Bonita frost: My partner had a liver... - British Liver Trust

British Liver Trust

36,481 members17,960 posts

Bonita frost

Ssandssand profile image
3 Replies

My partner had a liver transplant ten years ago it's since failed and they refused to give her another based on she missed to many appointments in the past bare in mind they cancelled four this year there selves we realy don't know were to go from here she is only forty nine and not a drinker never have been

Written by
Ssandssand profile image
Ssandssand
To view profiles and participate in discussions please or .
Read more about...
3 Replies
AyrshireK profile image
AyrshireK

Where are you in the world? Certainly centres in the UK demand a compliance with medical appointments and medicinal regimes prior to and after transplant - it's a pointless exercise giving the transplant in the first place if the patient doesn't follow up with the medical protocol afterwards.

I know in the UK the regular post transplant appointments involve taking blood tests and altering immune suppressant medication to suit any changes plus appointments for regular monitoring of the transplanted organ (as well as other possible things that can pop up due to the medicine).

If your partner has been non-compliant with the monitoring appointments it's possible the organ has failed due to this as medication wouldn't have been amended, changes identified etc. etc. Ok, the medical team have had to cancel some appointments this past year but how many did she not attend before that?

It's sad that your partner now finds herself in this situation but why on earth has she not been going to the appointments? By not attending the necessary appointments she has placed herself in this predicament. There may be some form of appeal to the t/p centre but bridges may have been burned there through the non-compliance - part of transplant assessment usually looks at the support networks post transplant and compliance with medical regime and your partner hasn't followed through with their side of the deal so to speak.

Katie

I was on the transplant list & they took me off it due to catching sepsis.They are still trying to decide if I should go bk on again.

I know how your partner feels.I'm 43 & had my transplant at 33.I don't drink,never have done.I was just unfortunate that I caught acute liver disease.

Tell her to keep talking until she at least gets answers & good luck.

Ssandssand profile image
Ssandssand in reply to Dudewheresmyliver1

Thanks they have given her about 6 months to live so we r running out of time

You may also like...

Mum drinking with Liver Disease

everyone, My mum has Liver cirrhosis, she's an alcoholic that has drank for many years. She was...

Anxious about ultrasound scan, will it definitely show what's wrong with me?

removed from her pancreas, along with her spleen, when she was a few years older than me and she...

Help and advice for mum

smoking and lost weight, she wouldn’t be here in 5 years later. Last year (dec 22) she went into...

Wife passing from decompensated cirrhosis complications

2021 and I notice swelling in her legs and she was very fatigued. She never had jaundice or...

Wife given 40% - 60% chance to survive the month

Vomiting Blood. She is a relapsed alcoholic 61 years old with a history of cirrhosis. She is very...