Polymorphic light eruption

[Nads28]

Hi I have recently been told by my doctor that I have polymorphic light eruptions I have been researching it online but what I have come up on my body looks nothing like the pictures I have seen it has got to the point it is effecting my work, nothing the doctor prescribed me has worked, does anyone else suffer from this?

[Tessi]

Was this diagnosed by your gp or a consultant. I had this for a few years, it drove me crazy, kept me indoors and I had to leave my job.

The only thing really works is avoiding the trigger - the sun. I know-it's very drastic.

There is a very helpful group on Facebook. As this is unusual there isn't a lot of information available. A lot of medics have never heard of it, let alone treated it. A few photo sensivity conditions are very similar.

I'll get access to my FB account and send you the groups to join if you are interested/ still looking for advice.