Terrible itching keeping my husband awake

[Sixties123]

Does anything help the itching related to high biliruben. Husband is taking Colestyramine sachets , has tried chorphenamine 4mg, otc antihistamines, and prescribed fenofexadine 120 also using Dermacool 5% cream all of which are useless. Any advice greatly received. Thank you .

[Hidden]

Hi. My partner suffers with quite severe itching, mostly at night. He's never been prescribed anything but uses Eurax to help with the itch and moisturise. Not brilliant but he says it does help. Best wishes to you both, K

[Sixties123 in reply to Hidden]

Hi thank you , we did try that and while it works for a while we would need a vat of it as it's all over his body .

[Hidden in reply to Sixties123]

Yeah, I know 😒

[Hidden]

I have eczema and use a prescribed steroid cream eIocon. I must stress l do not have liver problems and don't know if it would be suitable for anyone who does, so if you do want to try it, please speak to your doc who can decide. Best wishes.

Laura

[Hidden]

HiI know a lot of us who have PBC are on rifampicin to help with the itch x

[Sixties123 in reply to Hidden]

Hi there , thanks for the reply. I think im a bit out of my depth here. I dont know what type of drug that is and PBC ? . I hope you are keeping healthy though and tha is again .

[Hidden in reply to Sixties123]

PBC (Primary Biliary Cholangitis) is an autoimmune liver disease. The immune system attacks the bile ducks. Would be worth while suggesting rifampicin to your doctor .

[Sixties123 in reply to Hidden]

Thank you . Is Rifampicin an anti biotic ? .

[Hidden in reply to Sixties123]

Yes, but not one that you would be prescribed for an infection. I don’t know why it works but it does for many of us.

[Peter007]

Hi poppyrocks - sorry your husband is having a tough time. Would you mind me asking when the itching started? I’m having some ongoing issues myself. Were there symptoms a while prior to diagnosis or only when he was diagnosed - hoping you can find a solution - thanks

[Sixties123 in reply to Peter007]

Hi there Peter 007, we dont have a diagnosis yet. He is having a liver biopsy on Monday. He started itching like crazy when Bile duct was blocked and they cleared that and his high biliruben levels stayed and the itch , jaundice too. Hope your issues resolve soon .

[Peter007 in reply to Sixties123]

Thanks PoppyRocks - hope all goes well for your husband tomorrow

[Sixties123 in reply to Peter007]

Thank you x

[TT-2018]

Whilst you say that what he is trying is useless, the itching would probably be worse without it. Prior to my transplant, it was one of the many problems that I struggled with, post transplant I still have problems that I use fenafaxadine, Dermol and Aquadrate to help.

Prior to the transplant, I found some relief by using Dr Organic Manuka Honey rescue cream from Holland and Barrett helpful but nothing actually makes it go away.

Good luck with the biopsy.

[Sixties123 in reply to TT-2018]

Ahh ok thank you for your advice . Hope you are doing ok at the moment

[TT-2018 in reply to Sixties123]

All good, thanks for asking.

[Sixties123 in reply to TT-2018]

👍

[A9KSY]

The itching drives you mad, had all sorts of prescribed creams and medicines the only thing that worked for me was Dream Cream from Lush relieved itching for a while.

[Sixties123 in reply to A9KSY]

Thanks will try that .x