Hi
I have currently got what I think are IBS symptons in that I keep having to go to the toilet! And have a lot of wind.....If I go out socially or for meeting I have to have a codeine to make sure I am OK during the day that day and a windeeze...and this cam be three times or more a week...Not sure what to do as I shouldnt be doing this with cirrhosis. Any advice welcome.
Are you taking lactulose?
It is quite usual to have to toilet a lot and it makes you windy too if you are taking it. With cirrhosis you do need to got to the toilet regularly, it is vital in order to remove toxins from the body and taking your codeine so regularly is likely to make you constipated. If you are taking lactulose you could 'play' with the timings. We have to do that with hubby if we know we are travelling and toilet facilities might not be immediately available.
As you know you shouldn't be taking lots of additional meds or over the counter remedies with cirrhosis as you are adding more stress to your liver.
Katie
Hi, thanks,,,,well I have lactulose so will take some and time it well..but not needed Lately as I don't need it due to always going! i have to have some sort of life without worrying and if the codeine helps thenI will take it but take the lactulose too.....I take 15mg codeine as prescribed as it also menat to ease my back pain but it doesnt help that as it is a very low dose.
I have suffered with ibs from birth. You need buscopan which you can buy over the counter and it is safe to take pre and post transplant, also mint tea for the wind and it also helps with digestion. If you make a note of what your eating for a fortnight and how your bowels are you should be able to figure out what food is triggers for you. A lot of mine is pulses, beans and all green veg as they are fibre rich foods. Hopefully you can get some relief after doing the diary of food
I tried peppermint tea but I found that it made me really thirsty.
Thanks Jim..will take a look.
That must be hard for so long...this is new for me, i go out and worry how I am going to be with people at their homes or at a meeting so as you saw above I take a codeine and windeeze..,,its only been for a few weeks that this has all happened and been taking something called Urso medicine for PBC over a year with no problems..how are you? I have seen your posts....hope all gets better.....
That must be hard for so long...this is new for me, i go out and worry how I am going to be with people at their homes or at a meeting so as you saw above I take a codeine and windeeze..,,its only been for a few weeks that this has all happened and been taking something called Urso medicine for PBC over a year with no problems..how are you? I have seen your posts....hope all gets better....
Cant seem to reply to you Jojo....goes under other peoples comments..hope this arrives anyway
I drink mint tea all the time now because of a windy problem. Ha ha
I've had a RADAR key to disabled toilets since I had similar problems. Pre transplant it was pretty severe, got a lot better post but now the medication has the same effect but not as bad.
You can usually get a RADAR key from your local council office - here in West Sussex its free. There are even phone apps that give you the location of the nearest disability access toilet.
Jim
PS - a lot easily accessed toilets have a sign 'disability is not always visible' So we don't have to feel awkward using a 'disabled' toilet when there is nothing to indicate there is a problem
Hi there
I suffered from IBS for years, have had to make a run for the toilet on too many occasions to mention. I took lots of over the counter meds and that ultimately made things worse, even had piles. Even special creams didn't help except for good old Vaseline ! I found that lactulose worked for me when constipated. With the opposite problem I avoided coffee . Basically, you have to take the time and find out what foods suit you, trial and error I'm afraid. Keeping a food diary is a great idea. Stress for me was also a huge contributing factor. It will take time to find out what your body responds to but it will work.
Good luck
Lottie xx
It's horrible. I have ulcerative colitis, since '03, which if you like is the big brother disease version of IBS. It is one of the most horrible things I've ever had to live with. When I have a flare up which can last a day to my worst which was 8 months you have to live your life by where the nearest toilet is. I've had so many close calls, and embarrassingly more accidents then I care to mention.
All I can suggest is get to know you're body, recognise the early signs, plan for the worst e.g. Have a toilet roll in your car or bag have a change of clothes at work.
One thing that does work but is bloody hard to do is this. If you get the sudden urge to go to the toilet, one don't panic but more importantly don't concentrate on where the nearest toilet is, if possible imagine the toilet is further away than it is. Your body subconsciously starts to relax if it thinks the toilet is just upstairs or just next door etc. It helped for me anyway.
All the best
That sounds awful for you. I will take the advice of thinking the toilet is further away..that makes sense. Thank you
Hi,
If you are experiencing any bowel problems then it is important to discuss that with your liver specialist so it can be properly investigated.
It would also be a good idea to let them know about the medication you are taking so that they can be fully aware and specifically advise you.
Great advice from Jim about investigating RADAR keys,
Best wishes,
Rebecca
Thank you......seeing him in a fortnight ..three months after when I should have! as he has been away and then appointment cancelled due to the computer problem the other week so had no way of telling him whats going on.
Just been diagnosed with fatty liver disease 
Struggling and desperate.
Post transplant gotta go back in. 
Meet the Liver Transplant Team
Feeling a bit deflated 😔
