Hi all

[Naomi_1988]

Hello. Just signed up because I’ve just found out my mum is going to need a liver transplant. Just looking for advice,support groups, general info on the issue, feel a bit in darkness with no knowledge of the situation. Many thanks.

[1football]

Hi Naomi

Sorry to hear you mum Is so unwell she needs the transplant but at the same time it’s great she’s strong enough to have this amazing procedure.Am just over 3 months since my transplant and feel very well so if I can help in any way please ask away and there are many people on here who will do the same

Huw

[Naomi_1988 in reply to 1football]

Hi Huw

Thank you for your message, well done to you on a speedy recovery sounds like your doing well.

[Smyally]

Hi and welcome to the group. Sorry to hear your mums not well. I’m also on the waiting list for a liver transplant. What transplant hospital is your mum under. I’m at Addenbrooks and they have been marvellous. Speaking to different people on the forum I think all the transplant centers are. If there’s anything you would like to know feel free to message me, and will help if I can. Take care

[Naomi_1988 in reply to Smyally]

Hi, I think mum will be transferred to Addenbrookes actually. Only found out last night about the transplant, hopefully know some more details later or tomorrow. Thanks so much for your quick reply.

[1football in reply to Naomi_1988]

Addenbrookes are fantastic

[Naomi_1988 in reply to 1football]

We’ve been told that by so many people. If she goes there she’ll be in the best place

[1football in reply to Naomi_1988]

All of the 5/6 transplant hospitals are excellent Naomi you and your mum will be in top top hands I can only speak regards addenbrookes as I’ve been under them for 4 years

[Smyally in reply to 1football]

Wherever she goes she will be having the best care. At the moment this is all very new to you and it will take a while to get your head around it. When she goes to see the consultant make sure someone goes with her. Two heads are better than one, write down any questions you would like to ask and take a note book into the appointment with you. I find this helps me. Xx

[Isabelle2]

Hello Naomi

Welcome to the group. I had a transplant 14 months ago. It has completely changed my life. It’s been a bit up and down with little infections but hey, that’s such a small price to pay for feeling great. I hope it all goes well.

[Hidden]

Dear Naomi,

It is such a shock when you are told something as life changing as needing a liver transplant.

There is some information on the Trust website with regard to Liver Transplant. Here is the link

britishlivertrust.org.uk/li...

The transplant coordinators at all transplant centres will be able to give you lots of information and support and if your mother is going to be at the hospital named there is a support group there : alta.org.uk/

Hope everything goes well for you and your mother.

regards

[Poobear69]

Hi, what area does your mum liv in and where was she assessed for transplant? Her transplant coordinators may be able to assist also. I was transplanted 6 weeks ago at Kings, London which has its own online and offline support system. 😊

[Naomi_1988 in reply to Poobear69]

We don’t know where she will be going yet but al least we know where ever she goes there will be support for her.

[Hidden]

Hi love my hubby had transplant about 15 weeks ago am here for any questions xxxx

[Denise15]

I had my transplant at Addenbrooks who have been brilliant 3 years ago. Liver never been a problem since and I am now seen every 6 months. I had to have a week as an inpatient prior to transplant for assessment of my suitability for transplant then waited 7 months for the transplant. Think of it like the beginning not the end good luck xx

[X19Dave]

Hi as above addenbrooks are fantastic my wife had a transplant 2 years ago, there normally are a couple of more meetings then she will be put on the list my wife was in very quick about 3 months but i think others can wait about a year my wife had 3 calls where the transplant did not happen then the 4th one happened, they have to get you in and ready before they have fully checked the new liver so keep the transplant time down, my wife had quite a bad time with hers but they were great sorted everything out and she is now back to how she used to be before the failier ruined her life.

I know it is a very big thing for you to take in but they have done loads and loads of these transplants and are now very good at them try and look to the positive outcome this will give her normal life back again

Dave