Update of my diagnosis : Still sitting... - British Liver Trust

British Liver Trust

36,532 members17,975 posts

Update of my diagnosis

Faithfull profile image
31 Replies

Still sitting waiting it's in her tray she got clinic and well aware I'm in hell not just liver ,I need to know the results as I ain't got time to many more life one on top of another so help me god she don't phone

Written by
Faithfull profile image
Faithfull
To view profiles and participate in discussions please or .
31 Replies

I don't understand what you are saying. What is your illness?

AyrshireK profile image
AyrshireK in reply to

Our friend faithfull is having a very,very taxing time at the moment - over the years she has been badly let down by the health system in terms of both her mental health conditions and physical health conditions and at the moment she is having a very tough battle to get a firm and definitive answer from doctors.

Over the past few months she has had numerous symptoms which might indicate a possible diagnosis of cirrhosis and indeed has been told she does have cirrhosis following scans and such like only for other doctors in different hospitals to tell her a totally different story. The latest issue is her liver doctor was taking her off his list and sending her back to just GP care with a final kick of the ball being a fibroscan to once and for all establish whether or not she does have cirrhosis. This is the result she is waiting for to try and finally establish what on earth is going on & what the crux of this post is about.

Sadly Faithfull is trying to deal with this on her own whilst also battling various other mental health issues & physical health difficulties and trying to support her daughter who also has her own difficulties and Faithfull has sadly been left without support from mental health teams, has no family to support her at appointments and no advocacy services to assist with attendance at appointments. She freely acknowledges that her own posts are sometimes a little difficult to understand and this is due to her various complex needs and difficulties and we just try and support her the best we can on here.

There are a great many of us who totally feel for Faithfull and wish we could do more for her than what we are able to merely in writing. My hubby often says he couldn't cope with his liver health alone, let alone try to do so with the other complex difficulties that Faithfull is facing.

Katie

p.s. if Faithfull reads this I hope I have adequately explained the situation without causing upset. xxx

in reply to AyrshireK

Oh bless. So sad so sorry for her. Thanks for the explanation xx

incidentally profile image
incidentally in reply to

Dear Faithful,

There are many of us here who are with you as you move through this tough time. I'm grateful to Katie for explaining your current situation to us. I so hope you can feel a little less alone by knowing we are thinking of you.

Faithfull profile image
Faithfull in reply to

Thanks I feel sad for everyone as its hard when I get confused thanks I hope u and all areok

Faithfull profile image
Faithfull in reply to

That's so lovely as its says it all and I no everyone has there own thing but to do that for me was was the wonderful thing . Hope u doing ok

Faithfull profile image
Faithfull in reply to AyrshireK

I'm so overwhelmed that you put that exactly Thank you no ones ever done that taken everything I put I no it's hard to understand .

I no that it's it's so hard as I can't put on here the other thing that's in the hands of something else.

Sounds like I'm nut case but I'm so grateful for that I am holding everything in and can't do it any more .

Second parole board meeting

Man got 9yrs

He done 11yrs

I have held this in and can't any longer I have been in state of hell as he knows where I live and everything as a violent Preditor missed the middle out as sickening so about 3weeks I no that's why watch and wait meningoma head, liver , me body been threw a lot and suffering it now arthritus list end less I feel bad telling you and feel I need someone to no that yes it's me darkest hour after hour and thank you for the every thing you done as this took me hours to post but I'm not delete it again thanks

Faithfull profile image
Faithfull in reply to Faithfull

Sorry 11yrs ago victim

Every yr parole board held

Public protection order

I'm one of the public

Been to hell and back

My sentance is lifetime

Feel I never be free as living

On knifes edge I think the stress fear my insides ain't right and don't want it worse

Thanks for everything I no this is not all to do with liver but

I frightened feel safe on here

I can't trust nothing I'm ashamed to put this on here but I'm really have bit much to handle on top of everything . Thanks

Faithfull profile image
Faithfull in reply to AyrshireK

I've been putting reply in wrong order I put a lot on .

mncold profile image
mncold

Dear Faithfull,

So sorry to hear relations with the doctor are not improving. It may be that your doctor has not received a report yet and that is why she hasn't called yet.

Thinking of you and hoping you hear something soon.

Mary

Faithfull profile image
Faithfull in reply to mncold

Bless your heart thank u

Sending you love and hugs honey xxxx

I'm thinking of you. You have had so much to do deal with, you are an amazing lady to cope with all of it. Love to you and everyone else on the forum. Lynne xxxx

Faithfull profile image
Faithfull in reply to

Thanks love to all

in reply to Faithfull

Thank you xxxx

in reply to

Hi Faithful

How are you doing? Are you feeling any better? We are all here for you. Love and hugs Lynne xxxx

Catherine2017 profile image
Catherine2017

Love and hugs Faithfull hope your feeling better..

Faithfull profile image
Faithfull in reply to Catherine2017

Thankyou

Catherine2017 profile image
Catherine2017

Yes I'm feeling ok got an endoscopy on the 16th, but hanging in there. I'm glad you are feeling better. You take care and hang in there. We all love you !

Hi

Hope your gastroscopy goes ok next week.

How are you all doing? I've been feeling rotten at the moment. Can you imagine us all living near each other and meeting up! That would be one loud place!!! Love and hugs Lynne xxxx

Faithfull profile image
Faithfull in reply to

Sorry ain't been on here you made me laugh that would give me daughters ears a rest THAT WOULD MAKE US HAPPY IT WOULD BE GREAT

Hi

How are you doing Faithful?, Hope you are feeling a little better. Love and hugs Lynne and

Faithfull profile image
Faithfull in reply to

I've got the all clear confused . Com

in reply to Faithfull

Hi Faithful, I would keep on at them until they find out what's causing your problems. Love and hugs Lynne xxxx

Faithfull profile image
Faithfull in reply to

I no they don't know what there doing !

Faithfull profile image
Faithfull in reply to Faithfull

Love And big hugs xx

Hi

Catherine 2017. How did your gastroscopy go yesterday? Hope it went well. Love and hugs to everyone Lynne xxxx

Catherine2017 profile image
Catherine2017

Thank you for asking it was ok no aceas , but did do a couple of biopsies on my stomach for H. Pylori Infection Of The Stomach. Waiting on those results still. Are you feeling better today?

Love & hugs.

Hi

Not feeling very good, thank you for asking. I've had the runs since Sunday! Not nice!!🤒🙁 Xxxx

Faithfull profile image
Faithfull in reply to

Hope it's slowed down I'm getting same then the colours of the rainbow if u no what I mean it's doing me back in

in reply to Faithfull

I know and thank you xxxx

You may also like...

Advice on my diagnosis

non alcholic liver disease. I am wondering how serious the condition is? I know I need to make...

Update on my Cirrhosis

than I have for a long time. You too can still live a normal life as long as you listen to your...

Update on my husband admitted again

Well after seeing the specialist today I don't know where I am he should never have been discharged...

An update on my jaundice looking eyes

my eyes showed no signs of jaundice, I decided to wait until my gp appointment that was supposed to...

Update on my hospital scan and X-ray...

as much as she did - and I'm wondering now if she was actually the Radiographer - because she said...