Well I went through the eradication therapy and for a week I felt better. After I stopped the course, a few days later the agonising pain started again. Now my GP has been changed as the previous one closed down. We are stuck in a rut and we can't get appointments for 3 weeks. This is the pathetic waiting time and there's no emergency ones either.
I had my clinic date today so I thought I'd bring it up with the consultant I see. I hate clinics at times because it's like a lucky dip. You have no idea who you will see. Some are great and some, well they lack empathy and emotions all together and spout some jargon at you.
I saw this really rude and disgusting consultant today. She happened to be a female and I always feel female doctors aren't great with women. It probably is me. Anyway so I tell her the whole saga and guess what? She turns around and tells me that Helicobacter Pylori doesn't give you pain apparently. I explained to her that due to acid you can get pain instead of heartburn. She completely dismissed me and then said she can't do anything as she only looks at the liver.
So what happened today? I burst out in tears. I couldn't hold my emotions back today. I've had enough! I am not crazy or mental. I go in and see all these different consultants and they all promise me something the next time and nothing is done apart from tests. I couldn't speak to the lady. I couldn't form words because I was crying so hard. She had no remorse. I got angry and said I just wanted my prescription and left without saying thank you to her. I wanted to discuss these horrible tremors that have gone worse but I left it.
I'm not one to cry in public and usually quite composed. But gosh today nothing could hold me back. I went in to give my bloods and I was crying and talking to confirm my details. The nurse was so kind. She closed the door and let me just cry out loud and was disgusted by this doctor. She said that was wrong and got the manager to come in and quickly arrange for me to see another consultant. Bare in mind that I had waited over an hour for my appointment as this doctor misplaced my label and saw some other person.
This doctor was kind and gentle and he requested a test to check my amylase level. He said he didn't want to override the gastro doctor I saw privately and wanted to speak to him before handing out antibiotics and that he will call me next week to discuss it further.
He was very kind and it made a difference. I took his name and I hope I get to see him again and not that other lady. I know her name so I'll avoid her.
I feel fed up guys. I'm losing the will to live with this pain any longer. At times I'm wishing it will all end. I know longer want this painful life. If I can't be pain free then I definitely do not want this long life. I can cope with exhaustion and many other pains and side effects of medications but not this pain.
The second doctor reduced my prograf level too.
Thank you for listening or reading.
Regards
Jahida
End stage liver disease and kidneys failing 
Worried about my mum!
End stage liver disease & cancer - what to expect 
