I'm going crazy in losing my mind it's... - British Liver Trust

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I'm going crazy in losing my mind it's me in the little white box lyrics Jessie j

Faithfull profile image
14 Replies

Pleas read this update already stressed my Jessie j lyrics . Discharged liver dr back GP next GP face to face you have cirrohosis I said after the bowel exam as in discharge letter X-ray showed serverly constipated four places inside exactly where I get pain .

He said I have no black or blood stools belly of an elephant still and two weeks movicol instead of me usual lactaloze he given me another script

Just opened post as one letter fro liver dr now saying

Following the difficulties we have had in determine where or not you have cirrhosis ,I have des used your case with our hemptoligist team .

They advise that we do one further scan called a fibro scan and will determine once and for all whether or not there is any cirrhosis in your liver.

Fibro scan letter came same time 22march to see stiffness and not to be confused with ultra sound . This was previously advise by neuro in same hospital. Well feel weird again still not well but the hospital is to busy so is GP so is crisis team mental health as the lot of them has made a broken down woman in more than I can take but u no what still having to prove it ain't all in me head and thankyou everyone I'm be ok

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Faithfull
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14 Replies
Porphyriamaniac profile image
Porphyriamaniac

Hi faithfull, I think this is good news for you as the fibroscan should show you and the Doctors aswell one way or another. It is some progress with them at least. I'm glad they are not just discharging you without checking thoroughly. I wish you well, keep your chin up! Xxxx

Faithfull profile image
Faithfull in reply to Porphyriamaniac

Thanks

Faithfull profile image
Faithfull in reply to Porphyriamaniac

Sorry been discharge but this is a cover up as I drove myself insane and still am as confused short term getting longer I gave the hospital the reports and GP as well in depth the bloods ct mir with a sheet of metal on top of body as I never had no knowledge at all my diagnosis has been not read only by my brain dr as of head meningomia .

Chelle_ profile image
Chelle_

Good News your getting a firbro scan you can have some definitive answers. Try and eat as healthy as possible and reduce your drinking if you drink that is or stop altogether if you can. Give whatever is going on in your body a chance of healing!

Stay away from google! Good Luck and keep us informed!

Faithfull profile image
Faithfull in reply to Chelle_

Thanks

Millie09 profile image
Millie09

Hi faithful . Sorry i have not been on forum much. Just moved and having a nightmare

Well when i went to my first hepatologist appt in feb last year they actually questioned how i knew i had cirrhosis??? Yet my dr had forwarded me to them as my symptoms had increased. After lengthy talk bloods etc..they did a fibro scan there and then .my reading was 27 .. she said it was high and end stage f4 fibrosis. I was actually shocked as i thought myself to be extremely well !!

This is great news for you hun.this way it will show one way or another. Good luck xx

Faithfull profile image
Faithfull in reply to Millie09

I'm laughing crying as terrified to use anything phone this I was calling Samaritan the only number I no see you had replied the post says it all in the lyrics of that song thanks for reply when I no u no we gone and still are same sort things thank u X hope your doing ok ok as we can be

Millie09 profile image
Millie09 in reply to Faithfull

Hi faithful.. i know how frustrated you are with all the messing around, but try not to over think things as our minds can be our worse enemy.. if you need Samaritans to just have someone to listen to you and it helps then do so, just hang on in there.. x im ok .. thank you for asking x

Faithfull profile image
Faithfull in reply to Millie09

My number is blocked as of my never ending talking that one had to go on a break only joking!!! Every time I see your name I wanna have a laugh and joke as u no hyeractive ADHD uncontrollably emotionally high then low .

Your all keeping me going anyway ain't all about me how you managing to stay sane with fighting everything in this life . Look after yourself .

Millie09 profile image
Millie09 in reply to Faithfull

Hahaha !! Omg funny.. love that sence of humour of yours.

Yes i understand as my nephew is the same. Aww ..we are all here to help if we can hun

Oh im ok.still bloody trying to get things done in the new home. Still no heating system and no washing machine as it somehow stopped working after the move. Infact the removal company caused me a lot if grief! have a busy week this week with people calling to thehouse for updating things and new washing machine and changing over meter from pay as you go to monthly direct debit. Can't be doing pay as you go .not with my prolapsed discs and dodgy hip lol. Have to remain positive regardless.. you take care xxx

Faithfull profile image
Faithfull in reply to Millie09

Yes definately stay positive . Not if u want the test results !

You no what I mean I I'm laughing in a mental health crisis at min see me next post u belive me u doing excellent I've sending me letter off want to get that mind torcher off me back wat do they want to no now I'm To the point of another load of driving people to hell STATMENT of truth in it as I feel like I'm in court and if the judge pissed off that day u lose feel like I can't fight gov let alone the nhs neglect

inal court

Millie09 profile image
Millie09 in reply to Faithfull

I understand yoir frustration, i know i would be exactly the same. Infact i do get annoyed at times, especially since i moved .now trying to get orthopaedic assesment for this place and finding new places for physio in an area i am unfamiliar wiith . . Yes! I know hun .i think these people don't have a clue when it comes to mental health, i suffer from anxiety and depression .its hard enough aa it is ! Xx

Faithfull profile image
Faithfull in reply to Millie09

Every A to Z mental physicall help line I even by mistake this is true domestic violence unit for men just wanted to beet them up as the women's can't get threw I'm seriously getting ADHD do me protest but I'm to ill and was going to say don't wanna be on tag again as probation report said ask if I do it again I said yes the protest for children abusedin care then everyone got the rights of the people stopped bus in a second thought I let this one go looks like there been bingo and done over grand worth damage no one would call papers even the hoodies in area stayed away

Not to anything that wern't insured as of cars I had breakdown when police turned up they said me name and I said look do not bend me up I've got bad arthritus they was pleased I had me cloths on they new me as of all the shit I have had I've lost it bad not to people just hung off bridge out window so it ain't working I'm not as nutty now got the energy of a snail it's all true for humane rights I'm laughing as u must think she off her head it's I ain't got no fight in me and I'm frightened as daughter ain't well I got to get a move as there's no one nothing and in fear as well this been to long now like this post

M

Hi Faithful

How are you now? I'm thinking of you and I know you will get there. Lots of love Lynne xxxx

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