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British Liver Trust
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Elevated ALP and GGT, liver lesions and fatty liver

Hi all, a routine blood test showed prolonged period of elevated Alp and ggt. Due to some other issues the dr ordered a scan which showed multiple liver lesions and a cyst. They have now booked me in for an MRI, just wondering if anyone out there has had anything similar. Thanks

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Did they have a look at your kidneys, as well?

P.

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Hi P, kidneys are ok

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I have multiple small space-ocupying lesions in the liver on CT, but I do have them in the kidneys, as well. That ones come in all sizes.

Do not stress yourself. Wait for the MRI.

P.

P.S.: On a sidenote, I prefer an EGD to an MRI. Quite.

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Thanks P

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Hi I have been diognosed with liver lesions and they told me normally they wouldon't cut them out during an op or chemotherapy treatment but in my case both those options are out because I have only 1 lung and because that was removed my liver now resides where the lung used to be so I was then offered an embolism blocking off the blood supplies to the tumors but because the liver is now in my ribcage that can't be done either so I am left up in the air at the moment so the best of luck with whatever treatment they offer you by the way I did not drink at all or smoked but I still got lung cancer twice

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Thanks for your reply Mick. Sounds like you have had a rough time. Hope all goes ok for you.

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Sometimes no matter what you do, life can send some curved balls at you. I used to work in an office where a lot of people smoked. I never took up smoking myself but I'd swear some days I inhaled about 60 a day because of the amount my colleagues smoked. They used to leave them burning in ashtrays between interviews with clients.

Take care

Gx

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Is PDT a possible treatment for you @mickmm? Call the Yorkshire Laser Centre and ask - its run by a charity, the guy who does the outpatient op is the worlds most foremost specialist so you/'re in good hands but most NHS Trusts won't fund the treatment (it's about £8k, so cheap in my books versus other cancer treatments...) - if you can be treated that way it's a one off treatment. Alternatively the NHS in the North East is running PDT some treatments as a 'trial' - I'm told surgeons wont take time out to get retrained and just stick with surgery.... Anyway thought I'd mention it as many liver cancers are def. suitable for PDT treatment.

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Have they checked for antibodies? AMAs or antimitochondrial antibodies (sub-type AMA-M2) are an indicator for a liver condition called PBC (primary biliary cirrhosis), and ALP and GGT are often raised with PBC.

Don't google it, as much of the stuff online is horribly out-of-date. However, there is a 'PBC Foundation', who have a help site here on 'Health Unlocked'.

PBC can cause scarring (which is what 'cirrhosis' means) (By the way: just because PBC and certain other liver conditions can cause scarring, this is nothing to do with drinking alcohol, so don't let anyone label you). PBC used to be considered serious, but now there are drugs to control it, with all sorts of other advances being made. It's unlikely they would not have checked for AMAs, but it's worth asking if they have checked, as PBC is relatively rare and general gastroenterologists are not always familiar with it.

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Thanks. It all gets a bit confusing. I'll take your advice and put Mrs Google to bed until I have the MRI. 😜

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NB Make sure you do ask them if they have tested for AMAs - especially if you have not got a copy of all the test results (if you are in the UK they really should give you a full copy) to check for yourself. I think other liver enzymes would probably be out of lkilter if it was PBC, but I don't know if MRI can detect the micro-level scarring that happens in PBC. Usually a liver biopsy is done if they suspect PBC yet the AMA test and/or liver enzyme results are not enough for a diagnosis.

But yes, don't Google and try not to worry. they are ont o whatever is going on, and that is good. Also plenty of lovely helpful people on here to talk to.

Good luck and take care.

Gritty

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