Well hello everyone, I thought I would just update you guys.
I had my second call for transplant this came in at 11.55 pm on Saturday night. I got to the Royal Free at 03.15 am Sunday. After all the tests were completed. I was met by a doctor who said he was sure this time was it.
He explained they were hoping to take me down at 8.00 am. I was both nervous and excited. Deliriously happy and scared all at the same time.
Everyone, I met really wanted this to happen for me this time.
Finally asked to gown up and put the designer bits on...
Around 6.30 the liver coordinator came to see me and told me I was going home again.
As I understand it although not 100% sure it had something to do with the 25 minutes they have to get the liver iced. There was a delay and the team decided, as I was so well, currently the two tumours are the main reason... they said they would not risk putting this liver in me as it had been compromised. I am once again sure it went to someone else. Which is great!
I think it also had something to do with my age as well (68).
Fingers crossed for the third time lucky call pearl. You want the best you can get and if the liver wasn't good enough then whilst you do have the ability to wait a bit longer it's best that you do so then get the good one when it comes.
Hi Katie, thank you for your reply. Yes , I will admit to passing a little tear when I left the hospital. The best part really was the realisation that they had not forgotten me. It had been around 8 weeks since the last call and I was just getting the pity potty out... LOL so it was great to nearly get there. I feel chirpy because I was almost there again. Jaycee
It is better to have tried and failed than have the pity potty out LOL. This I can do quite easily when the time starts to tick by. So it was just what I needed. Third time lucky maybe has mine name on it... Jayce
Will do Peter, you stay positive too. We will race to the finish line. Much speed on your journey xxx. At least after the call you have that knowledge that they have not forgotten about you that is a real heart lifter xx Jaycee
I’m so sorry to hear thst this has happened again to you. My sympathy doesn’t help but I’m sure thst you know that we’re all “rooting for you”. I really don’t think thst your age is against you? When I wan transplanted 6 mo the ago there were two individuals in there early 70’s that had been transplanted. Remember you’re in our thoughts x
Thank you so much, I really appreciate your reply truly. I know there are lots of folks rooting for me, It is one of the things I truly love about this site. Ever since I found it and first posted. I still remember the feeling that I was drowning and had lost hope. Joining was awesome, so many positive replies I had and made to feel so welcome. It truly did save me. Since then I have many friends on this site who do all root for me... It is like having a huge family that you can actually tell anything to. You cannot always do that with your real family especially where the Cancer word is. So each and every reply means the world to me. Lovely to have your reply truly xxx
Such a great attitude you have JC- I love it. It seems many of us have had that false dawn and personally (like you) I was devastated when told at the 11th hour that it was a non-starter. But you just have to keep your fingers crossed. I will definitely also have my🤞for you.
When I raised the question of my age I was told it didn’t matter! Nevertheless let’s hope next time it is a 👍 to a successful TP.
Good luck JC!
Miles
It's a shame that the Royal Free doesn't as yet have a liver perfusion machine. This could have made all the difference.
Maybe that phone will ring again soon. (Now playing Led Zeppelin's, "Your Time Is Gonna Come".
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Yes, I thought the same Richard.
There was I thinking of a nice country song like “I will survive”. Gloria Gaynor! Lol. I know how much you love country!! Roll on third time lucky maybe.
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Ooo good song choice Richard!
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I bet it’s on vinyl
Hi
I really feel for you. Fingers crossed third time lucky. I'm not at transplant stage yet but when I am I hope I'm as positive as you. Take care Lynne
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Thank you, so much, but I am not always that positive lol sometimes I am looking high and low for the pity potty. 😂 lol. Lucky for me there is always someone to turn to on this site.
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Everyone is brilliant on this site. I'm lucky that I have a good support network who I truly appreciate and love but I do love everyone on here too and feel very fortunate to have found this site xxxx
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Oh dont you worry about that. It's ok to be human at least once in a while. 😉
That attitude will keep you going a whole lifetimes worth Jaycee 😊. Your time is going to come soon so just stay positive. Your inspiring us all with your outlook on life!
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That is funny I don’t think I could inspire anyone. Although I am pretty good with with reward schemes and my grandchildren... Seriously thank you so much for you words - as always, it means a lot. Jaycee
Wow that is awesome, that has cheered me up too. But they have just this year lowered the threshold to 65 years.. Fingers crossed third time lucky for me.
I met a woman at Kings last year aged 71 she had just had a second transplant first one lasted 16 years
She looked amazing
Don't worry about age it's mental attitude I was told there was little chance of a transplant, I just said I am going to get better. The answer back was right attitude. I was transplanted 4 days later. Amazing. Still can't believe my liver failed and in only 2 months of feeling unwell.
Live in hope my friend Shaswoo, so kind of you to reply. As you rightly say onwards and upwards, chin held high. A smile on your face and love in your heart. Whilst having phone attached to my body at all times.
Hopefully 3rd time lucky, my wife is undergoing the 4 day tests at kings. She is one year older than you , & she is holding her own with lots of Albumin drip going in at the moment.
Keep your hopes up I'm sure it will happen.
I send your lovely wife lots of hugs and good wishes, I found one of the big things for us a little older is stay as fit and active as you can. I try to walk between 3-5 kilometres a day. But not if its raining LOL and never if its snowing !! I am at the Royal Free but based here in sunny Bournemouth. Tell your wife to be brave and we all have everything crossed for her. Stay in touch xxx Jaycee
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