Hello all, not been on for a bit, hope you're all well? My elastography results came back as f1, which is fantastic! 😁 I don't know what the rep and Dr were arguing about 🤷♀️. My alt is still down in normal realms, though high end, my ferritin is where it should be and the main thing is I'll always be kept an eye on via ultrasounds and bloods with hep and haemo Drs. Best of all there is now only minimal fat infiltration in my liver, it was very fatty before treatment. If i hadnt pushed for diagnosis this could be a very different story, it could have gone on for years and left proper, irreversible damage. I'm feeling thankful that after 4 years of symptoms and trying to figure things out, ive had treatment, it's lowered my levels and I've not much damage. I think the porphyria may be in remission as my urine hasn't been red for a couple of months(just a beaut Lucozade colour instead 🤣) and skin seems stronger and less fragile too, fingers crossed 👌🤞
(blt's resident vampire) 🧛♀️ 😁.