Joseph2602688 months agoPOPULAR
Hi everyone, My chest specialist recently told me that the next best course of treatment for me would be a lung transplant. Although it has s...
Information for all
Snodgrass19 months agoPOPULAR
In case you don't know and I apologise to those that do, but are you aware that 65 is a magic age. I will explain....
ross-35_6 months agoPOPULAR
I have Severe Emphysema and I am not well at all, I want to go for it if they say Yes, but its big decision....
Adela123a year agoPOPULAR
Hi, my name is Adelaide and was diagnosed April 2016 with Pulmonary Fibrosis. My Dr. Sent for a lung transplant evaluation but I was not a su...
3 day program for Lung transplant list
Joseph2602683 months ago
Hello everyone, Tomorrow I continue my journey at Wythenshawe hospital at Manchester in the UK. I arrive there Monday and I will be released ...
Still on the list
southy5 months ago
Hi, don't post often but am always here, been on the list for double lung transplant for 11 months now. During that time I have deteriorated,...
Hello you all
Hidden5 months ago
I am a mother of a wonderful son who is 41 years of age. I pushed him to take the first job he was offered on leaving school which was a smal...
IPF - Nintedanib
Ian13698 months ago
Hi folks, I am new here and this is my first post. I was a relatively fit male of 47 until last autumn when I started to feel tired and have ...
New member plz help
llo19708 months ago
hi im loretta 46 been diagnosed with copd but they also think I have bronchiolitis ' spelling prob wrong....
david07403 months ago
Hi All hope you are all ok. I have a question regarding Fev1....
beattied8 months ago
I'm new my names David I have IPF need double lung transplant....
First call for transplant
southy2 months ago
Had my first call last night, they told me I would be the back up for a heart lung transplant, if the heart was not acceptable I would get th...
Para1471a year ago
. A family member was diagnosed with bronchiolitis obliterans ( which I presume is similar if not the same as obliterative bronchiolitis ) in...
Obliterative Bronchiolitis wrisband???
Elisa82a month ago
I have obliterative bronchiolitis and kidney failure. When I go out anywhere I like to have on my silicone medical wristbands to say I have a...
Elisa8210 months ago
Anyone been through tthe dreaded pip system? ??...
Lung function test results
LaurieRosea year ago
My lung function test results:- FEV1 predicted= 2.31 best=1.50 65% predicted FEV6 predicted = 2.72 best=1.74. 64% predicted FEV 1/FEV 6 RATIO...
Some transplant news
mattcassa year ago
My Pulmornay nurse told me the other day that 2 people from the Bathgate area have received double lung transplants in the last couple of mon...
Laurenmerrin_xo2 years ago
Can someone please get in contact if they have obliterative bronchiolitis as I have recently been diagnosed but not been told much about this...
Diagnosis: constrictive bronchiolitis Help!
jrsteiger9a year ago
Recently diagnosed with constrictive bronchiolitis after having an open lung biopsy done. I don't know how much time is left--there is no way...
Wheezy19543a year ago
I have a condition called bronchiolitis Obliterans also called Obliterive bronchiolitis I have had this condition since birth so for 29 years...
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