New system for allocating livers for transplant

[LAJ123]

From the British Liver Trust website.

This should be of interest to all who may be a liver transplant candidate now or in the future.

Jim

britishlivertrust.org.uk/ne...

[Millie09]

Now that was more easy for me to understand. Seems more positive! Liking the new way .Thank you for sharing.

[Fastkat]

I could work out my UKELD score easily.

How do I work out my new score and what will it mean?

[dckimberly]

Thanks for sharing! This was used for me a couple of days ago. Alas, as it will be a second tx, the liver myst be really good.

But the national system is good for someone like me also, because of all my antibodies. I have had numerous transfusions and often am walking around (not well) with a red cell count of 6.3, in fact I’m now getting iron washes in my blood often, since was every blood transfusion changes my antibodies again.

While I was there another man came in fora liver tx. What I thought was interesting was that he had also gotten the call the day before but the team rejected it. He was matched again the very next day.

So that’s the downside, I think, getting called over and over and your doctors saying no. If you live two hours away like I do that can get daunting, I would guess.

But thanks again, Jim!

I’ll show this to Tony! We had not seen this! Your awesome!

Hugs from me!

Kimberly

[Fastkat]

The new scoring system seems to suggest your length of life post tx will become more relevant to the decision to offer a tx.

[b0nnie12]

Thanks for sharing, my brother had no idea that the system was changing until I saw posts on here a few weeks ago. He's not had the letter that others have. We've got his check up this week so hopefully they'll b able to explain how he will be affected. We were at his check up on the Tuesday, docs said that as his health condition was stable that a transplant probably wouldn't be in the short term, yet we got the call 3 days later! Unfortunately it wasn't perfect enough to be transplanted but we are prepared now and just waiting for the call again.