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British Liver Trust
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Scared of cirrhosis

My symptoms started from March this year..felt too much thirsty and lost 10 kgs of weigh..and everymonth I am doing lft test and the results are fluctuating so much..at present my alt is 45 and globulin is 4.3 and albumin is 4.3..and I have gastritis from may and red palms and feet ..please..can someone help me out with my symptoms ..

61 Replies
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Please read the message the trust posted yesterday regarding test results. Only your GP or specialist is qualified to explain them. They mean different things to different people.

We can only share our stories and offer support.

Lx

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Sorry..i didnt get enough information from gp so posted gere..From next time I won't share my test results..

Thanks

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Hi upesh, welcome to the forum 🙂. As Laura stated we can't analyse your blood results, that is a job for the Dr. If I were you I would make an appointment with your gp to discuss your results so he can shed some light on them for you and maybe look into getting an ultrasound? Tell him about the persistent thirst too and ask him to check your blood sugar. I honestly don't think you need be worrying about cirrhosis at the minute, calm down a little and make an appointment. In the meantime you can look after your liver by eating as clean as you can, no alcohol, excess sugars and salt and painkillers/meds only when needed. I wish you all the best, let us know how you go. Stacie. X

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I had an appointment with gp and as soon as he found out that I used have alcohol before ,he neglects all the symptoms and just says the values fluctuates because if alcohol abuse ..he says to wait for an year to settle down the values. But I am feeling tired and numbness in my legs ,hands and lightneadness and not able to run or walk too long,strange smell ,red spots on skin,feet and hand turns red most of the time ..I am mentally not stable for past 2 years due to hallucinations but I am in to medications which I dont have problem with .I use to have alcohol in weekends but now I quit alcohol ,it's been 9 months and the symptoms are getting worse..I am actually alone and don't want my family to know what I am going through. ..

Thanks for your reply..

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Try to get your gp to refer you to a gastorilogist/liver disease specialist they can find out what's really going on. Take care peppy05

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Ya..I have an appointment on next week..so will.get clarified

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Welcome,

Sounds like your doctor has things under control. You mentioned getting LFT’s checked monthly ( or are these private tests?) and you have a gastroenterologist referral.

The specialist will no doubt check further bloods such as fasting glucose to exclude diabetes which could explain thirst, tiredness and weight loss. Maybe a vitamin profile to check whether or not you have absorbtion issues for example vitamins B12 and folic acid deficiency can result in numbness and tingling also extreme tiredness. Of course there are also many other illnesses which can cause your symptoms which is why you need to calm down and let the doctors work through your symptoms.

Meanwhile as others have suggested, it would be beneficial for you to avoid alcohol, fizzy drinks, too much sugar and salt and spicey food. Give your gut a chance to heal and take seriously the advice of the gastroenterologist.

Good luck with your appointment and I hope you feel better soon.

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Ya..lfts are private tests.And I don't even have diabetes or vitamin deficiency ..Gp said as malnutrition and even I have gastritis he said don't avoid any food, eat everything .

But I had stopped eating spicy and hard food as I have indigestion too. I thought of giving time so that my symptoms will settle.down and it's been 9 months ..So this week I am consulting a gastroenterologist ,hope I find answers.

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I don’t mean to contradict your GP but if you have been diagnosed with gastritis, then surely avoiding foods and drinks most likely to further inflame the situation makes sense. It’s your body, use your common sense about what you put in it. There is plenty of dietary advice online, have a look and decide for yourself. Was gastritis diagnosed via endoscopy?

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Ya..gastritis diagnosed via endoscopy .After that I had avoided food and drinks which makes gastritis worse..

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What treatment were you prescribed?

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You must confide in your family. I know you are probably feeling ashamed right now but by admitting your addiction is the first step to getting help to quit for good. You need to make an appointment with your GP, again, admit to him you are addicted to alcohol and have stopped. It's important to have a good relationship between you and your doctor, they will be much more keen to help if you work together. Ask for help getting counselling, it may be you are feeling worse as you stopped completely rather than tapering off it. Some people's bodies react better to stopping completely while others cope better by tapering. I wish you all the best and hope you have a good outcome.

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Gp knows my history of drinking .and I stopped alcoholo completely without any councellomg as soon as my health got deteriorated and if I am sure about my disease then thought of saying to my parents .I will consult my gp again on next week..so will.clarify with him..

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Sorry upesh i didnt read this before my response to Laura and you

Miles

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That is a great post and so right re

- Family involvement

- Being honest with GP (it’s blooming hard but if the GP does’t know the real facts how can you be properly treated?)

- give up alcohol by either of the methods explained (you decide which route you go., just be aware of the potential consequences). However, if you’re lucky like me I just stopped completely and told no-one except immediate family and I had NO issues - lucky me!

All the best upesh

Miles

🇧🇧

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Thanks miles..I had been honest with gp and I gave up alcohol completely..the only thing left is sharing with family .so will do that after I consult with go on next week.

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Good job 😁

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Well done for stopping alcohol, it’s not an easy thing to do especially alone. Have you asked your GP about support to stay off alohol? Perhaps your area has a nurse led team ... no harm in asking.

Abstinence will definitely help your gastric wall to calm down which is a start and might make you feel better.

Do you take any tablets such as Ranitidine or Pantoprazole?

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Stopping alcohol has become easy for me ,but i feel the damage has been done already ..so worried.I am taking veloz 20 right now ..before I used to take 3 tablets for gastritis now I am just taking one .

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So you already know you have cirrhosis or what

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No I don't know still what my disease is..But in blood reports only lft tests were off the chart everytime and have many symptoms

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What numbers are you saying are off. Your ast and alt. Or what. You said your albumin is 4.3 in one post. That is not Low because on my labs the range for albumin is 3.3 -5. something so if yours is 4.3. Then that one is in normal range. But if your ast alt are high. Get a hep c test.

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My globulin is 4.4 and ast will be fluctuating from 40 to 80

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You said your albumin is 4.3 that’s normal on my lab. It is 3.5 -5. Is the globulin Low or what. What the range on your lab.

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Globulin shouldnt be more than 3.5...and my globulin stays near 4.4..and albumin was 3.0 before 2 months and now it increased to 4.3..

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I am new to this site I am asking the same questions you are asking also. I had hep c 10 years ago. Got treated cured now. Had scans back then showed liver appears normal. Alt ast were high before treatment. Now ast is 21. alt 34. Both in normal range. If I were you I would just get a test done to see. 10 years ago I was taking the hardest treatment around and working 12-15 hours a day. I am a welder. I had no side effects at all. I was even thinking treatment was not working. The treatment they have today is way better. Go ask for hepatitis test. If it’s good. Then I am not a doctor but yours could be just the alcohol raising yours.

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Thanks for your reply..I will go and test for hep after consulting gp

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This is why the liver trust don't like results to be shared on this forum. They mean different things to different people and cause confusion and contradiction. Upesh needs see his GP in order to get a true diagnosis of his illness

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Thank you very much for posting this comment Laura. As the above discussion about reference ranges shows, they can differ greatly dependent on the lab processing them.

This is why we have our community guidelines and advise people to always discuss results with their GP/ doctors so they can get an accurate interpretation.

Best wishes

Trust1

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Does cirrhosis of the liver cause Alopecia areata bald spots on scalp

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I believe it can make the hair thin, it definately changes the colour and texture.

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I mean like patches coming off.

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Yes

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So the patch of hair that has came of my head is cirrhosis

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Cirrhosis isnt hair loss. Cirrhosis is severe liver disease. The liver is a major organ of the body with 500 functions. When the liver is severely damaged, virtually every part of the body is affected and hair loss in some sufferers is possible. As i said my husband's full head of hair became very thin and lank, lost its colour and had the texture of a brillo pad.

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And I have asked people on here if a ct or ultrasound would show cirrhosis and they all say yes. So that’s really all I know. I live in Texas. And only reason I am on your guys site is because you guys are a lot more smarter. About this.

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That's very true Chris, our medical profession is 2nd to none in the world 💪👍

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Well.. second to only over here in Canada! 😉😉

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Try not to get caught up in test results and ranges. Everyone is different and ranges are only estimates taken from supposedly healthy people... probably quite some time ago. When the doctor reads your test results he/she does not do so in isolation. The doctor considers the whole picture the blood results provide, coupled with your medical history, signs and symptoms

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Upesh! Remember what Laura said, please, we aren’t supposed to discuss test result values on here. You may not agree but sometimes it is ridiculous to discuss results with people who may or may not have ANY experise in the subject!

Miles

🇧🇧

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Are the numbers low?

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It sounds like you need to try and get a scan to take a look at your liver. Whilst it is possible the abnormal LFT results are to do with your alcohol use if you have stopped and are yet suffering from symptoms then these need checking out. See if your doctor will arrange an ultrasound scan to examine your liver a bit better.

Katie

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I had an ultrasound which came out normal.but the symptoms are getting worse .so,even gp says that wait for an year..and if I had any liver disease ,does it show in ultrasound..

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My liver ultrasounds were normal but a fibroscan of my liver was abnormal. If you still have signs and symptoms of illness, the doctor cannot ignore this. Perhaps you have misunderstood?

Write down your symptoms e.g thirst and signs e.g. red palms, go through the list with your doctor. Perhaps an annual liver ultrasound is planned?

Wait for the gastroenterologist and give him/her the list.

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Hi mauschen..

I still have symptoms ,so he may take it seriously this time or I am going to consult gastroenterologist.

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Good luck!

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Hi Upesh,

I agree with Katie's advice...you were drinking at weekends but stopped nine months ago if I understand you correctly. Further tests would be really useful especially a scan of your liver. I hope you feel a little less isolated now you've found this forum where you will find many friendly people.

Best Chris

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I had an ultrasound which came out normal..and everytime in blood reports only lft tests were off the chart ..so.,I don't know why my symptoms are not been diagnosed..

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I have non alcoholic liver disease and my LFT’s were up and down like a yo yo. If you have inflammation or your liver is enlarged as mine was this can mess up your results. Slow down and let the investigations draw conclusions before you start questioning. You sound extremely anxious which is understandable but it doesn’t help. Do you have a psychiatrist to talk to? In my opinion you need some help to reduce your anxiety and maybe coordinate the investigations with your GP? What do you think?

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As i had done ultrasound scan they said I dont have fatty liver .I had waited for 9 months thinking that it gets better..But it's not getting better and I have a psychiatrist to talk to ..I was suffering from hallucinations too in the past ,so right now I am taking medications and I am anxious because I am not finding a reason for my symptoms..atleast if I find the reason,even if it worse I can plan and manage it.

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I hear you macha26 and understand your dilemma. Just a thought ... have you asked your psychiatrist about the possible side effects of your anti hallucinogens? Medications can also cause liver issues.

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Ya. psychiatrist had prescribed very mild medications which has very less to do harm to liver.So psychiatrist said not to worry

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Another thing has come to mind. Did your doctor carry out any other tests or did he/she just concentrate on the alcohol issue? For example did they carry out tests for any of the viral hepatitis's - Hepatitis B or Hepatitis C? The reason I ask is I am assuming you are not in the UK - Indian Sub-Continent perhaps and here some of the viral hepatitis are very prevalent. You do need further tests rather than a doctor just saying you drink so it's that.

Best wishes, Katie

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No they didn't carry out any viral hepatitis tests..my lfts were 1 to 2 times upper than normal limits..so,they ordered an ultrasound which came out normal.

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Hello Upesh. I am afraid I am not really able to help you as I have a different diagnosis. However I would advise you to ask your GP to refer you to a liver specialist. The average GP will not see a lot of patients with liver disease so you need to see a specialist. Write down a list of questions to take with you and take a good friend / relative (two pairs of ears are much better than one!). I was lucky enough to have a liver transplant earlier in the year and I did not realise how ill I had been until after that, when I started to feel a lot better! Good luck

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Thanks for the inspiration..even I am ready for the worst case scenario even if i have a end-stage liver disease.And I am consulting a gastroenterologist this week..so I get clarified .

Hope you are doing well after liver transplant and continue to do so.

Thanks.

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Livers are complex organs. A GP is not an expert and its crucial you take control to ensure you are seen by a Liver specialist. I recently decided to ask for a second opinion as I saw a gastroenterologist who just sent a letter to my dermatologist saying I had severe fibrosis and to stop methotrexate injections. If you are in the UK we have a right to select where we are referred to under chose and book. . I researched on line for a modern Liver Centre that has Professors and this is all they deal with. You have overcome one massive hurdle by stopping drinking. I'm in the North West and have an appointment in December at Liverpool Royal. GPs are sign posters, I didn't even go to the surgery. I had a telephone consultation and is has been sorted. As a lot of people have said trying to decipher blood tests is difficult and trying to advise is wrong. Even looking on line will leave you with a big headache. If you find it all too complex to take in its worth asking a friend to go with you. A second pair of ears is helpful. Ask too to be copied in to their letters to your GP. This way you have it all in writing. If you ave managed to stop drinking all the rest should be easy. Always remember if you dont ask you dont get.

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Hi Radnor

I am consulting a gastroenterologist this week .and I stopped looking online for my symptoms .lol.as I am googling I found I have all the diseases including different types of cancers .so,I stopped as I am getting more depressed.ya,i am taking a friend this time which would be comfortable for me too..

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I had no clue whatsoever about fibrosis. It was only when I was sorting my holiday insurance!! i had been on the ball and booked my usual flights last November. In April thought I had better sort insurance out, I completed the medical conditions, been around £92 for last few years.I was shocked when the quotes came in, 12 nights in Mallorca , was quoted £990 top price, the lowest I could find was £315! I agree that trying to decipher all the different number, types of tests etc was mind boggling. Im sure learning Russian would have been simpler. I decided it just wasnt wort the cost. I was lucky tha I could cancel the appt booked, just flights lost , which was a lot less than insurance. My liver damage is due to Methotrexate, worked brilliantly on my psoriasis and psor. Arthritis. I had a fibroscan in 2016, just fatty liver diagnosed. In November 2017 had the 2nd one. Fatty liver dropped by 25% . which correlated with losing 1.5stone. In January this year Gastro guy told Dermatologists , not me, I had to come off Metho. After reading contradictory info on line I realised it could be serious. I expected a follow up consultation this didnt happen. I searched online to find a teaching hospital in my area, I saw that Liverpool Royal has a dedicated centre for this. Spoke to my GP and my appt is in December. I have known a few people who have suffered from cirrhosis, I have zero symptoms. My full liver screen was normal, bloods that is. I thought I had the swollen abdomen, but realised no, its middle age spread lol.

Worry is the interest we pay on something that hasn't happened. I hope your consultant is excellent. If not dont be afraid to ask for a 2nd opinion. Gastro covers a multitude of conditions, It can rule out things like gall stones etc. This site is excellent but no one can advise on results of tests. We are all different. Hope it goes well for you, dont be afraid to ask questions and ask to be copied into GP letters. This is important because you can see it in black and white. Good luck Hazel

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Thanks Radnor.

you are doing so well and hope your appointment on December goes well . I will stop getting worried as it just makes the problem worse.I am going to consult gastroenterologist and hope I get answers..

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Macha26,

The main issue is keeping tabs on the units you consume, and get your GP to get a gastro referral.

I was drinking way to much and went to see my GP, as I was bleeding small amounts and seeing the results on bed sheets. No blood test just a prescription for cream, he told me to cut the drinking and the cream would take a while to clear things up.

My wife got feed up, as the bleeding got worse and organised a gastroenterologist appointment herself, by passing the GP Surgery.

Immediate diagnosis of cirrhosis, even before the blood tests, yellow eyes were a bit of a giveaway.

The rest is too long winded but transplanted 10 weeks ago , three and a half years after diagnosis.

Point of the post is that G in GO stands for general, get to a specialist.

Travel insurance, Liver trust has a list but get the diagnosis before going anywhere.

My platelets were very low after GP but pre-consultant. A fifty minute flight to Dinard left me in a complete state. Shaking too much to fill car hire form, all they wanted was credit card and driving license, a shaky signature.

After an hour on terra firma, all was OK.

My last flight but given the OK now.

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