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British Tinnitus Association
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I hope this may help

Hi guys. I thought I'd pop in briefly to say that it's been over 5 years now since the screech in my ear. I've learnt a lot about T over this period but can honestly say that I rarely notice the T now that my brain seems to have rewired itself.

I have written a very short free book which I hope will help those going through the panic stages of T. I hope it will help. It's in the public domain so everyone is welcome to copy it and use it as they like.

Here is the link to the book...enjoy..

sites.google.com/site/tinni...

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Thank you so much for posting this , it gives me so much hope . Such a positive account of your journey which will aid my recovery .

Best wishes

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Great post, gives us all hope, for the future

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Hi Steve, good to hear from you and to know you are doing well. Your posts on the old BTA forum were a great help to me in my early days with T and I'm sure your book relating your personal journey will be a great help to others.

Regards

John

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Hi John, How's it going!? :-)

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Hi Steve. Coping ok with my T but currently going through a worrying time with other health issues. I get the results of a PET scan this week so I'll know then what's going on.

John

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Thank you for making it available to read. Lovely to read your story. Fills me up with hope.

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Thank you for sharing your journey which will give many people real hope?

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By the way, I’m not on any social media groups like Facebook so if anyone would like to share the link on an appropriate group then I’d be very grateful. The more people it helps the better.

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Hi. This is my very first post on here and I feel ready now that ive read your ebook. I’ve had tinnitus since over a year now. Unfortunately through my mri scan in November they have found an acoustic neuroma. I’ve just had a second one to see if it’s grown, hopefully it hasn’t. I have been very angry, Ive had cancer twice and came through chemo and other treatments. And kept thinking it’s not fair to end up with this now. I’m getting better at coping as don’t want to scream so much and have stopped pulling at my hair! My audiologist and the Skull surgeon both say my positive attitude to the condition is amazing, but it’s all bravado when I’m in the hospital with them. It changes when I get home. I’m slowly beginning to have ‘acceptance’ Like you in the beginning, I kept thinking I WILL defeat this. How dare this happen to ME! I’m sure I will read your book over and over again because it really has given me hope. So glad that you’ve put it up for anyone to read. Still can’t help feeling sorry for myself though. Thank you again. Because if you I know I will get there in the end

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Life does bring us lots of challenges, but I do believe each one we go though makes us stronger inside. I have great admiration for those like yourself who have had to go through so much. You could probably teach me a thing or two! :-)

I hope things improve for you and that you can gain strength through those around you.

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Thank you so much 😊

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Thankyou for this asw21, it's very helpfull and a positive read for those of us still on the road to 'habituation'. I will refer to it now and then on days when I feel a little support is needed.

It's very kind of you and will be much appreciated by many.

All the best to you.

C

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Thank you for making this available Steve, I'm sure it will give hope to a lot of people. You've come such a long way since those early days and it's great that you're sharing your journey with others.

Best wishes

Nic

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Thank you so much for sharing your book and glad to hear you're enjoying life and Tinnitus is not in the forefront. Although I have had tinnitus for 7 years, have struggled with it getting worse and spikes. Sharing your journey in such a positive way will bring hope to many others and myself. Thanks again :) Best wishes

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Excellent post and blog. Very informative and is correct in approach.

My Thumbs up for sites.google.com/site/tinni...

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I’m back. Time heals from trolls!

If anyone wants to ask me anything feel free to ask away.

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I remember reading your book when I found this forum last year. At that time my t was horrendous, but it settled to not being a problem again. It was fine for about 6 months and now it's back with avengeance.

My question is does your t flare up again and do you manage to get it under control again?

I'm 37 years in and I think the past 3 months are the worse I've known. I've always habituated in the past, so I'm hoping I will this time 😊

Ignore the trolls, they’re everywhere 😡

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Hi Ingrid,

Yes it flared up many times in the first year or two.

Looking back I think this was partially due it taking time to push the stressors (causes) out of my life. I’m very much the impatient type, so that was hard.

The biggest thing for me though was learning not to become obsessed with it when it comes to the forefront and accept that it will go in good time (like it did before).

I have no doubt that my obsessive nature was the main block to moving on. Focus is everything.

Maybe I should have put more in the book about that. It’s the spikes, reoccurrences and changing symptoms of T which exasperate us. It is like a battle sometimes.

However by following the same advice you see in most success stories (and doing what you did last time!). it will disappear into the background like last time).

I can honestly say I don’t notice it 99.9% of the time now. Very rarely I’ll get a spike (usually caused by a stressful event). When that happens I just carry on normally and trust the faith that it will fade away as usual....and it does.

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Thank you. I know it will “get better” but the brain seems to play tricks and the negative thoughts take over.

My t was first caused by an ear infection, but for the past few years my hearing has got worse. This in turn has made my t seem worse, but aids do help.

Fingers crossed I get back to normal soon, got a very busy year ahead!

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Yes it does seem to play tricks on us, but again, for me, looking back, it was a warning. I see it as a constructive thing now.

Hearing loss will make the T seem more noticeable as there is less external noise to mask it.

Busy is good so long as you are happy.

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Thank you from the core of my heart!xxx

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