Waiting for cartwheels: Hi all have just... - British Liver Trust

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Waiting for cartwheels

albee61 profile image
albee61
β€’8 Replies

Hi all

have just joined up got hep c , fatty liver & cirrhosis just 2 name a few things I've got just finished 3 mth treatment of Harvoni I've lost 10kgs due 2 healthier eating ( well compared 2 wot I had been eating ) drinking heaps of water & getting off my fat lazy arse & going 4 a walk most days

Hope u'll welcome me in ur gang I look 4wd 2 being in contact with people in same boat 🚒 that understand each utha feelin scared & alone 😒

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albee61
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tracy107 profile image
tracy107

Hi albee61,

I'm hep c and have cirrhosis

I'm waiting to have treatment which i was told will start end November early December so any day now

although I'm relived after 20 years being hep c in 12 weeks it could be gone forever : ) can i ask if you had any side affects if so what were they,how long will it be before you know if the treatment have been a successful?

Your right it can be a scary lonely place living with hep c as well as other issue but this blog is helpful as well as insightful as we are all at different stages

Tracy x

albee61 profile image
albee61 in reply to tracy107

Hi πŸ™‹ Tracy

ur very special 2 me

u were the very 1st Gangster Member 2 contact me....so thanx heaps ...have finished treatment ...last 4 weeks had really bad depression & migraines...got heaps of stuff going on...prob had nothing 2 do with treatment...stuffed up with regular blood tests....due 2 things being in 2 hard basket 😒 Is this site in Aust ? wldn't it b great if we all cld meet up & talk freely & b there 4 one another...

l wish 🌠 u heaps of ❀ O's & X's on ur journey...

b good 2 u

Kathy x

tracy107 profile image
tracy107 in reply to albee61

Hi Katy

you hang in there hun anything you'd like to know just ask me I'll be honest with ya I'm still waiting for treatment to start i rang hospital last week was told it will be asap but when your told it will be in a certain time all your hope's go in i guess I've lived with hep c for past 20 years probably much longer a few more month's won't matter! I also suffer with depression anxiety and have BPD so understand how things get to much sending much love your way wishing you a Merry Christmas your kindness touch me

Keep in touch

Much love

Tracy X

albee61 profile image
albee61 in reply to tracy107

definate side effect I suffered with & still am ....is...INSOMNIA ....

OMG !!!!! I have NEVA. had ANY trouble sleeping....except of course wen I willingly took a substance that kept me awake....but saying that ...... u mightn't have any side effects with lots of luck..... I am so very sorry 4 the long response..... I didn't no how 2 get in2 my inbox ...... silly me haha πŸ˜†!!!!!

Kathy. X

Sykesy01 profile image
Sykesy01

Hi albee61 welcome to our little gang of travelers. I had hep C as well for 30 years before I cleared it with Harvoni. Not before it left it's mark with cirrhosis though. I to am trying to keep active and eat well. So I look forward to reading your posts in the future. Everyone in the forum is helpful and welcoming. So all the best Ian

albee61 profile image
albee61 in reply to Sykesy01

thanx 4 being so kind by contacting me & welcoming me 2 b a Gangster I've finished Harvoni....haven't had blood tests ( my fault ) slack but genuine reasons ....CONGRATS !!!!!!

on ur treatment results that's FANTASTIC!!!!!

I hope u ur family & friends r extremely proud of u & how far u've come cos I am 😊

I'd like 2 leave u with a touching quote I read.......

Wen writing about UR LIFE NEVA

GIVE ANYONE else the pen... Kathy....❀ O's X's

Wldn't it b great...4 all of us 2 meet up & talk freely πŸ‘ŒπŸ‘Œ

albee61 profile image
albee61 in reply to Sykesy01

Just re-read ur msg

is it cos the medication is so strong ...it caused cirrhosis do the tests reveal the extent

Kathy x

Sykesy01 profile image
Sykesy01 in reply to albee61

Hi there no the cirrhosis was caused by having the hepatitis C for so long and nothing to do with the meds. Good luck with your tests.

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