Post Liver Transplant: Hi everyone been... - British Liver Trust

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Post Liver Transplant

angse profile image
8 Replies

Hi everyone been away a Long time Due to battling Liver Disease

Nearly Losing My Life 3 Times

But received My Transplant This Year

June 20th Feel Really well

Had to have Scan as Surgeon wanted to take me off one of My

Immunosuppressants It showed up Bile Duct Issue Then Had MRI Scan to See Problem he told me yesterday It was Dilated no blockage No Stricture

Asked what It Was And he said will leave it for awhile And See what happens If that wasn't Bad Enough

New Healthy Liver I Received Has now after 5months some Fat In it Not overweight Eat sensibly And healthy

To shocked yesterday to get my Head around It All so Hardly asked any

Questions not like Me But shocked

Wonder If anyone can Share anything with me on this subject thanks In Advance

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angse profile image
angse
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8 Replies
jojokarak profile image
jojokarak

Hi hunni why didn't you message me on FB xx they will transplant a fatty liver into us because they know it can be easily reversed and it's better than the shit one you had xx

h0b0 profile image
h0b0

Hi. My partner had xplant July 2016 & is showing signs of a fatty liver. Also I would't worry too much about the meds. It can take a while to get the dosages right for you. You should have a team of nurses that you can contact if you have any worries. Ours are a great lot of guys who will answer any questions no matter how trivial.

Just try not to worry too much & enjoy the second chance of life that you have been given....it's still early days .

Have a great Xmas.xx

angse profile image
angse in reply to h0b0

Hi Sorry So Long for the reply

Had a very good Xmas Hope You did also meds I am Now fine with

No Problems 9 Months Now

Could not be more thankful to God And Donor xx

gamesmaker profile image
gamesmaker

I was pleased to see your recent post. I also understand how you feel when you go to out-patients. Someone in my family always tries to be there on the grounds that two pairs of ears are better than one. It is sometimes difficult as I am a widow, and my own children are spread around the world. I do find that the family members share notes (with my permission of course ). I know I attend the same hospital as you do but I do wish that they had a specialist nurse as they do in other health fields - they are really useful for explaining things if available. I think I will have to wait on this score. Good luck! I am thinking of you.

angse profile image
angse in reply to gamesmaker

Hi Games maker

How are you My memory Ecesspicaly With HE really

Took Quite A Bit of memory with It Did you Get Transplant

Can't remember

Damasc profile image
Damasc

Hi Angse, I am new to this site & just reading what you have survived puts a nose bleed in perspective. Reading your post & the replies removed fear of the unknown. Wishing you the best of medical attention to you & your liver. Scarred and little bit less scared.

angse profile image
angse in reply to Damasc

Hi Damasc

Please Don't Be Afraid I was For The First 2yrs Prayer And being Positive Thoughts having them I mean Takes Away All fear.it did Me had Transplant 9 Months Ago

And not being ill And being able to walk to Shops is a blessing and privilege hope you are well x

Damasc profile image
Damasc

Hi angse 😯. Good to receive your msg this morning. Glad to hear you are Counting your blessings & enjoying your new freedom. I am now starting the day with a "please" & ending it with a "thankyou". You've just inspired me to go to a weekly Mindfulness morning (run by Alcohol & Other Drugs Service, set up by Queensland government in Australia where I live). Finding that peace between the ears....practising. Better than a "doona" day. It's cold & windy today, good walking weather!

Back to fatty liver. Gastroenteroligist looking after me talks about benefit of a Mediterranean diet. That's also for heart health & diabetes. Damnation! no chips!

Thanks again. Avaguday.

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