Advice info on biliary sepsis

[Blowblow_]

Hi, not really sure what area to post this in so if admin want to move to more appropriate please feel free. I’m looking for some information regarding biliary sepsis, google info is so confusing so I’m looking for any information from people who may have had this or have family/friends who have had this. Thankyou.

[jackk9]

Hi my husband has had it 5 times luckily been ok each time put on I’v antibiotics but we always think when’s the next one he starts rigours which is shaking violently and high temperature . He has had a liver transplant 5 years ago and 2 heart attacks but Qe Birmingham have recently started him on rotating antibiotics to take permanently so fingers crossed he doesn’t get sepsis again . Hope that’s what they do for you because it’s a worry isn’t it .

[Blowblow_ in reply to jackk9]

Hi thankyou so much for your response. My mother is currently in hospital with it again, only 4 weeks after first being in hospital with it. the first time she had these weird shakes, high temp, low sats, high pulse, vomiting. She was given IV antibiotics in hospital and then discharged with tablets. I personally didn’t think she was right since she was discharged and I kept emailing the hospital consultants PA to raise my worries to no avail.

This week she had a bad turn, vomited and then passed out and fell in bath, luckily I live with her so was able to support her back to bed, I checked her obs and these worried me but she insisted I didn’t call 111 at that point and see how she was a few hours later. She seemed ok few hours after so I just completed an econsult with the GP.

GP calls a day later but offers no support, I suggest could we have repeat bloods as something isn’t right to which he agrees, (I mean really should patients really have to recommend their own treatments?) but all he says is how serious this condition could be, wow, how reassuring Doctor. I say we were supposed to have a follow up with consultant within 4 weeks, we are now at 4 weeks, GP says, oh often 4 weeks is really 6 weeks! I ask if he can chase the consultant as I’m getting no response, he won’t, just says wait 6 weeks.

Fast forward a couple of days and the exact same thing happens again, she vomits, goes to the toilet and then passes out. I won’t take no for an answer this time though as obs are all concerning again, and call 111, paramedics later dispatched and she’s now in hospital with ‘biliary sepsis’ again.

I’m really so angry and upset. I mean she seems to be doing okay and they are talking of discharging her tomorrow which is good of course as long as they have actually treated it properly this time. The last time she was promised a follow up within 4 weeks plus an ultrasound (she had the ultrasound but the practitioner recommended a CT as he couldn’t see anything with the ultrasound, but she hadn’t been sent an appointment for that) and she ended up back in hospital before these things were actioned.

I’m really annoyed with GP response too, if he’d seen her in clinic instead of over phone (that’s all my gp offers at the moment) maybe some basic obs could’ve revealed she wasn’t right (on-going cold and flu symptoms, nausea, vomiting, fluctuating temp and pulse, o2 up and down)

I did read up yesterday on having preventative (not sure if this is correct term) antibiotics like your husband is now on and if we do get a follow up with the consultant once discharged I will mention it. We don’t even know what caused this, she’s not had an operation, no one will tell us what caused it, she had her gall bladder out about 25 years ago but they were saying some stones could still get lodged and cause infection.

She did have an endoscope and biopsy taken of the stomach in January and I’ve read that this could cause sepsis, but I’d really like to know for definite.

I’m really sorry I’ve ended up venting And writing more than I intended!

If you've read all this thankyou! I really hope your husband is fully on the mend now x