Just like to get peoples thoughts on how to go about life whilst on the transplant list.
I had my first call yesterday after only 3 months on the list and unfortunately the donor liver was not viable in the end.
The experience has left me in a position where I feel I cannot go anywhere further than an hour away from home.
I have a holiday booked in a couple of weeks and I’m seriously thinking about cancelling it.
Transplant coordinators have said to try and lead a normal life and go about things as normal, but I just get the feeling I may miss out on potential donor.
Anyone else have similar feelings?