Up again. Been missing in action - British Liver Trust

British Liver Trust

36,532 members17,974 posts

Up again. Been missing in action

Catfishjumpin profile image
16 Replies

I just spent 5 full days unable to go into sunlight. When I am truly fatigued and ill, I cannot bare light, just the shade of my room with curtains closed. I became so ill this time, I really wanted to die. Dying is not easy but I wanted it. I could not eat or drink much. I had to hold onto things along the route to my bathroom about 7 steps. I did not get mentally confused just deeply forlorn then deeply depressed. I managed to be driven about the island yesterday afternoon. Stopped here to make a rest spot on the picnic table. I am happier today even. But it will return, that gnarly fatigue. I slept almost entirely and certainly remained in bed all day then all night for 5 days and nights. They called off all treatments for me. There will be no transplant. This routine is now my new life. But I know I will cycle again. I just need a bit more rest. Aloha Catfishjumpin

Written by
Catfishjumpin profile image
Catfishjumpin
To view profiles and participate in discussions please or .
16 Replies

Hey great to see you, you look so well considering keep your chin up thinking of you always....Maria x❤

Brummi profile image
Brummi

Hey!. Keep up the dreams and will power and all the cycle rides will be yours. Unfortunately fatigue is with us all. As for the bike! I cheated and brought an electric one ( please don't tell my consultant ). You can get there . I just take several rest during the day... Take care.

soooze50 profile image
soooze50

Sending strength and wellness from New Zealand....;)

Geffy22 profile image
Geffy22

Aloha Catfishjumpin so glad to see you out in the sun, thinking about you xxx

Alpha Mis Daisey ✨✨✨✨✨✨✨

mherbie profile image
mherbie

Love to you from the borders of England and Wales. xx No sun here today, just beautiful autumn colours and fallen apples! xx

LAJ123 profile image
LAJ123

Take care and continue to enjoy the delights of nature. Maybe feel some wind through your hair today courtesy of Angus the storm !

Jim and Lucy

pip-lit profile image
pip-lit

indomitable spirit! love the photograph. I've been wondering and thinking about you...hope you will go cycling in the sun very soon. sending you a good strong breeze for underneath your wheelsxxxxxxxx

Jahida profile image
Jahida

Please do not leave. You're such a big motivation here for so many!xxxx

soooze50 profile image
soooze50

When your energy level permits, any contact with kindred spirits is nourishing, so tap away here on this site, the good vibrations will over throw the not so good. Please stay with us if you can kia kaha, (New Zealand Maori means stay strong) x Soooze

Catfishjumpin profile image
Catfishjumpin in reply to soooze50

💕💕💕

Catfishjumpin profile image
Catfishjumpin in reply to soooze50

Maybe I can make this my mantra to recite before I sleep. The Maori are some of the strongest people on the planet. 🙏🙏🙏

Sykesy01 profile image
Sykesy01

Oh Catfish it truely pains me to see you as bad as you are. It must be amplified with you so fatigued, especially with you being such an energetic person. I wish I could inject you with a massive dose of energy which I know you must crave. I send you all my best wishes and waves of good thoughts and prayers that you can get back into that saddle. All my love and wishes Ianx

Catfishjumpin profile image
Catfishjumpin

Not being able to cycle is truly breaking my heart. Thank you very very much for understanding. ❤️

Katherine1962 profile image
Katherine1962

Not been on the forum for a few days and just catching up on your posts. Your spirit is so strong and I love this picture with the wind blowing through your hair. I can feel this breeze. Keep strong as you always seem to be x😀

Catfishjumpin profile image
Catfishjumpin in reply to Katherine1962

👍🏻😉

You may also like...

Believe drs report or body actions,or both?

spoke to a friend whos husband died of it and she said he is showing all the signs of liver...

On my feet again, all organs relaxed.

able to move fluid and food from my body. I just want all to know that we are still here and there...

Ascites again& still. And Creatin at 240

found to be fine, I think Ill have to be readmitted again in next few days, because they want to do...

Coping with what could have been

had the transplant. He had sepsis in March and almost died and was going downhill fast just before...

Missing dad

one believes in I'm just saying my dad dying made me think so much harder about all of this! My...