Hello everyone, I am a 43 year old woman who was recently diagnosed with HS(The Joy Of Just Knowing) in March of this year!! Oh did I mention I have suffered since I was 7. I've seen many doctors and I've had over 23 surgeries since age 17 for this "mystery disease". For 10+ years my primary doctor was a surgeon. Life SUCKS for me as I'm sure for you all as well. I'm supper excited to have found this site. I can go on all day talking about the embarrassing moments of talking to clients as my shirt starts to become saturated with fluid from a ruptured abcess without my knowledge. Or the delightful smell that comes with the rupture. Not being able to think clearly because the pain is so bad. Or the mind numbing meds that they give you. What my children see me go through. My lack of social paricipation because I never know from one minute to the next what will happen. I have been diagnosed with stage 2 by Infectious Diseases. No one here in the States know how to help. I've met with many rude doctors and their staff because of their lack of knowledge. Get this ...once I had a pilonidal cyst and they prescribed me "hemorrhoidal suppositories"! Really, I said. Needless to say 48hours later I had emergency surgery with a complimetary 1 week stay in the hospital. Anyway, I would love to hear from anyone who would like to talk to someone who KNOWS YOUR PAIN! I am happy, hopeful and thankful!
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