Pain relief for liver disease sufferer's. - British Liver Trust

British Liver Trust

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Pain relief for liver disease sufferer's.

davianne profile image
davianne

Hi All,

After reading recent posts on pain relief, it seems we are all being given different advice on suitable medications that are liver friendly. I was recently prescribed codeine, only to find on the pamphlet it says not to be taken if you have chronic liver disease.I stopped them immediately. I know everybody has various reasons for their liver disease, and each case is different, but If there was a list of the medications that are safe for us to use for pain relief, we would not be living with constant pain. I know people will say it's down to the hepatologists to decide what to prescribe, but, where do they get their information from......it seems, not from the same source. My Hepatologist for example, doesn't acknowledge my capsule pain is liver related. What are your experiences with pain relief?

David

131 Replies

Hi David,

I think the difficulty is almost all drugs are metabolised by the liver (some more affect on kidneys, but not so many analgesics). So, many drug information leaflets will Inc caution regarding liver disease.

Taking this into account Dr's tend to be pragmatic, and prescribe on a risk vs benefit ratio. I was given tramadol for RUQ pain (which I've had on and off for 19 years, fairly consistent for last 15 years). I was told by a Hepatologist that tramadol was less harsh on the liver than paracetamol + codeine which I had been using.

Recently tramadol has been considered more dangerous than first thought (not necessarily liver wise, just generally for long term use) . Dr's tried to move me on to pregablin/gabapentin - which are drugs which dampen down nerve impulses, so reduce pain sensations. However these drugs did have an immediate impact on my liver inflammatory markers, so I've been left on tramadol. However during my TP assessment the Dr said that paracetamol is a very effective analgesic, and said I could use 6 per day (3g in 24hrs). I think paracetamol is dangerous in overdose, but considered OK in small amounts. (NB this was a recommendation made to me by a Dr, and not for others without consultation with their own medical care providers).

If medications have been prescribed by a Dr knowing you have liver disease its very likely they are aware the cautions which are advised by drugs company, and are prescribing anyway. Remember medications are under extreme scrutiny, and have to note all cautions however small. You could check with a pharmacist, or go back to prescribing Dr to be sure. You could have a trial for a couple of weeks and get bloods done to see how the liver has responded.

I hope you get some relief, I know how horrid it is to be in constant pain. For me night time is worse, stops you sleeping and the knock on effect is so impactful to everyday life.

Take care,

Wass x

davianne profile image
davianne in reply to Wass71

Hi Wass,

thanks for your reply.

I pretty much knew that drug companies have to cover themselves, and doctors are very wary of prescribing opiate based meds. It was a new , young GP who prescribed the codeine, but I did ask at the time if it was liver friendly. I know paracetamol is OK in moderation, but they have little effect on my capsule pain.

My problem is exacerbated by the fact that my Hepatologist has said that at my age (72) a TP is unlikely, so I must take extra care of my liver, as it is compensated just now, and I can't afford to do anything that will jeopardize that. I feel that I'm between a rock and a hard place with this.

David

Wass71 profile image
Wass71 in reply to davianne

I'm so sorry you're suffering. I've yet to find a solution. I've seen a pain management consultant, she was the one who wanted to try the pregablin. Even she felt they had nothing to offer, that they have things which improve chronic back pain etc. But visceral pain seems to be a mystery.

I do think that mood can affect how much you perceive the pain. When I'm low, I am more aware of it, however when I'm engaged/happy. Being with positive people, keeping busy really does help. It doesn't change the pain but your natural dopermine is activated when you are happy, and helps with coping with the pain.

My Dr's do think my pain has liver origin, but only after years of tests to make sure it is nothing they could have treated. They told me that at TP they cut the nerves, so I shouldn't have continued pain?? Not sure I'm convinced about that, as areas around the liver could be involved??

I'm so sorry I can't help, only think some mindfulness, or meditation/yoga may help you cope better, it's certainly worth a try.

Good luck David,

Wass

davianne profile image
davianne in reply to Wass71

Many thanks Wass,

I'm coming to the same conclusion as you, it's just another symptom of liver disease, but one that there is no effective treatment. I have a trapped sciatic nerve also (an old rugby injury when in my twenties), but an electric heat pad, and my TENS machine keeps that under control.

You are right, mood and keeping busy can help as a distraction technique.

I am, by nature, a happy person, so when meeting up with friends, or walking my wee dog Teddy, I almost forget it's there, but night times are different. My hobbies are a boon also.

That's great that your pain may be gone after TP, I hope and pray that it comes very soon.🙏🙏🙏

Take Care,

David

Wass71 profile image
Wass71 in reply to davianne

Love your picture of Teddy. My toy poodle monty gets me out of the house, although this last week has been hard. Luckily my husband, son and father in law have helped. Monty has enjoyed snuggling with me in the mornings, and he makes me happy (most of the time)!! It does make a difference. I really hope you find some relief. Thank you for your kind thoughts x x.

davianne profile image
davianne in reply to Wass71

Hi Wass,

Teddy is so gentle as his name suggests, and a great companion to me. I tell him all my woes and he listens intently.....I'm sure he understands 😊😊.

David

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Hidden in reply to Wass71

Hi,

I agree,individual situations. My gp prescribed dihydracodiene after codeine stopped working,not for my liver pain though,osteoarthritis. She has been very involved with my specialist since being diagnosed with PBC/AIH overlap . I do get my lfts checked on a monthly basis and when they flare all my meds are stopped and i am then only on the steroids,azathioprine and urso. I am well looked after.

Angela xx

Bootandall profile image
Bootandall in reply to Hidden

Geez Angela, that's got to be a little rough stopping all pain meds. I was on Lyrica for fibromyalgia and it worked great for my arthritis and depression too, but when I became convinced it wasn't good for my liver, l went off it.

I suffered horrible brain zaps, which was very surprising, and scared the shit out of me! Scared enough that l decided to wait until pain was much worse to try again. l think, while we all have different pain tolerances, it is not really normal to expect a pain free life. Pain exists for a reason. My fear is being so drugged up l don't feel something else going wrong, or becoming drug dependent. For me, waking up due to cramps in legs and feet is very unpleasant, but feels almost normal now lol.

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Hidden in reply to Bootandall

It is hard,last bad flare, i had to come off them and the rifampicin. The pain was bad but my itch came back with vengence,was horrific. Xx

ThreeSmiles profile image
ThreeSmiles in reply to Wass71

Hi Wassy

Our eldest son overdosed on Paracetamol- continuous over use - had a mental breakdown - and has damaged his liver to the extent of no alcohol allowed 🙁. He was 34 at the time 😕.

But of course that was an extreme situation. I have 6000mg of para a day atm. - since TP 15 months ago.

Millies

Wass71 profile image
Wass71 in reply to ThreeSmiles

That's very sad, I hope he's coping better now. I know all about the effects of mental health, very prevelent in my family!! X

ThreeSmiles profile image
ThreeSmiles in reply to Wass71

Not yet quite but we you might not know if you didn’t know him if you know what I mean 😑.

Sorry that you are au fait as well 😕.

Milesxx

Flipping heck - what is that rubbish you’ve written Miles !!

Wass71 profile image
Wass71 in reply to ThreeSmiles

I do understand, people with mental health problems get good at disguising it from other people. Put a brave face on etc x

ThreeSmiles profile image
ThreeSmiles in reply to Wass71

Yes thanks Wass, he does do a lot of that!

davianne profile image
davianne in reply to Wass71

Hi Wass,

You are right, people think I'm the life and soul, but sometimes the facade drops, and my true feelings show through. Fortunately that doesn't happen that often, and my depression is a lot better than it once was.

I am sometimes guilty of overdoing the "happy" act.

David

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Hidden in reply to ThreeSmiles

Hi

Sorry to but in. Hope your son is now making some progress, mental health is a subject close to my heart.

This as Wass said, very sad. Xx

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Aww thanks Lynne. It’s certainly been a long road. Way better than when it first happened thank goodness but still a way off from going back to work. He is very very nervous all round 🙁.

Thanks for the concern!

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Hidden in reply to ThreeSmiles

Thinking of you all xx

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Hidden

I was personally prescribed paracetamol for pain, to keep within the prescribed daily dosage, and use until the pain was gone. With pain that doesn't go I can see how that's a problem. Has your doctor referred you to s specialist pain management clinic? He could do that if you wished him to. I am so sorry that you are never out of pain. It's such a thief of life.

davianne profile image
davianne in reply to Hidden

Hi Phyllis,

I only take paracetamol and amitriptyline at the moment, which in combination work a little bit. I have to be sure that whatever I take is liver friendly, and I'm not sure if a pain management clinic would have the knowledge of the limitations that liver disease presents, although I may be wrong.

David

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Hidden in reply to davianne

It may be why it's a referral by GP service. Patients are treated on the basis of their condition as well as which type of management suits them e.g chemical, cbt etc. There are even some residential programmes I read about this morning.

davianne profile image
davianne in reply to Hidden

Hi Phyllis, CBT might be the way yo go if I can get it approved by a Hepatologist.

Hidden profile image
Hidden in reply to davianne

CBT for shrinks CBD for skunk.

CBD's a no no UK won't yet allow cultivation therefore it's imported and the quality is questionable.

Lab tests have found some strains to contain very little CBD

And many contain the munchies THC which should be zero..

But hey man if it floats ur boat or magic roundabout? Dylan. 🌿

Also Compulsory Basic Training

davianne profile image
davianne in reply to Hidden

Thanks for the correction Ofecky. I already had one of those for depression, got cured, but might have given it to the shrink😁😁😁

Hidden profile image
Hidden in reply to davianne

Worth a try but against the grain as you'll have to spend big.💰

I mentioned before I have it in powder form hard to swallow & no noticeable low or high 🌿

davianne profile image
davianne in reply to Hidden

Thanks for that, but no, I will wait for approval before I take any. I'm not going to risk my bu99ered liver, I won't get another one.

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Hidden in reply to davianne

David, Guys and St Thomas' Hospital have a residential pain clinic. The course last 4 weeks. Patients stay on-site in hospital single-sex accom, their own room, shared bathroom.Food is provided.. A variety of specialists input sessions throughout each day, Monday to Friday, (go home week-ends). It is an NHS hospital, and treatment is of course free of charge. I don't know who'd qualify more than you and Lynne for this treatment do you?

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Wowee that is MEGA. Never ever heard of anything like that! How fid you find out about it fill? Or have you been 🙁?

Milo

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Hidden in reply to ThreeSmiles

What do they have at QE for a pain clinic? If you go to St Thoms' website you can see what the daily schedule is and how to be referred. Also, there's a sleep clinic. It should be called the Can't Sleep Clinic perhaps. :-) Pain and loss of sleep are illnesses in their own right that devastate lives of people and their families and there are experts and researchers working all the time to address them.

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Unfortunately I haven’t a clue filly. It’s just Hepo referred to it in a clinic then got dicerted and we never came back to the subject - suilly me - on my own - no wife to help 😕👎.

I see a Sleep clinic every time I walk to liver clinic. Again no idea. Blinkers on me 😀

Omg - excuse typos 🙁

Hidden profile image
Hidden in reply to ThreeSmiles

excused :-)

Hidden profile image
Hidden in reply to ThreeSmiles

Blimey! You suffer pain all the time and sleeplessness.

You pass a pain and sleep clinic on your way to liver clinic.

You didn't raise the topic of pain and when the Hep did so you were distracted.

Yet you are a person of intelligence, wit and humour.

You keep a lot of people smiling here.

If this doesn't add up to a referral to a neurologist, pain clinic, sleep clinic, whatever it takes to try to unblock what causes a lot of problems for you,

then I truly am

Phyllis Stein :-)

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Lmao filly. As my wife says I need to “man up” 😀

Oh and I thought your name was filly?

Hidden profile image
Hidden in reply to ThreeSmiles

We have to unlearn the idea that the doctor will know what to do without us saying what's wrong. It's our consultation. Sometimes two people sit opposite each other and both assume the other will say what needs to be said. We have to say what troubles us. If we have any idea what investigation could find a cause and remedy, we can say so and if we have no idea we can ask our doctor to suggest. Doctors expect us to have made this change and it helps them.

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Hidden in reply to davianne

Would no pain no gain work? I was going to suggest liasing with our forum's new Agony Aunt. Thought Lynn with an e.xxxx had shared in the pain clinic, but I see she has beat you post pain? 🤕💊

davianne profile image
davianne in reply to Hidden

Nah, doesn't do it for me. Lynne has capsule pain as I do, so I'm waiting to see how she gets on with the pain clinic.

Hidden profile image
Hidden in reply to davianne

Hi

I'm due steroid injections within the next few weeks,will let you all know how I get on. Xx

alfredthegreat profile image
alfredthegreat in reply to Hidden

Hope they work for you Lynne, I've heard good reports from people about them :-) :-)

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Hidden in reply to alfredthegreat

Thank you. Slept a little better but pain back now!! How are you feeling today?

alfredthegreat profile image
alfredthegreat in reply to Hidden

Hi Lynne, Roll on your injections! :-) Fingers crossed that they do the job :-) :-)

I've had quite a few strange symptoms just lately but I've had my immune's reduced yesterday at clinic so hopefully all will be better now :-) :-)

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Hidden in reply to alfredthegreat

Thank youI

hope you improve very soon

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Hidden in reply to Hidden

Hi Lynne

Just a little input from me! I had batches of steroid injections many years ago in both elbows, the instant pain relief for me was amazing, the only down fall back in the late 80's into the 90,'s was they couldnt keep repeating the treatments. Lucky for me after giving up all gardening, squash and martial arts my elbows improved over a few years so joint replacement wasn't necessary.

I'm 🙏 that the medical profession have now tweaked this medication to allow it to be used more repeatedly especially for YOU if it does work!

Love Trish x

Hidden profile image
Hidden in reply to Hidden

Thank you for your kind words. How are you feeling today? Love and hugs Lynne xxxx

Bootandall profile image
Bootandall in reply to Hidden

I just got a corticosteroid injection in my shoulder for rotator cuff pain, they still need to limit them. Also they affect the immune system response, l was warned they could slow the recovery from open wounds ( l recently had a skin biopsy).

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Hidden in reply to Bootandall

Oh Boot you poor thing, I do hope your injection has kicked in and relieving your pain! Thank you in the meantime for updating me that the medical profession are still restricting the amounts of cortisone injections. Please keep me updated on your skin biopsy results plus my 🙏are with you on this one!

💗

Bootandall profile image
Bootandall in reply to Hidden

You must know the steroid injections work immediately. They biopsied this on my upper arm, leaving a huge scar (3x the size of the suspicious lesion) so now l am using a silicone bandage to attempt to shrink it! $$$

Hidden profile image
Hidden in reply to Bootandall

That's awful Boot on the $$$ front when you now have such a large scar! It's a shame they didnt warn you but I guess it wouldn't have made any difference if they had!

Hope you bandages help!

Hidden profile image
Hidden in reply to Bootandall

I have a suspicious lesion on my arm. Showed GP. He said "let's wait til it gets bigger". I didn't answer, I couldn't come up with anything polite. I haven't heard of silicone bandages. I had a lot of honey wound-healing treatment in hospital.

Bootandall profile image
Bootandall in reply to Hidden

What does the expression Agony Aunt mean?

It seems derogatory in the sense it sounds vaguely as though you are minimizing Lynne's genuine pain.

Hidden profile image
Hidden in reply to Bootandall

Oh no no no.? Lost in translation.

Purely the name 4 r go to Dear .....

Column in the ragtops & magazines etc. So called councillors for whatever namely relationship issues.🙄👍

Bootandall profile image
Bootandall in reply to Hidden

Like Dear Abby, my husband never shaves before dinner? ☺️

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Hidden in reply to Bootandall

Well yes but miles has elaborated because I was flabbergasted. Knocked me back.

Dry wit, alco free is how wee deal. Thought ud got me B4 now 🙃☹️.

Hidden profile image
Hidden in reply to Bootandall

Yes! Exactly that! You do know!

No I don’t think it’s meant that way. An Agony Aunt is someone who gives advice to anyone with problems they want help with. Most often, but not exclusively, by writing answers in the papers! It actually could be considered complimentary if someone called you an Agony Aunt 🙂. Not if you were a man though - but probably OK if you’re gender neutral.....

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Hidden in reply to ThreeSmiles

Whatever? Sure I could have told u that in the 1st place? 👍

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Hidden in reply to Bootandall

I think he was joking!!

Hidden profile image
Hidden in reply to Hidden

People with a dry sense of humor can come across pessimistic, suspicious, or paranoid, but it all comes from a place of curiosity and trying to determine where the limits of comedy are. The world isn't always a cheerful place, so having a dry sense of humor is a great tool to have.

Hidden profile image
Hidden in reply to Hidden

Yes, I agree, I've always been able to laugh at myself etc. Even on our wedding day, top hats thrown in the air, one hit me in the head!! Thought it was my father- in- law's, when we got video, slowed it down and it was Dave's, my hubby 😅

It is definitely good to have a laugh, I certainly did when I read everything today 😂 no point in me moping around cos it won't change anything!!! Thanks for making me smile 😊

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Hidden in reply to Hidden

Yip u got it in one 👍

Hidden profile image
Hidden in reply to Hidden

👍

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Mais oui 👍

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Hidden in reply to ThreeSmiles

Is that you asking to be excused again Miles?

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Mais oui, oui 🙂

Hidden profile image
Hidden in reply to ThreeSmiles

Could it be a UTI? :-)

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Haha?

Hidden profile image
Hidden in reply to ThreeSmiles

Just wondrin if all that oui oui means an infection is causing it.

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

!!! Slow, me, slow?

Hidden profile image
Hidden in reply to ThreeSmiles

definitely sounds like Ito - that slo slow thing, imho :-)

Hidden profile image
Hidden in reply to Hidden

U T I not lto

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Omg it’s never ending! Now you can comment on that too filly!

Hidden profile image
Hidden in reply to ThreeSmiles

Thanks for your permission Miles! :-)

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Np

.

.

😀

Bootandall profile image
Bootandall in reply to Hidden

Sorry for being dense, l still have missed your point l think.

Sorry for that, dry humor must be very hard to convey in written form.

Okay, did you see what I (tried) to do there? ☺️

Hidden profile image
Hidden in reply to Bootandall

Back in the game. As John McEnroe would say. "You can't be serious."

Referee. 40-Love. 🎾

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Or 0-40 😀

Hidden profile image
Hidden in reply to Bootandall

When a person with a dry sense humour tells a joke it is not always obviously funny. He usually tells it using a serious tone or without any emotion.

Deadpan

Deadpan, dry humor or dry wit is the deliberate display of a lack of or no emotion, commonly as a form of comedic delivery to contrast with the ridiculousness of the subject matter. The delivery is meant to be blunt, ironic, laconic, or apparently unintentional. 😜

Hidden profile image
Hidden in reply to Bootandall

Doesn't always work?

You can often be referred to as a smart barstewart. 🙄

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Hidden in reply to Hidden

You sound like my hubby!!

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Hidden in reply to Hidden

Check his phone Lynne! It may be your husband 😅😂🤣

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Hidden in reply to Bootandall

An Agony Aunt advises people in agony of indecision on which way to jump in a dilemma of NIGHTMARE proportions. e.g.

Dear Agony Aunt

My mother-in-law is coming to stay for a long week-end. Should I go on saying "he's in the bathroom and will be out soon" as I've been telling her for the past three years? Or should I simply tell her the truth that I packed and posted him back to her several years ago? The big problem is she may stop sending us expensive gifts on our anniversary and I've come to depend on the cash I get for these on E-Bay? Help! I'm at my utter wits end!

Yours in bother! LOL

Honoria Fotheringay-Droopsnott.

Does this help?

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

You fruitcake filly 😀

Hidden profile image
Hidden in reply to ThreeSmiles

So says a proper nut-job! :-)

Hidden profile image
Hidden in reply to Hidden

A typical answer would be:

Dear Honoria,

You have the answer yourself my dear. Parcel the old crone up and post her to Papua New Guinea. Put your house and hers on Air B and B and travel the world in style. This will compensate for your cash shortage and keep you from being home if "An Inspector Calls" if you get my drift?

Agony Aunt.

Boot, don't you have Agony Aunts in USA?

Hidden profile image
Hidden in reply to Hidden

Lol. I went to a couple of pain clinics that were neither use nor ornament!! The ones offering injections have at least listened to me!!! Xx

Trust1 profile image
Trust1Administrator

Thank you David for raising this important issue. Sometimes hepatologists work with chronic pain teams in hopsitals to manage ongoing pain problems. Perhaps this needs to happen more.

Warm wishes

Trust1

davianne profile image
davianne in reply to Trust1

Thanks Trust1,

You maybe right, but I don't think my hepatologist, ( the only one in South Bucks Trust), is one of them unfortunately. He doesn't think capsule pain is liver related sadly.......so no help there.

David

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Hidden in reply to davianne

He can still refer you, or your GP can refer you for specialist unrelenting pain treatment. Don't give up asking to be referred for pain management.

I was prescribed codeine for toothache. My dentist suggested it and I rang the GP who said I needed to obtain confirmation that it would be ok for me from the Hepatologist at Leeds. They scanned approval over to the GP Surgery, who then gave me a prescription.

davianne profile image
davianne in reply to Oscar21

Hi Oscar, that's strange, it says on the leaflet with my codeine.....do not take if you have chronic liver disease. I don't think there is any joined up thinking going on with hepatologists.......and there should be, they should all have the same guidelines.

David

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Hidden in reply to davianne

Hi

I've been prescribed co codamol as it's a long time since I had it and I think my body is getting used to a couple of meds, the codeine does seem to be taking the edge off the pain, thank goodness. See if I get some sleep tonight !! I certainly hope so!!I wish you all a good night's sleep. Xxxx

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Hidden in reply to Hidden

Yip - It's usually taken when everyday painkillers, such as aspirin, ibuprofen and paracetamol alone, haven't worked. 👍

Hidden profile image
Hidden in reply to Hidden

Thank you

Bootandall profile image
Bootandall in reply to Hidden

Codeine doesn't build up in the liver, but it does "light up" the brain's neural pathways, which can be dangerously addicting.

ThreeSmiles profile image
ThreeSmiles in reply to davianne

Hi David

Extract from the Mayo Clinic - a very well respected American clinical company, when referring to codeine they say-

Liver disease—Use with caution. The effects may be increased because of slower removal of the medicine from the body.

Miles

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Hidden in reply to ThreeSmiles

Thank you for the advice. How are you feeling today?

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

😑 🙂thanks Lynne!

Hidden profile image
Hidden in reply to ThreeSmiles

Thanks e, but the question remains. How r u ? 🤔

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Lynn with an e ofeck wants to know how you are - well I think that’s the question 👍

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Hidden in reply to ThreeSmiles

Lol !

Hidden profile image
Hidden in reply to ThreeSmiles

2 me 2 u.

Twit twoo addressed 2 u 🤓

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Haven’t seen Owlie today 🙁

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Hidden in reply to Hidden

Hi

Tablets took the edge off the pain last night but it's back, oh well, hey ho.

You have all made me have a laugh as well which does anyone good,no point in moping around, it won't change anything. How are you feeling today?

Hidden profile image
Hidden in reply to Hidden

Ha! Ha!'you pair 😉

davianne profile image
davianne in reply to ThreeSmiles

Thanks Miles, It seems to me that every guidance on its use is different.

It makes me wonder if there is an answer to pain with liver disease.😢😢😢🤔🤔🤔

ThreeSmiles profile image
ThreeSmiles in reply to davianne

David - It’s funny - not ha ha - but do you know I honestly cannot remember what I was taking before the TP.... shocking isn’t it 😕👎. I mean now I have Gabapentin, Codeine and paracetamol for pain. That is all - so lucky me I say 🙂👍.

davianne profile image
davianne in reply to ThreeSmiles

Why would you want to remember bad times, Miles.......I wouldn't😊😊😊 It might have been HE❓❓❓

ThreeSmiles profile image
ThreeSmiles in reply to davianne

I blame everything on HE - even now 😀. Wife , for some odd reason, isn’t impressed......🙂

Hidden profile image
Hidden in reply to ThreeSmiles

Your wife has my sympathy (only joking)

😅

davianne profile image
davianne in reply to ThreeSmiles

Such is life.......when you've got a wife🤣🤣🤣

Hidden profile image
Hidden in reply to davianne

Liver alone cheese mine. 🤔

Bootandall profile image
Bootandall in reply to Hidden

😅😅 Now l got that one!

Hi david, my husband began suffering with intense pain in his shoulders arm and back and the liver specialists have said unrelated,

he has been given a diagnosis of fibromyalgia , which can arrive suddenly, maybe with stress, (and I wd say his body and mind has been tolerating a lot of stress as he has been ill for 2 years and on the transplant list for one year with fortnightly drains etc.) Anyway great news, He was prescribed prednisolone and it worked immediately . A godsend.

He has now tapered the steroid down to 5 mg a day. He is pain free

Sophie

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Hidden in reply to Sophieatkinson

Hi

So pleased for him, must be a relief for you too. Love and hugs Lynne xxxx

I was given Endone (OxyContin) after my hernia operation. It works well but it’s very addictive. I’m still trying to get off the stuff and I was only on 5 mg tablets. My doctor wants me on targin which is also OxyContin but it’s got something else in it so it’s not addictive.

Cheers,

Brett

davianne profile image
davianne in reply to Brett11

Thanks Brett, nice to see you on here again👍👍👍

Are you missing Bertha ❓❓🤣🤣

Are you any where near the bush fires?

David

ThreeSmiles profile image
ThreeSmiles in reply to Brett11

Heyyy Bob

Long time no hear! As I said to you a while back I would love to hear how you are getting on post Big Bertha’s departure!!

I am going to QEHB to determine my fate about son of Bertha 😕 next Thursday.....

Miles

🇧🇧

Hidden profile image
Hidden in reply to ThreeSmiles

Hope your appointment goes well. Please let me know how it goes

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Thank you 👍 and Mais oui 😀

Hidden profile image
Hidden in reply to Brett11

Just wanted to say Hi and welcome back

Who's miss ya baby ......😋

I don't know if it's of any interest to you, but for those of us with AIH, there is a definitive list of which painkillers you can take and how much, depending on the extent of damage to the liver, which was provided to our group by one of the leading Consultants. Let me know if you would like further info. All the best.

davianne profile image
davianne in reply to CarpeDiem11

Many thanks ,

Yes please it would at least give me somewhere to start, and show to my GP and consultant. I found out yesterday that my go to pain relief, amitriptyline, is no good for cirrhosis sufferers.

David

CarpeDiem11 profile image
CarpeDiem11 in reply to davianne

Okay - I'll get onto it. Don't know if I will need permission to repost here, so will contact the admins and get back to you.

davianne profile image
davianne in reply to CarpeDiem11

Many thanks.

I don't think it will be a problem. but if it is, you could PM me with it here, or to my home email address. Just PM me, and I will PM my email.

thanks once again, your throwing me a lifeline👍👍👍

Hidden profile image
Hidden in reply to davianne

Let me guess weeteddy1@hotmail.com ❓

Close -1 for trying. 🙄

ThreeSmiles profile image
ThreeSmiles in reply to Hidden

Hmmm - not sure about a 1. Or is that the lowest we can go?

.

😀

davianne profile image
davianne in reply to ThreeSmiles

No Miles, try nil points.......🤣🤣🤣

Hidden profile image
Hidden in reply to davianne

It's an old one her indoors used that wee dogs gone. (Dogs name 1 @ Aol.)

Didn't mind me sneaking in GGT + a wee bit xtra on the labs. Not the dog.🙄

davianne profile image
davianne in reply to Hidden

Are you phishing 🐟🐡🎣🦈🐠❓

Not even close, though you got the @ right🤣🤣🤣

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