Just joined!: Hello, I'm looking after... - British Liver Trust

British Liver Trust

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Rosemary128 profile image
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Hello, I'm looking after my husband with PSC and hope to hear a bit about other people's experiences with ascites management. He has a permanent peritoneal drain and we drain 2 Litres every other day at the moment. Is anyone else managing one at home or have any tips? Thanks in advance.

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Rosemary128 profile image
Rosemary128
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Identity75 profile image
Identity75

Hi I've also got PSC and UC since 2003. Thankfully no ascites as yet but I have just been put on the waiting list for a transplant. How long has your husband had PSC?

Rosemary128 profile image
Rosemary128 in reply to Identity75

He was diagnosed 20 years ago and all has been reasonably well until recently. He didn't get the option of a liver transplant though so very good wishes for you with that.

Identity75 profile image
Identity75 in reply to Rosemary128

Fairly similar here. Until last year you wouldn't have known I had PSC, then it raised its ugly head. Thank you, it's scary being on the waiting list but I'm so glad that I am. I hope your husband is doing well and that you are coping. There are plenty of people on here that have or have had ascities spam sure someone will be able to offer you some more support/advice.

All the best

jojokarak profile image
jojokarak

Hi rosemary I haven't had the permanent drain in, but I was getting drained that much I should of had one lol am sure you know the normal stuff like no salt, fresh food and limited fluid intake apart from regular exercise nothing much else I could input fingers crossed for you both he is considered for transplant soon xx

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