the ear, I got referred to ENT in Southampton UK to be told it wasn't to do with my eustachian tubes and was not because of allergies etc.

After a second ENT visit, the word Tinnitus was mentioned, had an MRI scan that was clear and sent on my way with the words of "just dealing with it."

I have just had another bout begin yesterday, my anxiety levels are through the roof and I'm really struggling.

I think from my own research, I am thinking it's a form of muscular tinnitus or TTTS.

Does anyone else suffer with this muscular fluttering sensation in your ears? It is not rhythmic and there is no pattern. I also can't see any reason as to why the episodes start. It isn't when i'm exposed to loud noises which is usually the common occurrence with TTTS.

I have noticed that the flutters are more constant when looking at a computer screen or phone screen and it's scrolling down or up, and also if I move my head around or something is waved infront of my eyes. Is there a connection to your eyesight and the small muscles in your ears? I can't seem to find anyone that has these same symptoms and I'm feeling rather lonely

There is always the worry that this episode will last forever and I'm not sure how I can cope it if does.

Sorry to be so negative.

Many Thanks

Anna

4 Replies
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hi I also had clicking in my ear especially after loud music but i put it down to congestion, didn't even think it could be tinnitus. i've had it on and off for 10 years or more. Now i've got permanent ringing so i know this is tinnitus. I've had this permanent tinnitus for 4 weeks now and already i've noticed when i'm anxious it goes up a level, so i'm trying my hardest to stay away from any situation that may make things worse.

Hope you get some relief soon

Reply

I've had an MRI and a camera up there which proved no congestion. I was hoping it was, at least then there is some potential remedies out there.

This low level popping/fluttering drives me mad. It's just so weird that when I move my head or eyes or watch anything moving it goes nuts. Which is suggestive that there is fluid trapped in there but apparently not.

I have an appointment on Monday and hopefully a quick referral to ENT whilst it's still going on.

Sods law is everytime I've gone there, it happens to be when I have a period of relief from the noise. So the specialists just look at you blankly because of course there is nothing to see.

Ho Hum

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I have the same thing about 20years back I started getting popping in one ear the ent said it was fluid they put a gromit in and as soon as I came round all the noise gone its amazing but it only last 6months I had 3 put in over the years so 20 years later came back went to see ent who said it will go on it own 3 years later still got it I know its fluid I think they can put a tube in these days they can do thing but we just get fob off.

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Thanks Highwycombe, after having an MRI the Specialist saw no fluid in the ear. He said it was pretty much clear. So unsure if this is exactly the same?

I have a feeling grommits are no longer provided on the NHS... I think it would have to be private nowadays? I'm not sure if this would help my situation though.

Just started to go to Chiro in the hope that helps.

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